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Original Articles

What Does it Mean to Listen to People with Dementia?

Pages 377-392 | Published online: 01 Jul 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (7)

Vicki Welch, Fiona Turner-Halliday, Nicholas Watson, Philip Wilson, Bridie Fitzpatrick, Richard Cotmore & Helen Minnis. (2017) Randomisation before consent: avoiding delay to time-critical intervention and ensuring informed consent. International Journal of Social Research Methodology 20:4, pages 357-371.
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Alison Ferguson, Gemma Duffield & Linda Worrall. (2010) Legal decision-making by people with aphasia: critical incidents for speech pathologists. International Journal of Language & Communication Disorders 45:2, pages 244-258.
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Ed Freeman, Linda Clare, Nada Savitch, Lindsay Royan, Rachael Litherland & Margot Lindsay. (2005) Improving website accessibility for people with early-stage dementia: A preliminary investigation. Aging & Mental Health 9:5, pages 442-448.
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TIM BLACKMAN, LYNNE MITCHELL, ELIZABETH BURTON, MIKE JENKS, MARIA PARSONS, SHIBU RAMAN & KATIE WILLIAMS. (2003) The Accessibility of Public Spaces for People with Dementia: A new priority for the 'open city'. Disability & Society 18:3, pages 357-371.
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Liz Forbat. (2002) 'Tinged with Bitterness': Re-presenting stress in family care. Disability & Society 17:7, pages 759-768.
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Anthea Innes. (2002) Dementia Care Mapping: A useful method for social work?. Practice 14:1, pages 27-38.
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Articles from other publishers (48)

Bama Andika Putra. (2023) Complexities of the Ethical Dilemmas in Qualitative International Relations Research: Research Subjects, Ethical Codes, and Constructing Qualitative Rigor. Social Sciences 12:3, pages 157.
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Kellyn Lee, Jane Frankland, Peter Griffiths, Leah Hewer‐Richards, Alexandra Young & Jackie Bridges. (2020) Association between Quality of Interactions Schedule ratings and care experiences of people with a dementia in general hospital settings: a validation study. International Journal of Geriatric Psychiatry 36:5, pages 657-664.
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Alisa Grigorovich, Pia Kontos & Alexis P. Kontos. (2019) The “Violent Resident”: A Critical Exploration of the Ethics of Resident-to-Resident Aggression. Journal of Bioethical Inquiry 16:2, pages 173-183.
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Jane McKeown. 2019. Handbook of Research Methods in Health Social Sciences. Handbook of Research Methods in Health Social Sciences 1991 2005 .
Pia Kontos & Alisa Grigorovich. (2018) Rethinking musicality in dementia as embodied and relational. Journal of Aging Studies 45, pages 39-48.
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Rose-Marie Dröes & Debby Gerritsen. 2018. Meer kwaliteit van leven. Meer kwaliteit van leven 145 162 .
Laura Louise Hammond & Conrad Debney. (2017) Recovery and dementia: promoting choice and challenging controversy. Mental Health and Social Inclusion 21:5, pages 297-303.
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Jane McKeown. 2017. Handbook of Research Methods in Health Social Sciences. Handbook of Research Methods in Health Social Sciences 1 15 .
Sarah E Keyes, Charlotte L Clarke, Heather Wilkinson, Eva Joanna Alexjuk, Jane Wilcockson, Louise Robinson, Joanna Reynolds, Siobhan McClelland, Lynne Corner & Mima Cattan. (2014) “We’re all thrown in the same boat … ”: A qualitative analysis of peer support in dementia care. Dementia 15:4, pages 560-577.
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Sandra A Zwijsen, Eva van der Ploeg & Cees M.P.M. Hertogh. (2016) Understanding the world of dementia. How do people with dementia experience the world?. International Psychogeriatrics 28:7, pages 1067-1077.
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Rosemary Littlechild, Denise Tanner & Kelly Hall. (2014) Co-research with older people: Perspectives on impact. Qualitative Social Work 14:1, pages 18-35.
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Anthea Innes, Paulina Szymczynska & Cameron Stark. (2012) Dementia diagnosis and post-diagnostic support in Scottish rural communities: Experiences of people with dementia and their families. Dementia 13:2, pages 233-247.
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Iris Hochgraeber, Christine Riesner & Susanne Schoppmann. (2012) The experience of people with dementia in a social care group: Case study. Dementia 12:6, pages 751-768.
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Grace O'Sullivan & Clare Hocking. (2013) Translating Action Research into Practice: Seeking Occupational Justice for People with Dementia. OTJR: Occupation, Participation and Health 33:3, pages 168-176.
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Eileen Hackman, Lynne Tomlinson, Anita MehrezPeter Mackereth. (2013) Reducing patient distress: a model for dementia care. British Journal of Nursing 22:Sup2, pages S13-S18.
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Iris Hochgraeber, Sabine Bartholomeyczik & Bernhard Holle. (2012) Low-threshold support for families with dementia in Germany. BMC Research Notes 5:1.
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Louise McCabe & Brittany Ellis Bradley. (2012) Supporting User Participation in Local Policy Development: The Fife Dementia Strategy. Social Policy and Society 11:2, pages 157-169.
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Liz Gill, Lesley White & Ian Douglas Cameron. (2011) Interaction in community-based aged healthcare: Perceptions of people with dementia. Dementia 10:4, pages 539-554.
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Hanna-Mari PesonenAnne M Remes & Arja Isola. (2011) Ethical aspects of researching subjective experiences in early-stage dementia. Nursing Ethics 18:5, pages 651-661.
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Angela van BaalenAd J.J.M. VingerhoetsHerman J. SixmaJacomine de Lange. (2010) How to evaluate quality of care from the perspective of people with dementia: An overview of the literature. Dementia 10:1, pages 112-137.
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Rebecca Genoe, Sherry L. Dupuis, Heather H. Keller, Lori Schindel Martin, Carly Cassolato & H. Gayle Edward. (2010) Honouring identity through mealtimes in families living with dementia. Journal of Aging Studies 24:3, pages 181-193.
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Jane McKeown, Amanda Clarke, Christine Ingleton & Julie Repper. (2009) Actively involving people with dementia in qualitative research. Journal of Clinical Nursing 19:13-14, pages 1935-1943.
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Sube Banerjee & Vanessa Lawrence. 2010. Managing Dementia in a Multicultural Society. Managing Dementia in a Multicultural Society 129 151 .
Deborah O'Connor, Alison Phinney & Wendy Hulko. (2010) Dementia at the Intersections: A unique case study exploring social location. Journal of Aging Studies 24:1, pages 30-39.
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Suzanne Martin, Johan E. Bengtsson & Rose-Marie Dröes. 2010. Supporting People with Dementia Using Pervasive Health Technologies. Supporting People with Dementia Using Pervasive Health Technologies 63 76 .
Wendy Hulko. (2009) From ‘not a big deal’ to ‘hellish’: Experiences of older people with dementia. Journal of Aging Studies 23:3, pages 131-144.
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SALLY JACOBS, CHENGQIU XIE, SIOBHAN REILLY, JANE HUGHES & DAVID CHALLIS. (2009) Modernising social care services for older people: scoping the United Kingdom evidence base. Ageing and Society 29:4, pages 497-538.
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Tony RyanMike NolanDavid ReidPam Enderby. (2008) Using the Senses Framework to achieve relationship-centred dementia care services. Dementia 7:1, pages 71-93.
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David Edvardsson & Karin Nordvall. (2007) Lost in the present but confident of the past: experiences of being in a psycho-geriatric unit as narrated by persons with dementia. Journal of Clinical Nursing 0:0, pages 070621074500069-???.
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Rose Wiles, Graham Crow, Vikki Charles & Sue Heath. (2017) Informed Consent and the Research Process: Following Rules or Striking Balances?. Sociological Research Online 12:2, pages 99-110.
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Maria Lorentzon & Karen Bryan. (2007) Respect for the person with dementia: fostering greater user involvement in service planning. Quality in Ageing and Older Adults 8:1, pages 23-30.
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Vicki Lloyd, Sunny Kalsy & Amanda Gatherer. (2016) The subjective experience of individuals with Down syndrome living with dementia. Dementia 6:1, pages 63-88.
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Vicki Lloyd, Amanda Gatherer & Sunny Kalsy. (2016) Conducting Qualitative Interview Research With People With Expressive Language Difficulties. Qualitative Health Research 16:10, pages 1386-1404.
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Els Steeman, Bernadette Dierckx de Casterle, Jan Godderis & Mieke Grypdonck. (2006) Living with early-stage dementia: a review of qualitative studies. Journal of Advanced Nursing 54:6, pages 722-738.
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Anthea Innes, Sylvia Cox, Annetta Smith & Anne Mason. (2016) Service provision for people with dementia in rural Scotland. Dementia 5:2, pages 249-270.
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K.L. Blackstock, A. Innes, S. Cox, A. Smith & A. Mason. (2006) Living with dementia in rural and remote Scotland: Diverse experiences of people with dementia and their carers. Journal of Rural Studies 22:2, pages 161-176.
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Christine Jonas-Simpson, Gail J Mitchell, Anne Fisher, Grazia Jones & Jan Linscott. (2006) The Experience of Being Listened To: A Qualitative Study of Older Adults in Long-Term Care Settings. Journal of Gerontological Nursing 32:1, pages 46-53.
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Robert Ledsham, Jonathan Boote, Audrey Kirkland & Sue Davies. (2006) What is it like to use hip protectors? A qualitative study of the views and experiences of nurses and patients. Clinical Effectiveness in Nursing 9, pages e97-e105.
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A. Innes, K. Blackstock, A. Mason, A. Smith & S. Cox. (2005) Dementia care provision in rural Scotland: service users' and carers' experiences. Health and Social Care in the Community 13:4, pages 354-365.
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David ScottMichael Donnelly. (2016) The early identification of cognitive impairment. Dementia 4:2, pages 207-232.
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Jane Seymour, Sheila Payne, David Reid, Anita Sargeant, Julie Skilbeck & Paula Smith. (2016) Ethical and methodological issues in palliative care studies. Journal of Research in Nursing 10:2, pages 169-188.
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Tony Ryan, Mike Nolan, Pam Enderby & David Reid. (2004) 'Part of the family': sources of job satisfaction amongst a group of community-based dementia care workers. Health and Social Care in the Community 12:2, pages 111-118.
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N. AGGARWAL, A. A. VASS, H. A. MINARDI, R. WARD, C. GARFIELD & B. CYBYK. (2003) People with dementia and their relatives: personal experiences of Alzheimer's and of the provision of care. Journal of Psychiatric and Mental Health Nursing 10:2, pages 187-197.
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Liz Forbat. (2016) Relationship Difficulties in Dementia Care. Dementia 2:1, pages 67-84.
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Tom Heller & Lisa Heller. (2016) First among Equals?. Dementia 2:1, pages 7-19.
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Mike Nolan, Tony Ryan, Pam Enderby & David Reid. (2016) Towards a More Inclusive Vision of Dementia Care Practice and Research. Dementia 1:2, pages 193-211.
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R. Telford, C.A. Beverley, C.L. Cooper & J.D. Boote. (2002) Consumer involvement in health research: fact or fiction?. British Journal of Clinical Governance 7:2, pages 92-103.
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. (2001) Current Awareness. International Journal of Geriatric Psychiatry 16:8, pages 829-836.
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