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Younger people in dementia care: A review of service needs, service provision and models of good practice

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Pages 205-212 | Published online: 09 Jun 2010

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Kirstin Broders & Elaine C. Wiersma. (2022) Creating change: the experiences of women living with young onset dementia. Disability & Society 37:5, pages 787-808.
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Vasileios Stamou, Jenny La Fontaine, Mary O’Malley, Bridget Jones, Heather Gage, Jacqueline Parkes, Janet Carter & Jan Oyebode. (2021) The nature of positive post-diagnostic support as experienced by people with young onset dementia. Aging & Mental Health 25:6, pages 1125-1133.
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Andrea Mayrhofer, Elspeth Mathie, Jane McKeown, Frances Bunn & Claire Goodman. (2018) Age-appropriate services for people diagnosed with young onset dementia (YOD): a systematic review. Aging & Mental Health 22:8, pages 933-941.
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Aud Johannessen, Frøydis Kristine Bruvik & Solveig Hauge. (2015) Family carers’ experiences of attending a multicomponent psychosocial intervention program for carers and persons with dementia. Journal of Multidisciplinary Healthcare 8, pages 91-99.
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Mary Anne Wylie, Adriana Shnall, Chiadi U. Onyike & Edward D. Huey. (2013) Management of frontotemporal dementia in mental health and multidisciplinary settings. International Review of Psychiatry 25:2, pages 230-236.
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Adriana Shnall, Adam Agate, Ana Grinberg, Maria Huijbregts, Minh-Quan Nguyen & Tiffany W. Chow. (2013) Development of supportive services for frontotemporal dementias through community engagement. International Review of Psychiatry 25:2, pages 246-252.
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Milena von Kutzleben, Wolfgang Schmid, Margareta Halek, Bernhard Holle & Sabine Bartholomeyczik. (2012) Community-dwelling persons with dementia: What do they need? What do they demand? What do they do? A systematic review on the subjective experiences of persons with dementia. Aging & Mental Health 16:3, pages 378-390.
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Tor Atle Rosness, Marit Mjørud & Knut Engedal. (2011) Quality of life and depression in carers of patients with early onset dementia. Aging & Mental Health 15:3, pages 299-306.
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Angela Beattie, Gavin Daker‐White, Jane Gilliard & Robin Means . (2005) ‘They don't quite fit the way we organise our services’—results from a UK field study of marginalised groups and dementia care. Disability & Society 20:1, pages 67-80.
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Phyllis Braudy Harris. (2004) The Perspective of Younger People with Dementia. Social Work in Mental Health 2:4, pages 17-36.
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G. Daker-White, A. M. Beattie, J. Gilliard & R. Means. (2002) Minority ethnic groups in dementia care: A review of service needs, service provision and models of good practice. Aging & Mental Health 6:2, pages 101-108.
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Articles from other publishers (55)

Peter Kevern, Dawn Lawrence, Nargis Nazir & Anna Tsaroucha. (2022) Religious Influences on the Experience of Family Carers of People with Dementia in a British Pakistani Muslim Community. Healthcare 11:1, pages 120.
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Yuta Iinuma, Sou Nobukawa, Kimiko Mizukami, Megumi Kawaguchi, Masato Higashima, Yuji Tanaka, Teruya Yamanishi & Tetsuya Takahashi. (2022) Enhanced temporal complexity of EEG signals in older individuals with high cognitive functions. Frontiers in Neuroscience 16.
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Shuyan Fang, Shuang Zhang, Wenxia Wang, Yijing Li, Xu Zhang, Haisong Yu & Jiao Sun. (2022) Behavioural and psychological symptoms of early‐onset and late‐onset Alzheimer's disease among Chinese adults: analysis of modifiable factors . Psychogeriatrics 22:3, pages 391-401.
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Sarah M Bannon, Mira R Reichman, Katherine Wang, Simrit Uppal, Victoria A Grunberg & Ana-Maria Vranceanu. (2021) A qualitative meta-synthesis of common and unique preferences for supportive services among persons with young onset dementia and their caregivers. Dementia 21:2, pages 519-539.
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Giovanni Ottoboni, Vasileios Stamou, Ilaria Chirico, Laura De Riso, Luisa Allione, Aud Johannessen & Rabih Chattat. (2021) Needs-appropriate services for people with young onset dementia: The perspectives of healthcare professionals. Dementia 20:8, pages 2725-2745.
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Annalisa Chiari, Barbara Pistoresi, Chiara Galli, Manuela Tondelli, Giulia Vinceti, Maria Angela Molinari, Tindara Addabbo & Giovanna Zamboni. (2021) Determinants of Caregiver Burden in Early-Onset Dementia. Dementia and Geriatric Cognitive Disorders Extra 11:2, pages 189-197.
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Anita M. Y. GohEmily YouStephanie PerinNicola T. LautenschlagerFiona J. ClaySamantha M. LoiTerence ChongDavid AmesEdmond ChiuKathryn A. Ellis. (2020) Alcohol Use, Mental Health, and Functional Capacity as Predictors of Workplace Disability in a Cohort With Manifest Huntington’s Disease. The Journal of Neuropsychiatry and Clinical Neurosciences 32:3, pages 235-243.
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Karen Hutchinson, Chris Roberts, Pamela Roach & Susan Kurrle. (2018) Co-creation of a family-focused service model living with younger onset dementia. Dementia 19:4, pages 1029-1050.
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Caroline Vafeas, Elisabeth Jacob & Alycia Jacob. (2018) A younger onset dementia toolkit: Innovative practice. Dementia 19:4, pages 1299-1307.
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Nathália R. S. Kimura, José Pedro Simões Neto, Raquel Luiza Santos, Maria Alice Tourinho Baptista, Glória Portugal, Aud Johannessen, Maria Lage Barca, Knut Engedal, Jerson Laks, Valeska Marinho Rodrigues & Marcia C. N. Dourado. (2019) Resilience in Carers of People With Young-Onset Alzheimer Disease. Journal of Geriatric Psychiatry and Neurology 32:2, pages 59-67.
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Kristen Holdsworth & Marita McCabe. (2017) The impact of younger-onset dementia on relationships, intimacy, and sexuality in midlife couples: a systematic review. International Psychogeriatrics 30:1, pages 15-29.
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Emilie Wawrziczny, Florence Pasquier, Francine Ducharme, Marie-Jeanne Kergoat & Pascal Antoine. (2017) Do spouse caregivers of young and older persons with dementia have different needs? A comparative study. Psychogeriatrics 17:5, pages 282-291.
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Mariko L. Sakamoto, Sharon L. Moore & Steven T. Johnson. (2017) “I'm Still Here”: Personhood and the Early-Onset Dementia Experience. Journal of Gerontological Nursing 43:5, pages 12-17.
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Bora Yoon, Yong S. Shim, Yun Jeong Hong, Seong Hye Choi, Hee Kyung Park, Sun Ah Park, Jee Hyang Jeong, Soo Jin Yoon & Dong-Won Yang. (2017) Anosognosia and Its Relation to Psychiatric Symptoms in Early-Onset Alzheimer Disease. Journal of Geriatric Psychiatry and Neurology 30:3, pages 170-177.
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Renee L. Beard & Maureen K. O'Connor. 2017. Gaming and Technology Addiction. Gaming and Technology Addiction 684 715 .
Janet Sansoni, Cathy Duncan, Pamela Grootemaat, Jacquelin Capell, Peter Samsa & Anita Westera. (2016) Younger Onset Dementia. American Journal of Alzheimer's Disease & Other Dementiasr 31:8, pages 693-705.
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Shona McCulloch, David Robertson & Pamela Kirkpatrick. (2016) Sustaining people with dementia or mild cognitive impairment in employment: A systematic review of qualitative evidence. British Journal of Occupational Therapy 79:11, pages 682-692.
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Joany K. Millenaar, Marjolein E. de Vugt, Christian Bakker, Deliane van Vliet, Yolande A.L. Pijnenburg, Raymond T.C.M. Koopmans & Frans R.J. Verhey. (2016) The Impact of Young Onset Dementia on Informal Caregivers Compared with Late Onset Dementia: Results from the NeedYD Study. The American Journal of Geriatric Psychiatry 24:6, pages 467-474.
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Ruth Chaplin & Ian Davidson. (2014) What are the experiences of people with dementia in employment?. Dementia 15:2, pages 147-161.
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Nicholas Jenkins, Sarah Keyes & Liz Strange. (2015) Creating Vignettes of Early Onset Dementia: An Exercise in Public Sociology. Sociology 50:1, pages 77-92.
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Adriana Shnall. (2015) Public Advocacy and Community Engagement. Psychiatric Clinics of North America 38:2, pages 353-362.
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Milena von Kutzleben & Birgit Panke-Kochinke. 2015. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease 159 182 .
Renee L. Beard & Maureen K. O'Connor. 2015. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease 1 32 .
Francine Ducharme, Marie-Jeanne Kergoat, Renée Coulombe, Louise Lévesque, Pascal Antoine & Florence Pasquier. (2014) Unmet support needs of early-onset dementia family caregivers: a mixed-design study. BMC Nursing 13:1.
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P. Roach & N. Drummond. (2014) ‘It's nice to have something to do’: early-onset dementia and maintaining purposeful activity. Journal of Psychiatric and Mental Health Nursing 21:10, pages 889-895.
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Maria Lage Barca, Kirsten Thorsen, Knut Engedal, Per Kristian Haugen & Aud Johannessen. (2014) Nobody asked me how I felt: experiences of adult children of persons with young-onset dementia. International Psychogeriatrics 26:12, pages 1935-1944.
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Allison K. Gibson, Keith A. Anderson & Sara Acocks. (2014) Exploring the Service and Support Needs of Families With Early-Onset Alzheimer’s Disease. American Journal of Alzheimer's Disease & Other Dementiasr 29:7, pages 596-600.
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Pamela Roach, John David Keady & Penny Bee. (2014) Family-AiD: a family-centred assessment tool in young-onset dementia. Quality in Ageing and Older Adults 15:3, pages 136-150.
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Gemma Clemerson, Sue Walsh & Claire Isaac. (2013) Towards living well with young onset dementia: An exploration of coping from the perspective of those diagnosed. Dementia 13:4, pages 451-466.
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Julie G. Kosteniuk, Debra G. Morgan, Megan E. O'Connell, Margaret Crossley, Andrew Kirk, Norma J. Stewart & Chandima P. Karunanayake. (2014) Prevalence and Covariates of Elevated Depressive Symptoms in Rural Memory Clinic Patients with Mild Cognitive Impairment or Dementia. Dementia and Geriatric Cognitive Disorders Extra 4:2, pages 209-220.
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Francine Ducharme, Marie-Jeanne Kergoat, Pascal Antoine, Florence Pasquier & Renée Coulombe. (2014) Caring for Individuals with Early-Onset Dementia and Their Family Caregivers: The Perspective of Health Care Professionals. Advances in Alzheimer's Disease 03:01, pages 33-43.
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Francine Ducharme, Marie-Jeanne Kergoat, Pascal Antoine, Florence Pasquier & Renée Coulombe. (2013) The Unique Experience of Spouses in Early-Onset Dementia. American Journal of Alzheimer's Disease & Other Dementiasr 28:6, pages 634-641.
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Raymond T.C.M. Koopmans & Denise Thompson. 2013. Designing and Delivering Dementia Services. Designing and Delivering Dementia Services 33 45 .
Aud Johannessen & Anders Möller. (2011) Experiences of persons with early-onset dementia in everyday life: A qualitative study. Dementia 12:4, pages 410-424.
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Adrienne Withall. (2013) The Challenges of Service Provision in Younger-Onset Dementia. Journal of the American Medical Directors Association 14:4, pages 230-232.
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Elizabeth Armari, Anna Jarmolowicz & Peter K. Panegyres. (2012) The Needs of Patients With Early Onset Dementia. American Journal of Alzheimer's Disease & Other Dementiasr 28:1, pages 42-46.
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Tor Atle Rosness, Per Kristian Haugen, Margit Gausdal, Linda Gjøra & Knut Engedal. (2012) Carers of patients with early‐onset dementia, their burden and needs: a pilot study using a new questionnaire — Care‐EOD. International Journal of Geriatric Psychiatry 27:10, pages 1095-1097.
Crossref
Fiona E. Pipon-Young, Kristina M. Lee, Fergal Jones & Reinhard Guss. (2011) I'm not all gone, I can still speak: The experiences of younger people with dementia. An action research study. Dementia 11:5, pages 597-616.
Crossref
P. ROACH, J. KEADY & P. BEE. (2011) ‘It's easier just to separate them’: practice constructions in the mental health care and support of younger people with dementia and their families. Journal of Psychiatric and Mental Health Nursing 19:6, pages 555-562.
Crossref
Denise Chaston. (2011) Between a rock and a hard place: Exploring the service needs of younger people with dementia. Contemporary Nurse 39:2, pages 130-139.
Crossref
Jennifer M. KinneyCary S. Kart & Luann Reddecliff. (2011) ‘That’s me, the Goother’: Evaluation of a program for individuals with early-onset dementia. Dementia 10:3, pages 361-377.
Crossref
Tor Rosness, Per Haugen & Knut Engedal. (2011) Når demens rammer unge. Tidsskrift for Den norske legeforening 131:12, pages 1194-1197.
Crossref
J. Garre-OlmoD. Genís BatlleM. del Mar FernándezF. Marquez DanielR. de Eugenio HuélamoT. CasadevallJ. Turbau RecioA. Turon EstradaS. López-Pousa. (2010) Incidence and subtypes of early-onset dementia in a geographically defined general population. Neurology 75:14, pages 1249-1255.
Crossref
Tor Atle Rosness, Maria Lage Barca & Knut Engedal. (2010) Occurrence of depression and its correlates in early onset dementia patients. International Journal of Geriatric Psychiatry 25:7, pages 704-711.
Crossref
Paula L. Nicolaou, Sarah J. Egan, Natalie Gasson & Robert T. Kane. (2010) Identifying needs, burden, and distress of carers of people with Frontotemporal dementia compared to Alzheimer’s disease. Dementia 9:2, pages 215-235.
Crossref
SEAN PAGE & JOHN KEADY. (2009) Sharing stories: a meta-ethnographic analysis of 12 autobiographies written by people with dementia between 1989 and 2007. Ageing and Society 30:3, pages 511-526.
Crossref
Z. ChemaliA. Withall & K.R. Daffner. (2010) The Plight of Caring for Young Patients With Frontotemporal Dementia. American Journal of Alzheimer's Disease & Other Dementiasr 25:2, pages 109-115.
Crossref
Maurice D. Mulvenna, Chris D. Nugent, Ferial Moelaert, David Craig, Rose-Marie Dröes & Johan E. Bengtsson. 2010. Supporting People with Dementia Using Pervasive Health Technologies. Supporting People with Dementia Using Pervasive Health Technologies 3 14 .
Jacqui AllenJan R. OyebodeJoanne Allen. (2009) Having a father with young onset dementia. Dementia 8:4, pages 455-480.
Crossref
Pamela Roach, John Keady, Penny Bee & Kevin Hope. (2008) Subjective experiences of younger people with dementia and their families: implications for UK research, policy and practice. Reviews in Clinical Gerontology 18:2, pages 165-174.
Crossref
Arthur Blaser. 2008. Handbook of Long-Term Care Administration and Policy. Handbook of Long-Term Care Administration and Policy 85 104 .
Gail A. Mountain. (2016) Self-management for people with early dementia. Dementia 5:3, pages 429-446.
Crossref
K.L. Blackstock, A. Innes, S. Cox, A. Smith & A. Mason. (2006) Living with dementia in rural and remote Scotland: Diverse experiences of people with dementia and their carers. Journal of Rural Studies 22:2, pages 161-176.
Crossref
Angela Beattie, Gavin Daker-White, Jane Gilliard & Robin Means. (2004) 'How can they tell?' A qualitative study of the views of younger people about their dementia and dementia care services. Health and Social Care in the Community 12:4, pages 359-368.
Crossref

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