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Original Articles

Beginnings: Participatory action research and adults with developmental disabilities

Pages 317-332 | Published online: 01 Jul 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (6)

Kathleen C. Sitter. (2015) Participatory video analysis in disability research. Disability & Society 30:6, pages 910-923.
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Suk-hee Kim, Toni Miles, Ruth Huber & MarvinD. Feit. (2008) Executive Cognitive Function of Older People with HIV/AIDS. Journal of Human Behavior in the Social Environment 18:1, pages 48-63.
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Ardha Danieli & Carol Woodhams. (2005) Emancipatory Research Methodology and Disability: A Critique. International Journal of Social Research Methodology 8:4, pages 281-296.
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Isabel Dyck. (2000) Disability, Geography and Ethics. Philosophy & Geography 3:1, pages 80-87.
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Rob Kitchin. (2000) The Researched Opinions on Research: Disabled people and disability research. Disability & Society 15:1, pages 25-47.
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Articles from other publishers (40)

Anne-Marie Callus. 2021. Handbook of Disability. Handbook of Disability 1 15 .
Kathleen C. Sitter & Jennifer Mitchell. (2019) Perceptions of Paratransit Accessibility Among Persons With Disabilities: An Adapted Photovoice Study. Health Promotion Practice 21:5, pages 769-779.
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Jocelyn D. AveryJocelyn D. Avery. 2020. An Ethnography of Severe Intellectual Disability. An Ethnography of Severe Intellectual Disability 41 69 .
Axel Kaehne, Joann Kiernan & James Ridley. (2019) Systematic review of study designs and methods in health transition research for young people with intellectual disabilities. Heliyon 5:11, pages e02750.
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Kathleen C. Sitter & Emily A. Nusbaum. 2018. The Wiley International Handbook of Service‐Learning for Social Justice. The Wiley International Handbook of Service‐Learning for Social Justice 191 202 .
Shuoqi Shen, Krissy A.R. Doyle-Thomas, Lori Beesley, Amir Karmali, Laura Williams, Nadia Tanel & Amy C. McPherson. (2017) How and why should we engage parents as co-researchers in health research? A scoping review of current practices. Health Expectations 20:4, pages 543-554.
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Erin Stack & Katherine E. McDonald. (2014) Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up?. Journal of Policy and Practice in Intellectual Disabilities 11:2, pages 83-91.
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Christine Bigby, Patsie Frawley & Paul Ramcharan. (2013) Conceptualizing Inclusive Research with People with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities 27:1, pages 3-12.
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Sid Carter, Fergus Cameron, Jenny Houghton & Michelle Walton. (2013) Never mind what I like, it's who I am that matters: an investigation into social pedagogy as a method to enhance the involvement of young people with learning disabilities. British Journal of Learning Disabilities 41:4, pages 312-319.
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Peter Rule & Tadi Ruth Modipa. 2013. Learning with Adults. Learning with Adults 57 76 .
Zack Marshall, Stephanie Nixon, Denise Nepveux, Tess Vo, Ciann Wilson, Sarah Flicker, Alex McClelland & Devon Proudfoot. (2012) Navigating Risks and Professional Roles: Research with Lesbian, Gay, Bisexual, Trans, and Queer Young People with Intellectual Disabilities. Journal of Empirical Research on Human Research Ethics 7:4, pages 20-33.
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Peter Rule & Taadi Ruth Modipa. (2011) “We Must Believe in Ourselves”. Adult Education Quarterly 62:2, pages 138-158.
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Ana Carolina Sella & Maria Cristina Muller. (2011) É possível a ética do discurso de HABERMAS para pessoas com deficiência?. Revista Brasileira de Educação Especial 17:2, pages 181-194.
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Maeve M. O’Donovan. (2010) Cognitive Diversity in the Global Academy: Why the Voices of Persons with Cognitive Disabilities are Vital to Intellectual Diversity. Journal of Academic Ethics 8:3, pages 171-185.
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Axel KaehneClare O'Connell. (2010) Focus groups with people with learning disabilities. Journal of Intellectual Disabilities 14:2, pages 133-145.
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Karen R. Fisher & Sally Robinson. (2010) Will Policy Makers Hear My Disability Experience? How Participatory Research Contributes to Managing Interest Conflict in Policy Implementation. Social Policy and Society 9:2, pages 207-220.
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Jan Walmsley & Hasheem Mannan. (2009) Parents as co‐researchers: a participatory action research initiative involving parents of people with intellectual disabilities in Ireland. British Journal of Learning Disabilities 37:4, pages 271-276.
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Janine M. Jurkowski, Yesenia Rivera & Joy Hammel. (2016) Health Perceptions of Latinos With Intellectual Disabilities: The Results of a Qualitative Pilot Study. Health Promotion Practice 10:1, pages 144-155.
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Alex McClimens. (2008) This is my truth, tell me yours: exploring the internal tensions within collaborative learning disability research. British Journal of Learning Disabilities 36:4, pages 271-276.
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Elizabeth Sullivan, Paul Hassal & Darren Rowlands. (2008) Breaking the Chain: a prison‐based participatory action research project. The British Journal of Forensic Practice 10:3, pages 13-19.
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Janine M. Jurkowski. (2008) Photovoice as Participatory Action Research Tool for Engaging People With Intellectual Disabilities in Research and Program Development. Intellectual and Developmental Disabilities 46:1, pages 1-11.
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Alex McClimens & Rachel Scott. (2007) Lights, camera, education! The potentials of forum theatre in a learning disability nursing program. Nurse Education Today 27:3, pages 203-209.
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Katharina Heyer. (2007) A Disability Lens on Sociolegal Research: Reading Rights of Inclusion from a Disability Studies Perspective. Law & Social Inquiry 32:1, pages 261-293.
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Tony Gilbert. (2016) Mixed methods and mixed methodologies. Journal of Research in Nursing 11:3, pages 205-217.
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Lisa Thorne & Caroline White. (2005) Working together to find out about bullying of people with learning difficulties. Clinical Psychology Forum 1:153, pages 35-38.
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Kevin HainesStephen Case. (2016) Promoting Prevention: A Multi-agency Initiative to Prevent Youth Offending Through Consultation in Swansea Schools. Youth Justice 4:2, pages 117-132.
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Tony Gilbert. (2004) Involving people with learning disabilities in research: issues and possibilities. Health and Social Care in the Community 12:4, pages 298-308.
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Glen W White, Monika Suchowierska & Margaret Campbell. (2004) Developing and systematically implementing participatory action research11No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the author(s) or upon any organization with which the author(s) is/are associated.. Archives of Physical Medicine and Rehabilitation 85, pages 3-12.
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Jonathan Perry. 2004. The International Handbook of Applied Research in Intellectual Disabilities. The International Handbook of Applied Research in Intellectual Disabilities 115 131 .
Dorothy Robison & Marty Wyngaarden Krauss. (2003) Lessons From the Field: Participatory Action Research in a Family Research Project. Mental Retardation 41:6, pages 460-464.
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J. Park, L. Hoffman, J. Marquis, A. P. Turnbull, D. Poston, H. Mannan, M. Wang & L. L. Nelson. (2003) Toward assessing family outcomes of service delivery: validation of a family quality of life survey. Journal of Intellectual Disability Research 47:4-5, pages 367-384.
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Carol J. Gill & Allison A. Brown. 2002. Health of Women with Intellectual Disabilities. Health of Women with Intellectual Disabilities 137 153 .
Meg Ann Traci, Tom Seekins, Ann Szalda-Petree & Craig Ravesloot. (2002) Assessing Secondary Conditions Among Adults With Developmental Disabilities: A Preliminary Study. Mental Retardation 40:2, pages 119-131.
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Paul Ramcharan & Gordon Grant. (2002) Views and Experiences of People with Intellectual Disabilities and Their Families. (1) The User Perspective. Journal of Applied Research in Intellectual Disabilities 14:4, pages 348-363.
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Karen Ward & Jordan S. Trigler. (2001) Reflections on Participatory Action Research With People Who Have Developmental Disabilities. Mental Retardation 39:1, pages 57-59.
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Bettina Matysiak. 2001. Exploring Theories and Expanding Methodologies: Where we are and where we need to go. Exploring Theories and Expanding Methodologies: Where we are and where we need to go 185 207 .
A. McClimens. (2020) Participatory Research with People who have a Earning Difficulty: Journeys without a Map. Journal of Learning Disabilities for Nursing, Health, and Social Care 3:4, pages 219-228.
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Val Williams. (2009) Researching Together. British Journal of Learning Disabilities 27:2, pages 48-51.
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Karen A. Stevens & Ruth Folchman. (2016) Using Participatory Action Research to Evaluate Programs Serving People with Severe Disabilities: Reflections from the Field. Journal of the Association for Persons with Severe Handicaps 23:3, pages 203-210.
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Ann P. Turnbull, Barbara J. Friesen & Carmen Ramirez. (2016) Participatory Action Research as a Model for Conducting Family Research. Journal of the Association for Persons with Severe Handicaps 23:3, pages 178-188.
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