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Disability & Society Volume 12, 1997 - Issue 3
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Original Articles

Family Dilemmas and Secrets: Parents' disclosure of information to their adult offspring with learning disabilities

STUART TODD
&
JULIA SHEARN
Pages 341-366 | Published online: 01 Jul 2010

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Clara O’Byrne & Orla Muldoon. (2017) Stigma, self-perception and social comparisons in young people with an intellectual disability. Irish Educational Studies 36:3, pages 307-322.
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Kate P. Dorozenko, Brian J. Bishop & Lynne D. Roberts. (2016) Fumblings and faux pas: Reflections on attempting to engage in participatory research with people with an intellectual disability. Journal of Intellectual & Developmental Disability 41:3, pages 197-208.
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Kate P. Dorozenko, Lynne D. Roberts & Brian Bishop. (2015) The identities and social roles of people with an intellectual disability: challenging dominant cultural worldviews, values and mythologies. Disability & Society 30:9, pages 1345-1364.
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Madeline Burghardt. (2015) ‘He was a secret’: family narratives and the institutionalization of people with intellectual disabilities. Disability & Society 30:7, pages 1071-1086.
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Veronica Lövgren. (2015) Working life for middle-aged people with intellectual disabilities: knowing their rights?. Research and Practice in Intellectual and Developmental Disabilities 2:2, pages 207-217.
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Val Williams, Paul Swift & Victoria Mason. (2015) The blurred edges of intellectual disability. Disability & Society 30:5, pages 704-716.
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Roisin Finnegan, Tim Trimble & Jonathan Egan. (2014) Irish parents' lived experience of learning about and adapting to their child's autistic spectrum disorder diagnosis and their process of telling their child about their diagnosis. The Irish Journal of Psychology 35:2-3, pages 78-90.
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Kate Povee, Brian J. Bishop & Lynne D. Roberts. (2014) The use of photovoice with people with intellectual disabilities: reflections, challenges and opportunities. Disability & Society 29:6, pages 893-907.
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Anna M. Kittelsaa. (2014) Self-presentations and intellectual disability. Scandinavian Journal of Disability Research 16:1, pages 29-44.
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Sip Jan Pijl & Per Frostad. (2010) Peer acceptance and self‐concept of students with disabilities in regular education. European Journal of Special Needs Education 25:1, pages 93-105.
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Jaci C. Huws & Robert S. P. Jones. (2008) Diagnosis, disclosure, and having autism: An interpretative phenomenological analysis of the perceptions of young people with autism. Journal of Intellectual & Developmental Disability 33:2, pages 99-107.
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Stuart Todd. (2003) Death Does Not Become Us. Journal of Gerontological Social Work 38:1-2, pages 225-239.
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Claire Tregaskis. (2002) Social Model Theory: The story so far . Disability & Society 17:4, pages 457-470.
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Sue Hollinrake. (2002) Communicating positively. Practice 14:2, pages 5-18.
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Dan Goodley. (2001) 'Learning Difficulties', the Social Model of Disability and Impairment: Challenging epistemologies. Disability & Society 16:2, pages 207-231.
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Andrew Azzopardi. (2000) A Case Study of a Parents' Self-advocacy Group in Malta. The Concepts of 'Inclusion, Exclusion and Disabling Barriers' are Analysed in the Relationship that Parents have with Professionals. Disability & Society 15:7, pages 1065-1072.
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Karen Deakin & Andrew Jahoda. (2020) A supporting role: Mothers’ perceptions of their child’s developing awareness of Down syndrome. Journal of Applied Research in Intellectual Disabilities 33:6, pages 1380-1389.
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Sutton Paul, Cozens Maria & Kudita Chiedza. (2020) Supporting people with learning disabilities and mental health issues: service users’ experiences. Learning Disability Practice 23:4, pages 16-26.
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Karen Deakin, Derek G. Moore & Andrew Jahoda. (2018) Children and young people with Down syndrome: Their awareness of Down syndrome and developing self-perceptions. Journal of Applied Research in Intellectual Disabilities 31:6, pages 1197-1208.
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Rebecca Monteleone & Rachel Forrester-Jones. (2017) ‘Disability Means, um, Dysfunctioning People’: A Qualitative Analysis of the Meaning and Experience of Disability among Adults with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities 30:2, pages 301-315.
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Laura Pryce, Alison Tweed, Amanda Hilton & Helena M. Priest. (2017) Tolerating Uncertainty: Perceptions of the Future for Ageing Parent Carers and Their Adult Children with Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities 30:1, pages 84-96.
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Rory Sheehan & Afia Ali. 2016. Intellectual Disability and Stigma. Intellectual Disability and Stigma 91 109 .
Kate P Dorozenko, Lynne D Roberts & Brian J Bishop. (2015) Imposed identities and limited opportunities. Journal of Intellectual Disabilities 19:3, pages 282-299.
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Liz Tilly. (2015) Being researchers for the first time: reflections on the development of an inclusive research group. British Journal of Learning Disabilities 43:2, pages 121-127.
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Marcus Yu Lung Chiu, Xue Yang, Ho Ting Wong & Jin Hong Li. (2015) The mediating effect of affective stigma between face concern and general mental health – The case of Chinese caregivers of children with intellectual disability. Research in Developmental Disabilities 36, pages 437-446.
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Elinor Kenyon, Nigel Beail & Tom Jackson. (2014) Learning disability: experience of diagnosis. British Journal of Learning Disabilities 42:4, pages 257-263.
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Nigel Beail & Katie Williams. (2014) Using Qualitative Methods in Research with People Who Have Intellectual Disabilities. Journal of Applied Research in Intellectual Disabilities 27:2, pages 85-96.
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Afia Ali, Angela Hassiotis, Andre Strydom & Michael King. (2012) Self stigma in people with intellectual disabilities and courtesy stigma in family carers: A systematic review. Research in Developmental Disabilities 33:6, pages 2122-2140.
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Joe Caldwell. (2011) Disability Identity of Leaders in the Self-Advocacy Movement. Intellectual and Developmental Disabilities 49:5, pages 315-326.
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Gemma Maria Griffith, Richard P. Hastings, Susie Nash, Michael Petalas, Chris Oliver, Patricia Howlin, Joanna Moss, Jane Petty & Penelope Tunnicliffe. (2011) “You Have to Sit and Explain it All, and Explain Yourself.” Mothers’ Experiences of Support Services for Their Offspring with a Rare Genetic Intellectual Disability Syndrome. Journal of Genetic Counseling 20:2, pages 165-177.
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Jennifer Brown, Karen Dodd & Arlene Vetere. (2010) ORIGINAL ARTICLE: ‘I am a normal man’: a narrative analysis of the accounts of older people with Down’s syndrome who lived in institutionalised settings. British Journal of Learning Disabilities 38:3, pages 217-224.
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Julie Docherty & Kate Reid. (2009) ‘What’s the Next Stage?’ Mothers of Young Adults with Down Syndrome Explore the Path to Independence: A Qualitative Investigation. Journal of Applied Research in Intellectual Disabilities 22:5, pages 458-467.
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Chris McVittie, Karen E. Goodall & Andy McKinlay. (2008) Resisting having learning disabilities by managing relative abilities. British Journal of Learning Disabilities 36:4, pages 256-262.
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Annette Hames. (2008) Siblings’ Understanding of Learning Disability: A Longitudinal Study. Journal of Applied Research in Intellectual Disabilities 21:6, pages 491-501.
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Gordon Grant, Paul Ramcharan & Margaret Flynn. (2007) Resilience in Families with Children and Adult Members with Intellectual Disabilities: Tracing Elements of A Psycho-Social Model. Journal of Applied Research in Intellectual Disabilities 20:6, pages 563-575.
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Gordon Grant. (2010) Invisible Contributions in Families with Children and Adults with Intellectual Disabilities. Canadian Journal on Aging / La Revue canadienne du vieillissement 26:S1, pages 15-26.
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W. M. L. Finlay & E. Lyons. (2005) Rejecting the Label: A Social Constructionist Analysis. Mental Retardation 43:2, pages 120-134.
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Suzie Beart, Gillian Hardy & Linda Buchan. (2005) How People with Intellectual Disabilities View Their Social Identity: A Review of the Literature. Journal of Applied Research in Intellectual Disabilities 18:1, pages 47-56.
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W. M. L. Finlay, A. Rutland & J. Shotton. (2003) ‘They were brilliant, I don't know what I would've done if they hadn't been here’: the group concept problem revisited. Journal of Community & Applied Social Psychology 13:4, pages 300-313.
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Jaime Craig, Fiona Craig, Paul Withers, Chris Hatton & Kate Limb. (2002) Identity Conflict in People with Intellectual Disabilities: What Role do Service‐providers Play in Mediating Stigma?. Journal of Applied Research in Intellectual Disabilities 15:1, pages 61-72.
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Val Williams & Carol Robinson. (2002) ‘He will finish up caring for me’: people with learning disabilities and mutual care. British Journal of Learning Disabilities 29:2, pages 56-62.
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W. M. L. Finlay & E. Lyons. (2001) Methodological issues in interviewing and using self-report questionnaires with people with mental retardation.. Psychological Assessment 13:3, pages 319-335.
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S. Todd. (2001) Working in the public and private domains: staff management of community activities for and the identities of people with intellectual disability. Journal of Intellectual Disability Research 44:5, pages 600-620.
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Sheila Hollins. (2018) Developmental psychiatry – insights from learning disability∗. British Journal of Psychiatry 177:3, pages 201-206.
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C. C. Cunningham, S. Glenn & H. Fitzpatrick. (2001) Parents telling their Offspring about Down Syndrome and Disability. Journal of Applied Research in Intellectual Disabilities 13:2, pages 47-61.
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J. Shearn & S. Todd. (2007) Parental work: an account of the day‐to‐day activities of parents of adults with learning disabilities. Journal of Intellectual Disability Research 41:4, pages 285-301.
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