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Original Articles

Uncertainty Management Following a Positive Newborn Screening for Cystic Fibrosis

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Pages 57-76 | Published online: 23 Feb 2007

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (10)

Nuno Baptista, José Carlos Pinho & Helena Alves. (2022) Social Marketing and Online Social Support Structure in Contexts of Treatment Uncertainty. Journal of Nonprofit & Public Sector Marketing 34:3, pages 311-350.
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Lingzi Zhong, Jihun Woo, Mary A. Steinhardt & Anita L. Vangelisti. (2020) “Our Job is that Whole Gray Zone in Between There”: Investigating Genetic Counselors’ Strategies for Managing and Communicating Uncertainty. Health Communication 35:13, pages 1583-1592.
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Zachary White, Cristina Gilstrap & Jennifer Hull. (2017) “Me Against the World”: Parental Uncertainty Management at Home Following Neonatal Intensive Care Unit Discharge. Journal of Family Communication 17:2, pages 105-116.
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Elisia L. Cohen, Allison M. Scott, Rachael Record, Sara Shaunfield, M. Grace Jones & Tom Collins. (2016) Using communication to manage uncertainty about cervical cancer screening guideline adherence among Appalachian women. Journal of Applied Communication Research 44:1, pages 22-39.
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Catherine Goodall, Jason Sabo, Rebecca Cline & Nichole Egbert. (2012) Threat, Efficacy, and Uncertainty in the First 5 Months of National Print and Electronic News Coverage of the H1N1 Virus. Journal of Health Communication 17:3, pages 338-355.
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William Evans. (2005) Bibliography. Health Communication 18:2, pages 195-199.
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Articles from other publishers (11)

Melissa Raspa, Oksana Kutsa, Sara M. Andrews, Angela Y. Gwaltney, Erin Mallonee, Alissa Creamer, Paul K. J. Han & Barbara B. Biesecker. (2023) Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening. European Journal of Human Genetics.
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Audrey Tluczek, Anne L. Ersig & Shinhyo Lee. (2022) Psychosocial Issues Related to Newborn Screening: A Systematic Review and Synthesis. International Journal of Neonatal Screening 8:4, pages 53.
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Faye Johnson, Fiona Ulph, Rhona MacLeod & Kevin W. Southern. (2022) Receiving results of uncertain clinical relevance from population genetic screening: systematic review & meta-synthesis of qualitative research. European Journal of Human Genetics 30:5, pages 520-531.
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Ashley L. White, Felicity Boardman, Abigail McNiven, Louise Locock & Lisa Hinton. (2021) Absorbing it all: A meta-ethnography of parents’ unfolding experiences of newborn screening. Social Science & Medicine 287, pages 114367.
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Jennifer Hammond, Jasmijn E. Klapwijk, Melissa Hill, Stina Lou, Kelly E. Ormond, Karin E.M. Diderich, Sam Riedijk & Celine Lewis. (2020) Parental experiences of uncertainty following an abnormal fetal anomaly scan: Insights using Han’s taxonomy of uncertainty. Journal of Genetic Counseling 30:1, pages 198-210.
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Melissa Raspa, Molly Lynch, Linda Squiers, Angela Gwaltney, Katherine Porter, Holly Peay, Alissa Huston, Brian Fitzek & John G. Boyle. (2020) Information and Emotional Support Needs of Families Whose Infant Was Diagnosed With SCID Through Newborn Screening. Frontiers in Immunology 11.
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Faye Johnson, Kevin W. Southern & Fiona Ulph. (2019) Psychological Impact on Parents of an Inconclusive Diagnosis Following Newborn Bloodspot Screening for Cystic Fibrosis: A Qualitative Study. International Journal of Neonatal Screening 5:2, pages 23.
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Mara Buchbinder & Stefan Timmermans. (2012) Newborn Screening for Metabolic Disorders. Clinical Pediatrics 51:8, pages 739-744.
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Chloé Langeard, Guy Minguet, Laetitia Guéganton, Pierre Cam, Christine Faquet, Pierre Lombrail & Gilles Rault. (2011) L'expérience professionnelle du médecin hospitalier à l'épreuve du dépistage : le cas de l'annonce du diagnostic de la mucoviscidose. Revue française des affaires sociales:2, pages 80-102.
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Dale Brashers. 2008. The International Encyclopedia of Communication. The International Encyclopedia of Communication.
James Price Dillard & Audrey Tluczek. (2005) Information flow after a positive newborn screening for cystic fibrosis. The Journal of Pediatrics 147:3, pages S94-S97.
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