Participants’ Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles

Celeste M. ConditDepartment of Communication Studies, University of Georgia, Athens, Georgia, USACorrespondence[email protected]
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Lijiang ShenDepartment of Communication Arts and Sciences, Pennsylvania State University, University Park, Pennsylvania, USAView further author information

Karen L. EdwardsDepartment of Epidemiology, School of Medicine, University of California, Irvine, Irvine, California, USAView further author information

Deborah J. BowenDepartment of Bioethics and Humanities, University of Washington, Seattle, Washington, USAView further author information

Diane M. KorngiebelBiomedical Informatics and Medical Education, University of Washington, Seattle, Washington, USAView further author information

Catherine O. JohnsonDepartment of Epidemiology, School of Medicine, University of California, Irvine, Irvine, California, USAView further author information

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Erisa Sabakaki Mwaka, Deborah Ekusai Sebatta, Joseph Ochieng, Ian Guyton Munabi, Godfrey Bagenda, Deborah Ainembabazi & David Kaawa-Mafigiri. (2021) Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study. Global Bioethics 32:1, pages 15-33.
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Zeeshan Samad, Myrna Wooders, Bradley Malin & Yevgeniy Vorobeychik. (2023) Risk, trust, and altruism in genetic data sharing. Journal of Public Economic Theory 25:6, pages 1251-1269.
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Caitlin G Allen, Shenita Peterson, Muin J Khoury, Lawrence C Brody & Colleen M McBride. (2021) A scoping review of social and behavioral science research to translate genomic discoveries into population health impact. Translational Behavioral Medicine 11:4, pages 901-911.
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Ellen W. Clayton, Colin M. Halverson, Nila A. Sathe & Bradley A. Malin. (2018) A systematic literature review of individuals’ perspectives on privacy and genetic information in the United States. PLOS ONE 13:10, pages e0204417.
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Participants’ Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles

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Participants’ Role Expectations in Genetics Research and Re-consent: Revising the Theory and Methods of Mental Models Research Relating to Roles

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