Citations (71)
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Hanne Peoples, Jakob Varming & Hanne Kaae Kristensen. (2023) Social citizenship when living with dementia: A qualitative meta-study. Journal of Occupational Science 30:3, pages 453-471.
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Emma Bolger, Valerie Egdell & Louise Ritchie. (2023) Dementia in the workplace: implications for career development practice. British Journal of Guidance & Counselling 51:1, pages 74-83.
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Kirstin Broders & Elaine C. Wiersma. (2022) Creating change: the experiences of women living with young onset dementia. Disability & Society 37:5, pages 787-808.
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Jason Weetch, Siobhan O’Dwyer & Linda Clare. (2021) The involvement of people with dementia in advocacy: a systematic narrative review. Aging & Mental Health 25:9, pages 1595-1604.
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Sarah E. Keyes, Charlotte L. Clarke & Catherine E. Gibb. (2019) Living with dementia, interdependence and citizenship: narratives of everyday decision-making. Disability & Society 34:2, pages 296-319.
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Carol Thomas & Christine Milligan. (2018) Dementia, disability rights and disablism: understanding the social position of people living with dementia. Disability & Society 33:1, pages 115-131.
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Articles from other publishers (65)
Heather Wilkinson, Ruth Bartlett & Vanessa Lawrence. (2023) Participatory research with older people with a mental health condition and/or dementia: Tensions and challenges. International Journal of Geriatric Psychiatry 38:11.
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Jacoba Huizenga, Aukelien Scheffelaar, Nienke Bleijenberg, Jean Pierre Wilken, John Keady & Tine Van Regenmortel. (2023) What matters most: Exploring the everyday lives of people with dementia. International Journal of Geriatric Psychiatry 38:8.
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James Hodge, Sarah Foley, Dan Lambton-Howard, Laura Booi, Kyle Montague, Sandra Coulter, David Kirk & Kellie Morrissey. (2023) Exploring Participants’ Representations and Shifting Sensitivities in a Hackathon for Dementia. ACM Transactions on Computer-Human Interaction 30:3, pages 1-35.
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Gemma M Carney, Jane Lugea, Carolina Fernandez-Quintanilla & Paula Devine. (2023) “Sometimers, Alzheimer’s? I love That! That’s definitely me”: Readers’ Responses to Fictional Dementia Narratives. The Gerontologist.
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Ann Therese Lotherington & Aud Uhlen Obstfelder. (2023) Enacting citizenship through writing: an analysis of a diary written by a man with Alzheimer's disease. Ageing and Society, pages 1-19.
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Linda Birt, Georgina Charlesworth, Esme Moniz-Cook, Phuong Leung, Paul Higgs, Martin Orrell & Fiona Poland. (2023) “The Dynamic Nature of Being a Person”: An Ethnographic Study of People Living With Dementia in Their Communities. The Gerontologist.
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Louise Margaret Prendergast, Gill Toms, Diane Seddon, Carys Jones, Bethany Fern Anthony & Rhiannon Tudor Edwards. (2023) Supporting social connection for people living with dementia: lessons from the findings of the TRIO study. Working with Older People.
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Jana Mali. 2023. Human Rights in Contemporary Society - Challenges From an International Perspective [Working Title]. Human Rights in Contemporary Society - Challenges From an International Perspective [Working Title].
Lucie Hogger, Nina Fudge & Deborah Swinglehurst. (2023) Supporting Inclusion and Participation for People Living With Dementia: Ethnographic and Participatory Research Methods. International Journal of Qualitative Methods 22.
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Jenni Brooks & Nada Savitch. (2022) Blogging with dementia: Writing about lived experience of dementia in the public domain. Dementia 21:8, pages 2402-2417.
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Deborah O’Connor, Mariko Sakamoto, Kishore Seetharaman, Habib Chaudhury & Alison Phinney. (2022) Conceptualizing citizenship in dementia: A scoping review of the literature. Dementia 21:7, pages 2310-2350.
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Jacoba Huizenga, Aukelien Scheffelaar, Agnetha Fruijtier, Jean Pierre Wilken, Nienke Bleijenberg & Tine Van Regenmortel. (2022) Everyday Experiences of People Living with Mild Cognitive Impairment or Dementia: A Scoping Review. International Journal of Environmental Research and Public Health 19:17, pages 10828.
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Sarah Kate Smith, Emma Louise Wolverson & Gail Anne Mountain. (2022) What is intended by the term “participation” and what does it mean to people living with dementia? A conceptual overview and directions for future research. Frontiers in Rehabilitation Sciences 3.
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Louise Ritchie, Valerie Egdell, Michael Danson, Mandy Cook, Jill Stavert & Debbie Tolson. (2020) Dementia, Work and Employability: Using the Capability Approach to Understand the Employability Potential for People Living with Dementia. Work, Employment and Society 36:4, pages 591-609.
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Suzanne Cahill. (2020) New analytical tools and frameworks to understand dementia: what can a human rights lens offer?. Ageing and Society 42:7, pages 1489-1498.
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Jane Lugea. (2022) Dementia mind styles in contemporary narrative fiction. Language and Literature: International Journal of Stylistics 31:2, pages 168-195.
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Marjolein Thijssen, Ramon Daniels, Monique Lexis, Rianne Jansens, José Peeters, Neil Chadborn, Maria W. G. Nijhuis‐van der Sanden, Wietske Kuijer‐Siebelink & Maud Graff. (2021) How do community based dementia friendly initiatives work for people with dementia and their caregivers, and why? A rapid realist review. International Journal of Geriatric Psychiatry 37:2.
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Paul M. Camic, Emma Harding, Mary Pat Sullivan, Adetola Grillo, Roberta McKee-Jackson, Lawrence Wilson, Nikki Zimmermann, Emilie V. Brotherhood & Sebastian J. Crutch. (2022) Developing Poetry as a Research Methodology with Rarer Forms of Dementia: Four Research Protocols. International Journal of Qualitative Methods 21, pages 160940692210813.
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Alexandre Baril & Marjorie Silverman. (2019) Forgotten lives: Trans older adults living with dementia at the intersection of cisgenderism, ableism/cogniticism and ageism. Sexualities 25:1-2, pages 117-131.
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Elaine C. Wiersma, Charlotte L. Clarke & Bill Heibein. 2022. Handbook of Social Inclusion. Handbook of Social Inclusion
527
548
.
Anthea Innes, Sarah Kate Smith, Megan Wyatt & Sophie Bushell. (2021) “It's just so important that people's voices are heard”: The dementia associate panel. Journal of Aging Studies 59, pages 100958.
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Robert J Hagan & Sarah Campbell. (2021) Doing their damnedest to seek change: How group identity helps people with dementia confront public stigma and maintain purpose. Dementia 20:7, pages 2362-2379.
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Sherry Dupuis, Carrie McAiney, Lisa Loiselle, Brenda Hounam, Jim Mann & Elaine C Wiersma. (2021) Use of participatory action research approach to develop a self-management resource for persons living with dementia. Dementia 20:7, pages 2393-2411.
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Cara Sass, Claire Surr & Lorena Lozano-Sufrategui. (2021) Expressions of masculine identity through sports-based reminiscence: An ethnographic study with community-dwelling men with dementia. Dementia 20:6, pages 2170-2187.
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Alexandre Baril, Marjorie Silverman, Marie-Claire Gauthier & Maude Lévesque. (2021) Souhaits oubliés : documents de fin de vie des personnes trans vivant avec une démence aux marges des changements juridiquesForgotten Wishes: End-of-life Documents for Trans People with Dementia at the Margins of Legal Change . GLAD!:10.
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Kellyn Lee & Ruth Bartlett. (2021) Material Citizenship: An ethnographic study exploring object–person relations in the context of people with dementia in care homes. Sociology of Health & Illness 43:6, pages 1471-1485.
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Richard Ward, Kirstein Rummery, Elzana Odzakovic, Kainde Manji, Agneta Kullberg, John Keady, Andrew Clark & Sarah Campbell. (2021) Beyond the shrinking world: dementia, localisation and neighbourhood. Ageing and Society, pages 1-22.
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Xia Li, John Keady & Richard Ward. (2019) Transforming lived places into the connected neighbourhood: a longitudinal narrative study of five couples where one partner has an early diagnosis of dementia. Ageing and Society 41:3, pages 605-627.
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Rita Newton, John Keady, Emmanuel Tsekleves & Sue Adams OBE. (2021) ‘My father is a gardener … ’: A systematic narrative review on access and use of the garden by people living with dementia. Health & Place 68, pages 102516.
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Daria Smirnova, Tatiana Smirnova & Paul Cumming. 2021. Dementia Care. Dementia Care
85
108
.
Elaine C. Wiersma, Charlotte L. Clarke & Bill Heibein. 2020. Handbook of Social Inclusion. Handbook of Social Inclusion
1
22
.
Lars-Christer Hydén. 2020. The Palgrave Encyclopedia of Critical Perspectives on Mental Health. The Palgrave Encyclopedia of Critical Perspectives on Mental Health
1
10
.
Stephanie A. Chamberlain, Carole A. Estabrooks, Janice M. Keefe, Matthias Hoben, Charlotte Berendonk, Kyle Corbett & Andrea Gruneir. (2020) Citizen and stakeholder led priority setting for long-term care research: identifying research priorities within the Translating Research in Elder Care (TREC) Program. Research Involvement and Engagement 6:1.
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Val Williams, Joe Webb, Sandy Read, Roy James & Harry Davis. (2020) Future lived experience: inclusive research with people living with dementia. Qualitative Research 20:5, pages 721-740.
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Alexandre Baril, Marjorie Silverman, Marie-Claire Gauthier & Maude Lévesque. (2020) Forgotten Wishes: End-of-Life Documents for Trans People with Dementia at the Margins of Legal Change. Canadian Journal of Law and Society / Revue Canadienne Droit et Société 35:2, pages 367-390.
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Catherine Talbot, Siobhan O’Dwyer, Linda Clare, Janet Heaton & Joel Anderson. (2018) Identifying people with dementia on Twitter. Dementia 19:4, pages 965-974.
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Kishore Seetharaman & Habib Chaudhury. (2020) ‘I am making a difference’: Understanding advocacy as a citizenship practice among persons living with dementia. Journal of Aging Studies 52, pages 100831.
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Linda Birt, Rebecca Griffiths, Georgina Charlesworth, Paul Higgs, Martin Orrell, Phuong Leung & Fiona Poland. (2019) Maintaining Social Connections in Dementia: A Qualitative Synthesis. Qualitative Health Research 30:1, pages 23-42.
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Catherine V. Talbot, Siobhan T. O'Dwyer, Linda Clare, Janet Heaton & Joel Anderson. (2020) How people with dementia use twitter: A qualitative analysis. Computers in Human Behavior 102, pages 112-119.
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Tracey McConnell, Tristan Sturm, Mabel Stevenson, Noleen McCorry, Michael Donnelly, Brian J. Taylor & Paul Best. (2019) Co-producing a shared understanding and definition of empowerment with people with dementia. Research Involvement and Engagement 5:1.
Crossref
Crossref
Fiona Poland, Georgina Charlesworth, Phuong Leung & Linda Birt. (2019) Embedding patient and public involvement: Managing tacit and explicit expectations. Health Expectations 22:6, pages 1231-1239.
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Crossref
Jacob Waite, Fiona Poland & Georgina Charlesworth. (2019) Facilitators and barriers to co‐research by people with dementia and academic researchers: Findings from a qualitative study. Health Expectations 22:4, pages 761-771.
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Julian C. Hughes. (2019) Citizenship and authenticity in dementia: A scoping review. Maturitas 125, pages 11-16.
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Michael Chapman, Jennifer Philip & Paul Komesaroff. (2019) Towards an Ecology of Dementia: A Manifesto. Journal of Bioethical Inquiry 16:2, pages 209-216.
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Crossref
Tom Shakespeare, Hannah Zeilig & Peter Mittler. (2017) Rights in Mind: Thinking Differently About Dementia and Disability. Dementia 18:3, pages 1075-1088.
Crossref
Crossref
Julian C. Hughes & Toby Williamson. 2019. The Dementia Manifesto. The Dementia Manifesto
199
202
.
Feliciano Villar, Rodrigo Serrat & Stephany Bravo-Segal. (2019) Giving Them a Voice: Challenges to Narrative Agency in People with Dementia. Geriatrics 4:1, pages 20.
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Crossref
Claudio Di Lorito, Alessandro Bosco, Linda Birt & Angela Hassiotis. (2018) Co-research with adults with intellectual disability: A systematic review. Journal of Applied Research in Intellectual Disabilities 31:5, pages 669-686.
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Crossref
Hannah Zeilig, Julian West & Millie van der Byl Williams. (2018) Co-creativity: possibilities for using the arts with people with a dementia. Quality in Ageing and Older Adults 19:2, pages 135-145.
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Crossref
Pauline Marsh, Helen Courtney-Pratt & Marina Campbell. (2018) The landscape of dementia inclusivity. Health & Place 52, pages 174-179.
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Crossref
Alexandra Hillman, Ian Rees Jones, Catherine Quinn, Sharon M. Nelis & Linda Clare. (2018) Dualities of dementia illness narratives and their role in a narrative economy. Sociology of Health & Illness 40:5, pages 874-891.
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Crossref
Kirsty M. Patterson, Chris Clarke, Emma L. Wolverson & Esme D. Moniz-Cook. (2017) Through the eyes of others – the social experiences of people with dementia: a systematic literature review and synthesis. International Psychogeriatrics 30:6, pages 791-805.
Crossref
Crossref
Lars-Christer Hydén, Eleonor Antelius, Ann-Charlotte Nedlund & Ruth Bartlett. 2018. Living With Dementia. Living With Dementia
49
67
.
Lars-Christer Hydén, Eleonor Antelius & Linda Örulv. 2018. Living With Dementia. Living With Dementia
168
187
.
Linda Birt, Fiona Poland, Emese Csipke & Georgina Charlesworth. 2017. Ageing, Dementia and the Social Mind. Ageing, Dementia and the Social Mind
24
36
.
Pia Kontos, Karen‐Lee Miller & Alexis P. Kontos. 2017. Ageing, Dementia and the Social Mind. Ageing, Dementia and the Social Mind
7
23
.
Linda Birt, Fiona Poland, Emese Csipke & Georgina Charlesworth. (2017) Shifting dementia discourses from deficit to active citizenship. Sociology of Health & Illness 39:2, pages 199-211.
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Pia Kontos, Karen-Lee Miller & Alexis P. Kontos. (2017) Relational citizenship: supporting embodied selfhood and relationality in dementia care. Sociology of Health & Illness 39:2, pages 182-198.
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Claudio Di Lorito, Linda Birt, Fiona Poland, Emese Csipke, Dianne Gove, Ana Diaz-Ponce & Martin Orrell. (2017) A synthesis of the evidence on peer research with potentially vulnerable adults: how this relates to dementia. International Journal of Geriatric Psychiatry 32:1, pages 58-67.
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Maria Berghs, Karl Atkin, Hilary Graham, Chris Hatton & Carol Thomas. (2016) Implications for public health research of models and theories of disability: a scoping study and evidence synthesis. Public Health Research 4:8, pages 1-166.
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Elaine C Wiersma, Deborah L O’Connor, Lisa Loiselle, Kathy Hickman, Bill Heibein, Brenda Hounam & Jim Mann. (2016) Creating space for citizenship: The impact of group structure on validating the voices of people with dementia. Dementia 15:3, pages 414-433.
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Tula Brannelly. (2016) Citizenship and people living with dementia: A case for the ethics of care. Dementia 15:3, pages 304-314.
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Clive Baldwin & Michelle Greason. (2016) Micro-citizenship, dementia and long-term care. Dementia 15:3, pages 289-303.
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Crossref
Ruth Bartlett. (2015) Visualising dementia activism: using the arts to communicate research findings. Qualitative Research 15:6, pages 755-768.
Crossref
Crossref
Hannah Zeilig. (2015) What do we mean when we talk about dementia? Exploring cultural representations of “dementia”. Working with Older People 19:1, pages 12-20.
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