Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys

Linda Kwakkenbosa Behavioural Science Institute, Clinical Psychology, Radboud University, Nijmegen, The NetherlandsCorrespondence[email protected]
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Andrea Carboni-Jiménezb Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, CanadaView further author information

Marie-Eve Carrierb Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, CanadaView further author information

Mia Pépinb Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, CanadaView further author information

Sandra Peláezb Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, Canada;c Department of Educational and Counselling Psychology, McGill University, Montréal, QC, CanadaView further author information

Vanessa L. Malcarned Department of Psychology, San Diego State University, San Diego, CA, USA;e Joint Doctoral Program in Clinical Psychology, San Diego State University, University of California, San Diego, CA, USAView further author information

Ghassan El-Baalbakif Department of Psychology, Université du Québec à Montréal, Montréal, QC, CanadaView further author information

Brett D. Thombsb Lady Davis Institute for Medical Research, Jewish General Hospital, Montréal, QC, Canada;c Department of Educational and Counselling Psychology, McGill University, Montréal, QC, Canada;g Department of Psychiatry, McGill University, Montréal, QC, Canada;h Department of Epidemiology, Biostatistics, and Occupational Health, McGill University, Montréal, QC, Canada;i Department of Psychology, McGill University, Montréal, QC, CanadaView further author information

& on behalf of the Scleroderma Patient-centered Intervention Network Support Group Project Advisory Team show all

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Agnes Kocher, Michael Simon, Andrew A Dwyer, Catherine Blatter, Jasmina Bogdanovic, Patrizia Künzler-Heule, Peter M Villiger, Diana Dan, Oliver Distler, Ulrich A Walker & Dunja Nicca. (2021) Patient and healthcare professional eHealth literacy and needs for systemic sclerosis support: a mixed methods study. RMD Open 7:3, pages e001783.
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Danielle B. Rice & Brett D. Thombs. (2019) Support Groups in Scleroderma. Current Rheumatology Reports 21:4.
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Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys

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Reasons for not participating in scleroderma patient support groups: a comparison of results from the North American and European scleroderma support group surveys

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