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Disability and Rehabilitation Volume 42, 2020 - Issue 26
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Research Papers

Stumbling, struggling, and shame due to spasticity: a qualitative study of adult persons with hereditary spastic paraplegia

Hans C. J. W. Kerstensa Radboud University Medical Center, Radboud Institute for Health Sciences, IQ Healthcare, Nijmegen, The Netherlands; ;b HAN University of Applied Sciences, Nijmegen, The Netherlands; Correspondence[email protected]
ORCID Iconhttps://orcid.org/0000-0002-6492-4590View further author information
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Ton Satinkb HAN University of Applied Sciences, Nijmegen, The Netherlands; View further author information
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Maarten J. Nijkrakec Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Rehabilitation, Nijmegen, The NetherlandsView further author information
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Bert J. M. De Swartb HAN University of Applied Sciences, Nijmegen, The Netherlands; ;c Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Rehabilitation, Nijmegen, The NetherlandsView further author information
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Bas J. H. Van Lithc Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Rehabilitation, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0001-6609-8782View further author information
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Alexander C. H. Geurtsc Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Rehabilitation, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0001-7478-1119View further author information
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Maria W. G. Nijhuis-van der Sandena Radboud University Medical Center, Radboud Institute for Health Sciences, IQ Healthcare, Nijmegen, The Netherlands; ;c Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Rehabilitation, Nijmegen, The NetherlandsORCID Iconhttps://orcid.org/0000-0003-2637-6877View further author information
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Pages 3744-3751 | Received 17 Dec 2018, Accepted 17 Apr 2019, Published online: 13 May 2019

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Hans C. J. W. Kerstens, Ton Satink, Maarten J. Nijkrake, Bert J. M. De Swart, Maria W. G. Nijhuis-van der Sanden, Philip J. Van der Wees & Alexander C. H. Geurts. (2021) Experienced consequences of spasticity and effects of botulinum toxin injections: a qualitative study amongst patients with disabling spasticity after stroke. Disability and Rehabilitation 43:25, pages 3688-3695.
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Articles from other publishers (7)

Malte Ollenschläger, Patrick Höfner, Martin Ullrich, Felix Kluge, Teresa Greinwalder, Evelyn Loris, Martin Regensburger, Bjoern M. Eskofier, Jürgen Winkler & Heiko Gaßner. (2023) Automated assessment of foot elevation in adults with hereditary spastic paraplegia using inertial measurements and machine learning. Orphanet Journal of Rare Diseases 18:1.
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Hans C. J. W. Kerstens, Maarten J. Nijkrake, Bert J. M. De Swart, Ria W. G. Nijhuis-van der Sanden, Marije Vos-van de Hulst, Gery J. Bos, Alexander C. H. Geurts & Philip J. Van der Wees. (2023) Online monitoring of focal spasticity treatment with botulinum toxin in people with chronic stroke or hereditary spastic paraplegia: a feasibility study. Journal of Rehabilitation Medicine 55, pages jrm00383.
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Evelyn Loris, Malte Ollenschläger, Teresa Greinwalder, Björn Eskofier, Jürgen Winkler, Heiko Gaßner & Martin Regensburger. (2023) Mobile digital gait analysis objectively measures progression in hereditary spastic paraplegia. Annals of Clinical and Translational Neurology 10:3, pages 447-452.
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Christian Laßmann, Winfried Ilg, Marc Schneider, Maximilian Völker, Daniel F.B. Haeufle, Rebecca Schüle, Martin Giese, Matthis Synofzik, Ludger Schöls & Tim W. Rattay. (2022) Specific Gait Changes in Prodromal Hereditary Spastic Paraplegia Type 4: preSPG4 Study . Movement Disorders 37:12, pages 2417-2426.
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Lotte van de Venis, Bart P. C. van de Warrenburg, Vivian Weerdesteyn, Bas J. H. van Lith, Alexander C. H. Geurts & Jorik Nonnekes. (2021) Improving gait adaptability in patients with hereditary spastic paraplegia (Move-HSP): study protocol for a randomized controlled trial. Trials 22:1.
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AhmadZaheer Qureshi. (2021) A call to develop standardized guidelines for treatment of spasticity. The Journal of the International Society of Physical and Rehabilitation Medicine 4:1, pages 8.
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Bas J. H. van Lith, Hans C. J. W. Kerstens, Laura A. C. van den Bemd, Maria W. G. Nijhuis-van der Sanden, Vivian Weerdesteyn, Rob J. E. M. Smeets, Klemens Fheodoroff, Bart P. C. van de Warrenburg & Alexander C. H. Geurts. (2020) Experienced complaints, activity limitations and loss of motor capacities in patients with pure hereditary spastic paraplegia: a web-based survey in the Netherlands. Orphanet Journal of Rare Diseases 15:1.
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