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Original Articles

‘I have got my life back’: users' experience of direct payments

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Pages 443-454 | Published online: 01 Oct 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (22)

Carla Branco, Miguel R. Ramos & Miles Hewstone. (2023) The interaction between social equality and personal assistance: a cross-country analysis. Disability & Society 38:7, pages 1186-1208.
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Erika Katzman, Elizabeth Mohler, Evelyne Durocher & Elizabeth Anne Kinsella. (2022) Occupational justice in direct-funded attendant services: Possibilities and constraints. Journal of Occupational Science 29:4, pages 586-601.
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Charlotte Pearson, Nick Watson, Justine Gangneux & Ida Norberg. (2021) Transition to where and to what? Exploring the experiences of transitions to adulthood for young disabled people. Journal of Youth Studies 24:10, pages 1291-1307.
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Melanie Nind, Andy Coverdale & Abigail Croydon. (2021) Learning from each other in the context of personalisation and self-build social care. Disability & Society 36:10, pages 1553-1573.
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Erika R. Katzman, Elizabeth Anne Kinsella & Jessica Polzer. (2020) ‘Everything is down to the minute’: clock time, crip time and the relational work of self-managing attendant services. Disability & Society 35:4, pages 517-541.
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Teodor Mladenov. (2020) What is good personal assistance made of? Results of a European survey. Disability & Society 35:1, pages 1-24.
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Jon Hyslop, Helen Aveyard, Guida de Abreu & Jane V. Appleton. (2020) How do peer networks support people with personal budgets? A review of the research evidence from the United Kingdom. Disability & Society 35:1, pages 25-51.
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Erika R. Katzman & Elizabeth Anne Kinsella. (2018) ‘It’s like having another job’: the invisible work of self-managing attendant services. Disability & Society 33:9, pages 1436-1459.
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John Owens, Teodor Mladenov & Alan Cribb. (2017) What Justice, What Autonomy? The Ethical Constraints upon Personalisation. Ethics and Social Welfare 11:1, pages 3-18.
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Lill Hultman, Ulla Forinder & Pernilla Pergert. (2016) Assisted normality – a grounded theory of adolescent’s experiences of living with personal assistance. Disability and Rehabilitation 38:11, pages 1053-1062.
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Karen Christensen. (2012) Towards sustainable hybrid relationships in cash-for-care systems. Disability & Society 27:3, pages 399-412.
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MichaelJ. Prince. (2011) Integrated and Individualized Service Provision for People with Disabilities: Promising Practices in Liberal Welfare States. Journal of Comparative Policy Analysis: Research and Practice 13:5, pages 545-560.
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Karen Christensen. (2010) Caring about independent lives. Disability & Society 25:2, pages 241-252.
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Karen Christensen. (2009) In(ter)dependent lives. Scandinavian Journal of Disability Research 11:2, pages 117-130.
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Christine Bigby & Marie Knox. (2009) “I Want to See the Queen”: Experiences of Service Use by Ageing People with an Intellectual Disability. Australian Social Work 62:2, pages 216-231.
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Tim Stainton, Steve Boyce & CeriJ. Phillips. (2009) Independence pays: a cost and resource analysis of direct payments in two local authorities. Disability & Society 24:2, pages 161-172.
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Kyung Mee Kim. (2008) The current status and future of centers for independent living in Korea. Disability & Society 23:1, pages 67-76.
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Craig Blyth & Ali Gardner. (2007) ‘We’re not asking for anything special’: direct payments and the carers of disabled children. Disability & Society 22:3, pages 235-249.
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Articles from other publishers (33)

Eva Pattyn, Paul Gemmel, Sophie Vandepitte & Jeroen Trybou. (2023) Do Cash-For-Care Schemes Increase Care Users’ Experience of Empowerment? A Systematic Review. The Patient - Patient-Centered Outcomes Research 16:4, pages 317-341.
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Clara A Yoshino, Kristi Sidney-Annerstedt, Tom Wingfield, Beatrice Kirubi, Kerri Viney, Delia Boccia & Salla Atkins. (2023) Experiences of conditional and unconditional cash transfers intended for improving health outcomes and health service use: a qualitative evidence synthesis. Cochrane Database of Systematic Reviews 2023:6.
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Aslıhan Özdemir, Rebecca Hall, Andrew Lovell & Basma Ellahi. (2023) Nutrition knowledge and influence on diet in the carer–client relationship in residential care settings for people with intellectual disabilities. Nutrition Bulletin 48:1, pages 74-90.
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Alex Cockain. (2022) Personal Independence Payment Forms, a De/Re/Constructive Reading: Re/Positioning Claimants, Social Workers and Social Work Practice ‘through’ Policy Discourse. The British Journal of Social Work 52:6, pages 3191-3209.
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Wouter Dursin, Toon Benoot, Rudi Roose & Bram Verschuere. (2021) Choice and opportunity on the welfare care market: An experimental evaluation of decision‐making in a context of individual funding policy. Social Policy & Administration 55:7, pages 1276-1292.
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Eva Pattyn, Amber Werbrouck, Paul Gemmel & Jeroen Trybou. (2021) The impact of cash-for-care schemes on the uptake of community-based and residential care: A systematic review. Health Policy 125:3, pages 363-374.
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Fiona MacdonaldFiona Macdonald. 2021. Individualising Risk. Individualising Risk 41 63 .
Aoife Mahon, Elizabeth Tilley, Gurch Randhawa, Yannis Pappas & Jitka Vseteckova. (2019) Ageing carers and intellectual disability: a scoping review. Quality in Ageing and Older Adults 20:4, pages 162-178.
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Sandra Dowling, Val Williams, Joe Webb, Marina Gall & Deborah Worrall. (2019) Managing relational autonomy in interactions: People with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 32:5, pages 1058-1066.
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Pádraic Fleming, Sinead McGilloway, Marian Hernon, Mairead Furlong, Siobhain O'Doherty, Fiona Keogh & Tim Stainton. (2019) Individualized funding interventions to improve health and social care outcomes for people with a disability: A mixed‐methods systematic review. Campbell Systematic Reviews 15:1-2.
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Fiona Irvine, Echo Yuet Wah Yeung, Martin Partridge & Peter Simcock. (2017) The impact of personalisation on people from Chinese backgrounds: qualitative accounts of social care experience. Health & Social Care in the Community 25:3, pages 878-887.
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Val Williams & Sue Porter. (2017) The Meaning of ‘choice and control’ for People with Intellectual Disabilities who are Planning their Social Care and Support. Journal of Applied Research in Intellectual Disabilities 30:1, pages 97-108.
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Myfanwy McDonald, Kate Davis & Nicole Mahar. (2016) When Funding Meets Practice: The Fate of Contemporary Therapeutic Approaches and Self-Determination in a Consumer-Centred Disability Funding Scheme. Journal of Policy and Practice in Intellectual Disabilities 13:4, pages 277-286.
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Axel Kaehne & Helen Taylor. (2015) Do public consultations work? The case of the Social Services and Well-being (Wales) Bill. Public Policy and Administration 31:1, pages 80-99.
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Teodor Mladenov, John Owens & Alan Cribb. (2015) Personalisation in disability services and healthcare: A critical comparative analysis. Critical Social Policy 35:3, pages 307-326.
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Assumpta Ryan, Laurence Taggart, Maria Truesdale-Kennedy & Eamonn Slevin. (2014) Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary. International Journal of Older People Nursing 9:3, pages 217-226.
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A. Kaehne & S. Beyer. (2014) Person-centred reviews as a mechanism for planning the post-school transition of young people with intellectual disability. Journal of Intellectual Disability Research 58:7, pages 603-613.
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Christiane Purcal, Karen R. Fisher & Carmel Laragy. (2014) Analysing Choice in Australian Individual Funding Disability Policies. Australian Journal of Public Administration 73:1, pages 88-102.
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Angela Dew, Kim Bulkeley, Craig Veitch, Anita Bundy, Michelle Lincoln, Jennie Brentnall, Gisselle Gallego & Scott Griffiths. (2013) Carer and service providers’ experiences of individual funding models for children with a disability in rural and remote areas. Health & Social Care in the Community 21:4, pages 432-441.
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Christine Kelly. (2020) Building Bridges with Accessible Care: Disability Studies, Feminist Care Scholarship, and Beyond. Hypatia 28:4, pages 784-800.
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Tamar Heller, Catherine K. Arnold, Lieke van Heumen, Elizabeth L. McBride & Alan Factor. (2012) Self-directed Support: Impact of Hiring Practices on Adults with Intellectual and Developmental Disabilities and Families. American Journal on Intellectual and Developmental Disabilities 117:6, pages 464-477.
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Laurence Taggart, Maria Truesdale-Kennedy, Assumpta Ryan & Roy McConkey. (2012) Examining the support needs of ageing family carers in developing future plans for a relative with an intellectual disability. Journal of Intellectual Disabilities 16:3, pages 217-234.
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Teodor Mladenov. (2012) Personal assistance for disabled people and the understanding of human being. Critical Social Policy 32:2, pages 242-261.
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Carmel Laragy & Goetz Ottmann. (2011) Towards a Framework for Implementing Individual Funding Based on an Australian Case Study. Journal of Policy and Practice in Intellectual Disabilities 8:1, pages 18-27.
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Normand Boucher, David Fiset, Paula Pinto, Mihaela Dinca-Panaitescu, Sandra Carpenter, Isabel Killoran, Steven Estey & Marcia Rioux. (2022) Droits humains et personnes ayant des incapacités : analyse comparative de l’utilisation des services de soutien en contexte ontarien et québécois. Développement Humain, Handicap et Changement Social 19:2, pages 23-41.
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Jill Manthorpe, Stephen Martineau, Jo Moriarty, Shereen Hussein & Martin Stevens. (2010) Support workers in social care in England: a scoping study. Health & Social Care in the Community 18:3, pages 316-324.
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Karan Jutlla & Neil Moreland. (2009) The personalisation of dementia services and existential realities: understanding Sikh carers caring for an older person with dementia in Wolverhampton. Ethnicity and Inequalities in Health and Social Care 2:4, pages 10-21.
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WookMoKang. (2009) Analysing Informal Carer Support Policy for the Elderly in the UK and its Implication for Korea.. Korean Journal of Gerontological Social Welfare null:45, pages 311-334.
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Goetz Ottmann, Carmel Laragy & Michelle Haddon. (2009) Experiences of disability consumer-directed care users in Australia: results from a longitudinal qualitative study. Health & Social Care in the Community 17:5, pages 466-475.
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Edward Hall. (2009) Being in Control: Personal Budgets and the New Landscape of Care for People with Learning Disabilities. Mental Health Review Journal 14:2, pages 44-53.
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Tamar Heller & Abigail Schindler. 2009. Families. Families 299 332 .
Marianna Fotaki, Martin Roland, Alan Boyd, Ruth Mcdonald, Rod Scheaff & Liz Smith. (2008) What benefits will choice bring to patients? Literature review and assessment of implications. Journal of Health Services Research & Policy 13:3, pages 178-184.
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Tim Stainton. (2016) Empowerment and the architecture of rights based social policy. Journal of Intellectual Disabilities 9:4, pages 289-298.
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