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Disability and Rehabilitation Volume 44, 2022 - Issue 7
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Research papers

A grounded theory study to identify caregiving phases and support needs across the Alzheimer’s disease trajectory

Kristina M. Kokoreliasa Rehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, CanadaORCID Iconhttps://orcid.org/0000-0002-1277-472XView further author information
ORCID Icon,
Monique A. M. Gignacb Dalla Lana School of Public Health, University of Toronto, Toronto, Canada;c Institute for Work and Health, Toronto, CanadaORCID Iconhttps://orcid.org/0000-0003-4445-3274View further author information
ORCID Icon,
Gary Naglied Department of Medicine, Faculty of Medicine, University of Toronto, Toronto, Canada;e Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada;f Rotman Research Institute, Baycrest Health Sciences, Toronto, CanadaORCID Iconhttps://orcid.org/0000-0002-6274-0894View further author information
ORCID Icon,
Nira Rittenbergg Department of Occupational Science and Occupational Therapy, Faculty of Medicine, University of Toronto, Toronto, CanadaORCID Iconhttps://orcid.org/0000-0001-9164-1791View further author information
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Jennifer MacKenzieg Department of Occupational Science and Occupational Therapy, Faculty of Medicine, University of Toronto, Toronto, Canada;h Ontario Shores Centre for Mental Health Sciences, Geriatric Transitional Unit, Whitby, CanadaORCID Iconhttps://orcid.org/0000-0001-6360-5574View further author information
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Samantha D’Souzag Department of Occupational Science and Occupational Therapy, Faculty of Medicine, University of Toronto, Toronto, CanadaORCID Iconhttps://orcid.org/0000-0002-3436-9151View further author information
ORCID Icon &
Jill I. Camerona Rehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, Canada;g Department of Occupational Science and Occupational Therapy, Faculty of Medicine, University of Toronto, Toronto, CanadaCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0003-4161-1572View further author information
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Pages 1050-1059 | Received 17 Nov 2019, Accepted 24 Jun 2020, Published online: 20 Jul 2020

Citations (12)

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Read on this site (2)

Jill I. Cameron. (2021) Family caregiving research: Reflecting on the past to inform the future. The Journal of Spinal Cord Medicine 44:sup1, pages S19-S22.
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Guillermo Garcia-Ribas, Elena García-Arcelay, Alonso Montoya & Jorge Maurino. (2020) Assessing Knowledge and Perceptions of Alzheimer’s Disease Among Employees of a Pharmaceutical Company in Spain: A Comparison Between Caregivers and Non-Caregivers. Patient Preference and Adherence 14, pages 2357-2364.
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Articles from other publishers (10)

Michelle Teti, Jacquelyn Benson, Karla Washington & Abigail Rolbiecki. (2023) “Each Day We Lose a Little More”: Visual Depictions of Family Caregiving for Persons with Dementia. Journal of Applied Gerontology 42:7, pages 1642-1650.
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Kristina M. Kokorelias, Roula Markoulakis & Sander L. Hitzig. (2022) Considering a Need for Dementia-Specific, Family-Centered Patient Navigation in Canada. Journal of Applied Gerontology 42:1, pages 19-27.
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Kristina M. Kokorelias, Monique A. M. Gignac, Gary Naglie, Nira Rittenberg & Jill I. Cameron. (2021) Caregivers' decision‐making for health service utilisation across the Alzheimer's disease trajectory. Health & Social Care in the Community 30:4, pages 1344-1352.
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Malihe Mohamadi Ferizi, Shahrbanoo Aali, Imanollah Bigdeli, Fariborz Rezaeitalab & Arezoo Moradi Tavalaei. (2022) COVID-19 Pandemic and Caregiving of Old Adults with Chronic Nervous System Disease. Iranian Journal of Psychiatry and Behavioral Sciences 16:2.
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Kristina Marie Kokorelias, Michelle LA Nelson, Terence Tang, Carolyn Steele Gray, Moriah Ellen, Donna Plett, Carlotta Micaela Jarach, Jason Xin Nie, Kednapa Thavorn & Hardeep Singh. (2022) Inclusion of Older Adults in Digital Health Technologies to Support Hospital-to-Home Transitions: Secondary Analysis of a Rapid Review and Equity-Informed Recommendations. JMIR Aging 5:2, pages e35925.
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Kristina M Kokorelias, Jessica E Shiers-Hanley, Zoe Li & Sander L Hitzig. (2022) A Systematic Review on Navigation Programs for Persons Living With Dementia and Their Caregivers. The Gerontologist.
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Paige M. Wallace & Harvey L. Sterns. (2022) Considerations of Family Functioning and Clinical Interventions. Gerontology and Geriatric Medicine 8, pages 233372142211190.
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Alison Warren. (2021) Preserved Consciousness in Alzheimer’s Disease and Other Dementias: Caregiver Awareness and Communication Strategies. Frontiers in Psychology 12.
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Kristina M Kokorelias, Gary Naglie, Monique AM Gignac, Nira Rittenberg & Jill I Cameron. (2021) A qualitative exploration of how gender and relationship shape family caregivers’ experiences across the Alzheimer’s disease trajectory. Dementia 20:8, pages 2851-2866.
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T. Joseph MattinglyIIII, R. Brett McQueen & Pei-Jung Lin. (2021) Contextual Considerations and Recommendations for Estimating the Value of Alzheimer’s Disease Therapies. PharmacoEconomics 39:10, pages 1101-1107.
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