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Disability and Rehabilitation Volume 44, 2022 - Issue 1
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The long-term unmet needs of informal carers of stroke survivors at home: a systematic review of qualitative and quantitative studies

Alexandra M. J. Denhama Faculty of Health and Medicine, School of Medicine and Public Health, University of Newcastle, Callaghan, Australia;b Priority Research Centre for Stroke and Brain Injury, Hunter Medical Research Institute, New Lambton Heights, AustraliaCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0003-4512-3250View further author information
ORCID Icon,
Olivia Wynnea Faculty of Health and Medicine, School of Medicine and Public Health, University of Newcastle, Callaghan, AustraliaORCID Iconhttps://orcid.org/0000-0001-5238-3080View further author information
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Amanda L. Bakera Faculty of Health and Medicine, School of Medicine and Public Health, University of Newcastle, Callaghan, AustraliaView further author information
,
Neil J. Sprattb Priority Research Centre for Stroke and Brain Injury, Hunter Medical Research Institute, New Lambton Heights, Australia;c Faculty of Health and Medicine, School of Biomedical Sciences and Pharmacy, University of Newcastle, Callaghan, Australia;d Department of Neurology, Hunter New England Local Health District, John Hunter Hospital, New Lambton Heights, AustraliaView further author information
,
Madeleine Loha Faculty of Health and Medicine, School of Medicine and Public Health, University of Newcastle, Callaghan, AustraliaView further author information
,
Alyna Turnera Faculty of Health and Medicine, School of Medicine and Public Health, University of Newcastle, Callaghan, Australia;e IMPACT – the Institute for Mental and Physical Health and Clinical Translation, School of Medicine, Barwon Health, Deakin University, Geelong, AustraliaORCID Iconhttps://orcid.org/0000-0001-7389-2546View further author information
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Parker Magina Faculty of Health and Medicine, School of Medicine and Public Health, University of Newcastle, Callaghan, AustraliaView further author information
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Billie Bonevskia Faculty of Health and Medicine, School of Medicine and Public Health, University of Newcastle, Callaghan, Australia;b Priority Research Centre for Stroke and Brain Injury, Hunter Medical Research Institute, New Lambton Heights, AustraliaORCID Iconhttps://orcid.org/0000-0001-8505-622XView further author information
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Pages 1-12 | Received 21 Aug 2019, Accepted 13 Apr 2020, Published online: 12 May 2020

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Aileen Chou, Barbara J. Lutz, Scott R. Beach & Janet K. Freburger. (2023) Informal caregiver training to address functional mobility limitations of stroke survivors: a scoping review. Topics in Stroke Rehabilitation 30:7, pages 700-713.
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Felicity A. S. Bright, Claire Ibell-Roberts & Bobbie-Jo Wilson. (2023) Psychosocial well-being after stroke in Aotearoa New Zealand: a qualitative metasynthesis. Disability and Rehabilitation 0:0, pages 1-14.
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Miranda L. Rose. (2023) Elizabeth Usher memorial lecture: Beyond our practice borders—using a biopsychosocial framework to improve long-term outcomes for people living with aphasia. International Journal of Speech-Language Pathology 25:3, pages 346-354.
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Heidi Lavis, Paulette van Vliet & Meredith Tavener. (2023) Stroke survivor, caregiver and therapist experiences of home-based stroke rehabilitation: a thematic synthesis of qualitative studies. Physical Therapy Reviews 28:2, pages 157-173.
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Elizabeth A. Lynch, Jessica Nolan, Lemma N. Bulto, John Mitchell, Annette McGrath, Simon Lane, Gill Harvey, Dominique A. Cadilhac, Rachel Harling & Erin Godecke. Is learning being supported when information is provided to informal carers during inpatient stroke rehabilitation? A qualitative study. Disability and Rehabilitation 0:0, pages 1-9.
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Articles from other publishers (9)

Emmie Malewezi, Mary R. O’Brien, Katherine Knighting, Juliet Thomas & Barbara Jack. (2023) Development of the Carers’ Alert Thermometer for Stroke Family Caregivers (CAT-S): A Multiphase Action Research Study. Health & Social Care in the Community 2023, pages 1-14.
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Anu Berg, Tero Tapiola & Maija Hujala. (2023) Spouses’ need for information and satisfaction with the patient’s care and rehabilitation after stroke. Importance of depression and prescheduled follow-up. Patient Education and Counseling 107, pages 107589.
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Chaohui Ji, Huibin Pan, Jie Zhang, Yiming Zhao, Kai Fu & Xiaofei Zhu. (2023) miR-140 Aggravates Chronic Obstructive Pulmonary Disease by Inducing Oxidative Stress in Diaphragm Cells by Targeting Nuclear Factor Erythroid 2-Related Factor 2. Journal of Biomedical Nanotechnology 19:1, pages 98-108.
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Emmie Malewezi, Mary R. O'Brien, Katherine Knighting, Juliet Thomas & Barbara Jack. (2022) A different way of life: a qualitative study on the experiences of family caregivers of stroke survivors living at home. British Journal of Community Nursing 27:11, pages 558-566.
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Jackie Einerson, Beth Cardell, Jennifer J. Majersik, Maija Reblin, Lorie Gage Richards & Alexandra L. Terrill. (2022) Piloting GETCare. Rehabilitation Nursing 47:6, pages 220-227.
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Kerry Micklewright & Morag Farquhar. (2021) Face and content validity of the Carer Support Needs Assessment Tool (CSNAT), and feasibility of the CSNAT intervention, for carers of patients with chronic obstructive pulmonary disease. Chronic Illness 18:3, pages 532-548.
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Langduo Chen, Lily Dongxia Xiao & Diane Chamberlain. (2022) Exploring the shared experiences of people with stroke and caregivers in preparedness to manage post‐discharge care: A hermeneutic study. Journal of Advanced Nursing 78:9, pages 2983-2999.
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Elaine T. Miller, Kelly E. Stacy & Tamilyn Bakas. (2022) Stroke Family Caregiver Life Changes From the COVID-19 Pandemic. Journal of Neuroscience Nursing 54:4, pages 159-164.
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Elton H Lobo, Finn Kensing, Anne Frølich, Lene J Rasmussen, Patricia M Livingston, Sheikh Mohammed Shariful Islam, John Grundy & Mohamed Abdelrazek. (2022) mHealth intervention for carers of individuals with a history of stroke: Heuristic evaluation and user perspectives. DIGITAL HEALTH 8, pages 205520762210890.
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