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Disability and Rehabilitation Volume 42, 2020 - Issue 16
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Research Papers

Rehabilitation needs of youth with arthrogryposis multiplex congenita: Perspectives from key stakeholders

Caroline ElfassyClinical Research Department, Shriners Hospital for Children, Canada, Montreal, Canada; ;Rehabilitation Department, Shriners Hospital for Children – Canada, Montreal, Canada; ;School of Physical and Occupational Therapy, McGill University, Montreal, Canada; Correspondence[email protected]
ORCID Iconhttp://orcid.org/0000-0003-0918-9316View further author information
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Vasiliki Betty DarsaklisClinical Research Department, Shriners Hospital for Children, Canada, Montreal, Canada; ;Rehabilitation Department, Shriners Hospital for Children – Canada, Montreal, Canada; ORCID Iconhttp://orcid.org/0000-0002-3469-6507View further author information
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Laurie SniderSchool of Physical and Occupational Therapy, McGill University, Montreal, Canada; View further author information
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Cynthia GagnonCentre de Recherche Charles-Le-Moyne, Sherbrooke University, Longueuil, Canada; ;Groupe de Recherche Interdisciplinaire sur les Maladies Neuromusculaires (GRIMN), Jonquière, Canada; View further author information
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Reggie HamdyClinical Research Department, Shriners Hospital for Children, Canada, Montreal, Canada; ;Pediatric Orthopedics Department, McGill University, Montreal, CanadaView further author information
&
Noemi Dahan-OlielClinical Research Department, Shriners Hospital for Children, Canada, Montreal, Canada; ;Rehabilitation Department, Shriners Hospital for Children – Canada, Montreal, Canada; ;School of Physical and Occupational Therapy, McGill University, Montreal, Canada; ORCID Iconhttp://orcid.org/0000-0001-8567-7173View further author information
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Pages 2318-2324 | Received 20 Sep 2018, Accepted 11 Dec 2018, Published online: 11 Feb 2019

Citations (9)

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Caroline Elfassy, Sarah Cachecho, Laurie Snider & Noemi Dahan-Oliel. (2020) Participation among Children with Arthrogryposis Multiplex Congenita: A Scoping Review. Physical & Occupational Therapy In Pediatrics 40:6, pages 610-636.
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Articles from other publishers (8)

Catalina E. García Aguilar, Cristina García-Muñoz, Ines Carmona-Barrientos, Maria Jesus Vinolo-Gil, Francisco Javier Martin-Vega & Gloria Gonzalez-Medina. (2023) Rehabilitation in Patients Diagnosed with Arthrogryposis Multiplex Congenita: A Systematic Review. Children 10:5, pages 768.
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Sarah Cachecho, Jill Boruff, Trudy Wong, Francis Lacombe & Noemi Dahan-Oliel. (2021) Psychosocial wellbeing among children and adults with arthrogryposis: a scoping review. Health and Quality of Life Outcomes 19:1.
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Marianne Gagnon, Gabriela Marino Merlo, Rita Yap, Jessica Collins, Caroline Elfassy, Bonita Sawatzky, Jacquelyn Marsh, Reggie Hamdy, Louis-Nicolas Veilleux & Noémi Dahan-Oliel. (2021) Using Telerehabilitation to Deliver a Home Exercise Program to Youth With Arthrogryposis: Single Cohort Pilot Study. Journal of Medical Internet Research 23:7, pages e27064.
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Marianne Gagnon, Jessica Collins, Caroline Elfassy, Gabriela Marino Merlo, Jacquelyn Marsh, Bonita Sawatzky, Rita Yap, Reggie Hamdy, Louis-Nicolas Veilleux & Noémi Dahan-Oliel. (2020) A Telerehabilitation Intervention for Youths With Arthrogryposis Multiplex Congenita: Protocol for a Pilot Study. JMIR Research Protocols 9:6, pages e18688.
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Reggie C. Hamdy, Harold Bosse, Haluk Altiok, Khaled Abu‐Dalu, Pavel Kotlarsky, Alicja Fafara & Mark Eidelman. (2019) Treatment and outcomes of arthrogryposis in the lower extremity. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 181:3, pages 372-384.
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Marianne Gagnon, Kevin Caporuscio, Louis‐Nicolas Veilleux, Reggie Hamdy & Noémi Dahan‐Oliel. (2019) Muscle and joint function in children living with arthrogryposis multiplex congenita: A scoping review. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 181:3, pages 410-426.
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Alexa Cirillo, Jessica Collins, Bonita Sawatzky, Reggie Hamdy & Noémi Dahan‐Oliel. (2019) Pain among children and adults living with arthrogryposis multiplex congenita: A scoping review. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 181:3, pages 436-453.
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Noémi Dahan‐Oliel, Judith Hall, Ani Samargian, Bonita Sawatzky & Harold Bosse. (2019) Summary of the 3rd international symposium on arthrogryposis. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 181:3, pages 277-279.
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