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Disability and Rehabilitation Volume 45, 2023 - Issue 8
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A systematic review and qualitative synthesis of the experiences of parents of individuals living with Duchenne muscular dystrophy

Clare M. Donnellya Department of Psychology, Queen’s University Belfast, Belfast, Northern IrelandORCID Iconhttps://orcid.org/0000-0003-1614-0318View further author information
ORCID Icon,
Rosaline M. Quinlivanb MRC Centre for Neuromuscular Diseases, UCL Institute of Neurology, National Hospital for Neurology and Neurosurgery, London, UKView further author information
,
Aaron Herrona Department of Psychology, Queen’s University Belfast, Belfast, Northern IrelandView further author information
&
Christopher D. Grahama Department of Psychology, Queen’s University Belfast, Belfast, Northern IrelandCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0001-8456-9154View further author information
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Pages 1285-1298 | Received 03 Sep 2021, Accepted 26 Mar 2022, Published online: 17 Apr 2022

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Erik Landfeldt, Rongrong Zhang, Anne-Marie Childs, Jessika Johannsen, Declan O'Rourke, Thomas Sejersen, Jurgis Strautmanis, Ulrike Schara-Schmidt, Mar Tulinius, Maggie C. Walter, Tracey Willis & Katharina Buesch. (2022) Assessment of face validity of a disease model of nonsense mutation Duchenne muscular dystrophy: a multi-national Delphi panel study. Journal of Medical Economics 25:1, pages 808-816.
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Articles from other publishers (1)

Philip A. Powell & Jill Carlton. (2022) A comprehensive qualitative framework for health-related quality of life in Duchenne muscular dystrophy. Quality of Life Research 32:1, pages 225-236.
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