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Research Article

Race, Trust in Doctors, Privacy Concerns, and Consent Preferences for Biobanks

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Jennifer A. Scarduzio, Joshua Santiago & Yolanda L. Jackson. (2023) Disclosure of intimate partner violence experiences during COVID-19: patient-provider communication in a Southern United States emergency department. Journal of Applied Communication Research 51:4, pages 444-461.
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Iman Kassam, Daria Ilkina, Jessica Kemp, Heba Roble, Abigail Carter-Langford & Nelson Shen. (2023) Patient Perspectives and Preferences for Consent in the Digital Health Context: State-of-the-art Literature Review. Journal of Medical Internet Research 25, pages e42507.
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Andrew Hantel, Jessica Kohlschmidt, Ann-Kathrin Eisfeld, Wendy Stock, Sawyer Jacobson, Sumithra Mandrekar, Richard A. Larson, Richard M. Stone, Christopher S. Lathan, Daniel J. DeAngelo, John C. Byrd & Gregory A. Abel. (2022) Inequities in Alliance Acute Leukemia Clinical Trial and Biobank Participation: Defining Targets for Intervention. Journal of Clinical Oncology 40:32, pages 3709-3718.
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Mason KyleDiana CortezBlaze CarbonellEdgar MasmilaAlfredo MolinoloSharmeela Kaushal. (2021) Vulnerabilities of Cancer Patients and Their Effects on Informed Consent for Biobanking. Biopreservation and Biobanking 19:6, pages 543-548.
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Giovanna Nunes Vilaza, David Coyle & Jakob Eyvind Bardram. (2021) Public Attitudes to Digital Health Research Repositories: Cross-sectional International Survey. Journal of Medical Internet Research 23:10, pages e31294.
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Gia Mudd-Martin, Allison L. Cirino, Veronica Barcelona, Keolu Fox, Maui Hudson, Yan V. Sun, Jacquelyn Y. Taylor & Vicky A. Cameron. (2021) Considerations for Cardiovascular Genetic and Genomic Research With Marginalized Racial and Ethnic Groups and Indigenous Peoples: A Scientific Statement From the American Heart Association. Circulation: Genomic and Precision Medicine 14:4.
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Vishwali Mhasawade, Yuan Zhao & Rumi Chunara. (2021) Machine learning and algorithmic fairness in public and population health. Nature Machine Intelligence 3:8, pages 659-666.
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