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Disability and Rehabilitation Volume 46, 2024 - Issue 10
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Assessment Procedures

The facioscapulohumeral muscular dystrophy – health index: Italian validation of a disease-specific measure of symptomatic burden

Elena Carraroa The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyCorrespondence[email protected]
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Lucia Catherine Grecoa The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, Italy;b NeMO Lab, ASST Niguarda Cà Granda Hospital, Milan, ItalyView further author information
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Andrea Lizioa The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyORCID Iconhttps://orcid.org/0000-0002-8875-9665View further author information
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Maria Berettaa The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyView further author information
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Susanna Pozzia The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyView further author information
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Jacopo Casiraghia The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyView further author information
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Stefano Becchiatia The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyView further author information
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Fatmira Beshiria The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyView further author information
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Maria Chiara Frisonia The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyView further author information
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Felicia Iossaa The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, ItalyView further author information
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Chad Heatwolec Department of Neurology, The University of Rochester Medical Center, Rochester, NY, USA;d The Center for Health and Technology, Rochester, New York, USAView further author information
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Valeria Sansonea The NEMO Clinical Center (NEuroMuscular Omnicenter – Fondazione Serena Onlus), Milan, Italy;e Dept. Biomedical Sciences for Health, University of Milan, ItalyView further author information
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Pages 2130-2137 | Received 12 Oct 2022, Accepted 05 May 2023, Published online: 17 May 2023

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Andrea Lizio, Lucia Greco, Maria Beretta, Maria Chiara Frisoni, Stefano Becchiati, Jacopo Casiraghi, Valeria Ada Sansone & Elena Carraro. (2023) The upper extremity functional index (UEFI): Italian validation in patients with Facioscapulohumeral muscular dystrophy. Disability and Rehabilitation 0:0, pages 1-7.
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Haruo Fujino, Masanori P. Takahashi, Harumasa Nakamura, Chad R. Heatwole, Hiroto Takada, Satoshi Kuru, Katsuhisa Ogata, Kiyoka Enomoto, Yuto Hayashi, Osamu Imura & Tsuyoshi Matsumura. Facioscapulohumeral muscular dystrophy Health Index: Japanese translation and validation study. Disability and Rehabilitation 0:0, pages 1-10.
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