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Disability and Rehabilitation Volume 42, 2020 - Issue 26
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Research Papers

Using directed-content analysis to identify a framework for understanding quality of life in adults with Rett syndrome

Aleisha Strugnella School of Physiotherapy and Exercise Science, Curtin University, Perth, Australia; View further author information
,
Helen Leonardb Telethon Kids Institute, The University of Western Australia, Nedlands, AustraliaView further author information
,
Amy Epsteinb Telethon Kids Institute, The University of Western Australia, Nedlands, AustraliaView further author information
&
Jenny Downsa School of Physiotherapy and Exercise Science, Curtin University, Perth, Australia; ;b Telethon Kids Institute, The University of Western Australia, Nedlands, AustraliaCorrespondence[email protected]
View further author information
Pages 3800-3807 | Received 02 Jan 2019, Accepted 19 Apr 2019, Published online: 10 May 2019

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Nicholas Buckley, Michelle Stahlhut, Cochavit Elefant, Helen Leonard, Meir Lotan & Jenny Downs. (2022) Parent and therapist perspectives on "uptime" activities and participation in Rett syndrome. Disability and Rehabilitation 44:24, pages 7420-7427.
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Articles from other publishers (6)

Jeffrey L. Neul, Alan K. Percy, Timothy A. Benke, Elizabeth M. Berry-Kravis, Daniel G. Glaze, Sarika U. Peters, Eric D. Marsh, Di An, Kathie M. Bishop & James M. Youakim. (2023) Trofinetide Treatment Demonstrates a Benefit Over Placebo for the Ability to Communicate in Rett Syndrome. Pediatric Neurology.
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R.P. Romero-Galisteo, E. Pinero-Pinto, R. Palomo-Carrión, C. Luque-Moreno, G. Molina-Torres & M. González-Sánchez. (2023) Translation, cross-cultural adaptation and validation of the Rett syndrome motor evaluation scale (RESMES): Spanish version. European Journal of Paediatric Neurology 47, pages 72-79.
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Lynne Marsh & Paul McAleer. 2023. Intellectual Disabilities: Health and Social Care Across the Lifespan. Intellectual Disabilities: Health and Social Care Across the Lifespan 55 70 .
R.P. Romero-Galisteo, M. González-Sánchez, L. Costa, R. Brandão, C. Ramalhete, C. Leão & L. Jacobsohn. (2022) Outcome measurement instruments in Rett syndrome: A systematic review. European Journal of Paediatric Neurology 39, pages 79-87.
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Javier Güeita-Rodriguez, Pilar Famoso-Pérez, Jaime Salom-Moreno, Pilar Carrasco-Garrido, Jorge Pérez-Corrales & Domingo Palacios-Ceña. (2020) Challenges Affecting Access to Health and Social Care Resources and Time Management among Parents of Children with Rett Syndrome: A Qualitative Case Study. International Journal of Environmental Research and Public Health 17:12, pages 4466.
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Brittany Mann. (2020) WITHDRAWN: Commentary: What matters most? Outcome measures in Rett syndrome. Pediatric Neurology.
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