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Meghan C. Halley, Colin M. E. Halverson, Holly K. Tabor & Aaron J. Goldenberg. (2023) Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care. The American Journal of Bioethics 23:7, pages 17-26.
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Emma Estrella & Patricia A. Frazier. (2023) Healthcare experiences among adults with hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorder in the United States. Disability and Rehabilitation 0:0, pages 1-10.
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Adrien Hakimi, Cyrille Bergoin & Patrick Mucci. (2022) What are the most important symptoms to assess in hypermobile Ehlers-Danlos syndrome? A questionnaire study based on the Delphi technique. Disability and Rehabilitation 44:26, pages 8325-8331.
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Sarah E. Bennett, Nicola Walsh, Tim Moss & Shea Palmer. (2022) Developing a self-management intervention to manage hypermobility spectrum disorders (HSD) and hypermobile Ehlers-Danlos syndrome (hEDS): an analysis informed by behaviour change theory. Disability and Rehabilitation 44:18, pages 5231-5240.
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Lauren Bell & Gemma Pearce. (2022) Parents’ experiences of children’s health care for hypermobile Ehlers–Danlos syndrome and hypermobility spectrum disorders. Children's Health Care 51:1, pages 37-61.
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Sarah E. Bennett, Nicola Walsh, Timothy Moss & Shea Palmer. (2021) Understanding the psychosocial impact of joint hypermobility syndrome and Ehlers–Danlos syndrome hypermobility type: a qualitative interview study. Disability and Rehabilitation 43:6, pages 795-804.
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G. David Baxter. (2019) Musculoskeletal physiotherapy. Physical Therapy Reviews 24:1-2, pages 1-1.
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Articles from other publishers (8)
Estée C.H. Feldman, Kendra J. Homan, Sara E. Williams, Tracy V. Ting, Kenneth R. Goldschneider & Susmita Kashikar-Zuck. (2023) A narrative review of the literature on illness uncertainty in hypermobile ehlers-danlos syndrome: implications for research and clinical practice. Pediatric Rheumatology 21:1.
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Nicky Snowdon & Sakina Dadla. (2023) Perceptions and experiences of allied health professionals of fabric orthoses for people with joint hypermobility syndromes: a qualitative study. International Journal of Therapy and Rehabilitation 30:8, pages 1-14.
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Colin M.E. Halverson, Heather L. Penwell & Clair A. Francomano. (2023) Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes. SSM - Qualitative Research in Health 3, pages 100237.
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Kendall Robbins. (2022) The Underrecognized Conditions of Hypermobile Ehlers–Danlos Syndrome and Hypermobility Spectrum Disorders in Women. Nursing for Women's Health 26:3, pages 174-183.
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Stijn De Baets, Marieke De Temmerman, Patrick Calders, Fransiska Malfait, Geert Van Hove, Guy Vanderstraeten, Inge De Wandele & Dominique Van de Velde. (2022) The Impact of Hypermobile “Ehlers-Danlos Syndrome” and Hypermobile Spectrum Disorder on Interpersonal Interactions and Relationships. Frontiers in Rehabilitation Sciences 3.
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Colin Michael Egenberger Halverson, Ellen Wright Clayton, Abigail Garcia Sierra & Clair Francomano. (2021)
Patients with
Ehlers–Danlos
syndrome on the diagnostic odyssey: Rethinking complexity and difficulty as a hero's journey
. American Journal of Medical Genetics Part C: Seminars in Medical Genetics 187:4, pages 416-424.
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Dervil M Dockrell, Kathryn M Berg & Stuart H Ralston. (2021) Mind the gaps: therapists’ experiences of managing symptomatic hypermobility in Scotland. Rheumatology Advances in Practice 5:2.
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Inmaculada Palomo-Toucedo, Fatima Leon-Larios, María Reina-Bueno, María Vázquez-Bautista, Pedro Munuera-Martínez & Gabriel Domínguez-Maldonado. (2020) Psychosocial Influence of Ehlers–Danlos Syndrome in Daily Life of Patients: A Qualitative Study. International Journal of Environmental Research and Public Health 17:17, pages 6425.
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