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Erisa Sabakaki Mwaka, Deborah Ekusai Sebatta, Joseph Ochieng, Ian Guyton Munabi, Godfrey Bagenda, Deborah Ainembabazi & David Kaawa-Mafigiri. (2021) Researchers’ perspectives on return of individual genetics results to research participants: a qualitative study. Global Bioethics 32:1, pages 15-33.
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Janet Seeley & Michael Parker. (2020) Editorial – ethical practice and genomic research. Global Bioethics 31:1, pages 164-168.
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Zeinab Mohammed, Fatma Abdelgawad, Mamoun Ahram, Maha E Ibrahim, Alya Elgamri, Ehsan Gamel, Latifa Adarmouch, Karima El Rhazi, Samar Abd ElHafeez & Henry Silverman. (2023) Opinions and attitudes of research ethics committees in Arab countries in the Middle East and North African region toward ethical issues involving biobank research. Research Ethics.
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Annabelle Cumyn, Jean-Frédéric Ménard, Adrien Barton, Roxanne Dault, Frédérique Lévesque & Jean-François Ethier. (2023) Patients’ and Members of the Public’s Wishes Regarding Transparency in the Context of Secondary Use of Health Data: Scoping Review. Journal of Medical Internet Research 25, pages e45002.
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Manono Luthuli, Nothando Ngwenya, Dumsani Gumede, Resign Gunda, Dickman Gareta, Olivier Koole, Mark J. Siedner, Emily B. Wong & Janet Seeley. (2022) Participant recall and understandings of information on biobanking and future genomic research: experiences from a multi-disease community-based health screening and biobank platform in rural South Africa. BMC Medical Ethics 23:1.
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A. A. Pestrikova & L. N. Smorchkova. (2022) Features of Institutions of Informed Consent and Property Rights in Legal Regulation of Relations Related to Human Biological Material. Actual Problems of Russian Law 17:12, pages 110-120.
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Joseph Ochieng, Betty Kwagala, John Barugahare, Marlo Möller & Keymanthri Moodley. (2022) Feedback of individual genetic and genomics research results: A qualitative study involving grassroots communities in Uganda. PLOS ONE 17:11, pages e0267375.
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Jerome Atutornu, Richard Milne, Alesia Costa, Christine Patch & Anna Middleton. (2022) Towards equitable and trustworthy genomics research. eBioMedicine 76, pages 103879.
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M. C. A. De Ungria & E. B. Jimenez. 2022. Handbook of DNA Profiling. Handbook of DNA Profiling
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Shenuka Singh & Keymanthri Moodley. (2021) Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa. BMC Medical Ethics 22:1.
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Setlhomo Koloi-Keaikitse, Gail Geller, Dudu Jankie & Joseph Ali. (2021) Cultural Values and Beliefs of Selected Local Communities in Botswana: Implications for Human Subject Research Ethics Practice. Journal of Empirical Research on Human Research Ethics 16:4, pages 424-434.
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Pierre VodosinAnn Katheryn JorgensenMaimuna MendyZisis KozlakidisElodie CabouxMa'n H. Zawati. (2021) A Review of Regulatory Frameworks Governing Biobanking in the Low and Middle Income Member Countries of BCNet. Biopreservation and Biobanking 19:5, pages 444-452.
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Godfred Agongo, Cornelius Debpuur, Lucas Amenga-Etego, Engelbert A. Nonterah, Michael B. Kaburise, Abraham Oduro, Michele Ramsay & Paulina Tindana. (2021) Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana. AAS Open Research 4, pages 15.
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Nothando Ngwenya, Manono Luthuli, Resign Gunda, Ntombizonke A Gumede, Oluwafemi Adeagbo, Busisiwe Nkosi, Dickman Gareta, Olivier Koole, Mark Siedner, Emily B Wong, Janet Seeley, Ashmika Surujdeen, Hlolisile Khumalo, Ngcebo Mhlongo, Sanah Bucibo, Sibahle Gumbi, Lindani Mthembu, Seneme Mchunu, Mkhwanazi Phakamani, Mkhwanazi Anele, Mkhwanazi Ntombiyenhlanhla, Myeni Rose, Zikhali Mandlakayise, Mfeka Fezeka, Gumede Hlobisile, Mbonambi Nozipho, Ngubane Hloniphile, Simelane Thokozani, Ndlovu Bongumenzi, Ntimbane Talente, Mbuyisa Mbali, Mkhize Xolani, Sibiya Melusi, Ntombiyenkosi Ntombela, Mandisi Dlamini, Thengokwakhe Nkosi, Sibusiso Mkhwanazi, Mthombeni Skhumbuzo, Chonco Hlobisile, Dlamini Hlengiwe, Mlambo Doctar, Mzimela Nonhlanhla, Buthelezi Zinhle, Steto Mpumelelo, Mhlongo Sibusiso, Magwaza Bongani, Nsibande Siyabonga, Zondi Nombuyiselo, Buthelezi Khanyisani, Nsibande Sibusiso, Nonceba Mfeka, Ayanda Zungu, Hlobisile Gumede, Nonhlanhla Mfekayi, Smangaliso Zulu, Mzamo Buthelezi, Mkhwanazi Senzeni, Mlungisi Dube, Welcome Petros Mthembu, Sphiwe Clement Mthembu, Zinhle Mthembu, Bhengu Thokozani, Sandile Mthembu, Phumelele Mthethwa, Zamashandu Mbatha, Ashmika Surujdeen, Hlolisile Khumalo, Ngcebo Mhlongo, Sanah Bucibo, Sibahle Gumbi, Lindani Mthembu, Seneme Mchunu, Mkhwanazi Phakamani, Mkhwanazi Anele, Mkhwanazi Ntombiyenhlanhla, Myeni Rose, Zikhali Mandlakayise, Mfeka Fezeka, Gumede Hlobisile, Mbonambi Nozipho, Ngubane Hloniphile, Simelane Thokozani, Ndlovu Bongumenzi, Ntimbane Talente, Mbuyisa Mbali, Mkhize Xolani, Sibiya Melusi, Ntombiyenkosi Ntombela, Mandisi Dlamini, Thengokwakhe Nkosi, Sibusiso Mkhwanazi, Mthombeni Skhumbuzo, Chonco Hlobisile, Dlamini Hlengiwe, Mlambo Doctar, Mzimela Nonhlanhla, Buthelezi Zinhle, Steto Mpumelelo, Mhlongo Sibusiso, Magwaza Bongani, Nsibande Siyabonga, Zondi Nombuyiselo, Buthelezi Khanyisani, Nsibande Sibusiso, Nonceba Mfeka, Ayanda Zungu, Hlobisile Gumede, Nonhlanhla Mfekayi, Smangaliso Zulu, Mzamo Buthelezi, Mkhwanazi Senzeni, Mlungisi Dube, Welcome Petros Mthembu, Sphiwe Clement Mthembu, Zinhle Mthembu, Bhengu Thokozani, Sandile Mthembu, Phumelele Mthethwa & Zamashandu Mbatha. (2020) Participant understanding of informed consent in a multidisease community-based health screening and biobank platform in rural South Africa. International Health 12:6, pages 560-566.
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