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Original Articles

A qualitative study of the experiences of long-term care for residents with dementia, their relatives and staff

Pages 119-128 | Received 02 Jan 2003, Accepted 03 Mar 2004, Published online: 16 Dec 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (12)

Claire Hutchinson, Jenny Cleland, Candice McBain, Ruth Walker, Rachel Milte, Kate Swaffer & Julie Ratcliffe. (2022) What quality of life domains are most important to older adults in residential care?. Journal of Aging & Social Policy 0:0, pages 1-22.
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Vidya Fatania, Danielle De Boos, Anna Tickle & David Connelly. (2019) How do inpatient psychiatric nurses make sense of and respond to behaviours in dementia? An Interpretative Phenomenological Analysis.. Aging & Mental Health 23:9, pages 1156-1163.
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Elizabeth A Evans, Elizabeth Perkins, Pam Clarke, Alina Haines, Ashley Baldwin & Richard Whittington. (2018) Care home manager attitudes to balancing risk and autonomy for residents with dementia. Aging & Mental Health 22:2, pages 261-269.
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Patricia Higgins. (2014) “It’s a Consolation”: The Role of Christian Religion for People With Dementia Who Are Living in Care Homes. Journal of Religion, Spirituality & Aging 26:4, pages 320-339.
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Carolyn Popham & Martin Orrell. (2012) What matters for people with dementia in care homes?. Aging & Mental Health 16:2, pages 181-188.
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Lené Levy-Storms, Maria Claver, VeronicaF. Gutierrez & Leslie Curry. (2011) Individualized Care in Practice: Communication Strategies of Nursing Aides and Residents in Nursing Homes. Journal of Applied Communication Research 39:3, pages 271-289.
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BeverlyP. Horowitz & Elizabeth Vanner. (2010) Relationships Among Active Engagement in Life Activities and Quality of Life for Assisted-Living Residents. Journal of Housing For the Elderly 24:2, pages 130-150.
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Linda Clare. (2010) Awareness in people with severe dementia: Review and integration. Aging & Mental Health 14:1, pages 20-32.
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Penny Pashby, Julie Hann & Maria Elinor S. Sunico. (2009) Dementia Care Planning: Shared Experience and Collaboration. Journal of Gerontological Social Work 52:8, pages 837-848.
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Rosalind Willis, Jeni Chan, Joanna Murray, David Matthews & Sube Banerjee. (2009) People with dementia and their family carers' satisfaction with a memory service: A qualitative evaluation generating quality indicators for dementia care. Journal of Mental Health 18:1, pages 26-37.
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Articles from other publishers (42)

Peta M. Forder, Julie E. Byles, Xanthe Golenko, Elizabeth Cyarto, Stuart G. Donohoe, Wendy Zernike & Judy A. Lowthian. (2021) Validation of a residential aged care consumer experience survey, 2019. Australasian Journal on Ageing 41:2.
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Dániel Kiss, Eszter Pados, Asztrik Kovács, Péter Mádi, Dóra Dervalics, Éva Bittermann, Ágoston Schmelowszky & József Rácz. (2021) “This is not life, this is just vegetation”—Lived experiences of long‐term care in Europe's largest psychiatric home: An interpretative phenomenological analysis. Perspectives in Psychiatric Care 57:4, pages 1981-1990.
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Charlie Lea & Andrew K. MacLeod. (2018) Bringing Life to Mind: A Qualitative and Quantitative Approach to Identifying the Information Used in Life Satisfaction Judgements. Journal of Happiness Studies 20:5, pages 1587-1608.
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Esther Wiskerke & Jill Manthorpe. (2016) Intimacy between care home residents with dementia: Findings from a review of the literature. Dementia 18:1, pages 94-107.
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Dieneke Smit, Jacomine de Lange, Bernadette Willemse & Anne Margriet Pot. (2017) Predictors of activity involvement in dementia care homes: a cross-sectional study. BMC Geriatrics 17:1.
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Elizabeth Welch, Sinead Palmer, Ann-Marie Towers & Nick Smith. (2017) Why are relatives of care home residents reluctant to “rock the boat”? Is there a culture of acceptance?. Working with Older People 21:2, pages 124-132.
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Sirpa Pietilä Rosendahl, Mirkka Söderman & Monir Mazaheri. (2016) Immigrants with dementia in Swedish residential care: an exploratory study of the experiences of their family members and Nursing staff. BMC Geriatrics 16:1.
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Eva Ericson-Lidman, Anna-Stina Renström, Johan Åhlin & Gunilla Strandberg. (2015) Relatives' perceptions of residents' life in a municipal care facility for older people with a focus on quality of life and care environment. International Journal of Older People Nursing 10:3, pages 160-169.
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Eva Ericson-Lidman & Gunilla Strandberg. (2013) Learning to Deal Constructively With Troubled Conscience Related to Care Providers’ Perceptions of Not Providing Sufficient Activities for Residents. Clinical Nursing Research 24:2, pages 211-227.
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Martin Hammershøj Olesen, Dorthe Kirkegaard Thomsen & Mia Skytte O’Toole. (2015) Subjective well-being: Above neuroticism and extraversion, autonomy motivation matters. Personality and Individual Differences 77, pages 45-49.
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Hannah Zeilig, Fiona Poland, Chris Fox & John Killick. (2015) The arts in dementia care education: a developmental study. Journal of Public Mental Health 14:1, pages 18-23.
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May-Karin Rognstad, Mette Sagbakken & Dagfinn Nåden. (2015) Pårørendes rolle som ressurs og samarbeidspartner: En studie med fokus på pårørende til pasienter med demenssykdom i sykehjem. Nordic Journal of Nursing Research 35:1, pages 57-64.
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Yeu-Hui Chuang, Jennifer A. Abbey, Yueh-Chen Yeh, Ing-Jy Tseng & Megan F. Liu. (2015) As they see it: A qualitative study of how older residents in nursing homes perceive their care needs. Collegian 22:1, pages 43-51.
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LISA CALLAGHAN & ANN-MARIE TOWERS. (2013) Feeling in control: comparing older people's experiences in different care settings. Ageing and Society 34:8, pages 1427-1451.
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Jaclyn Broadbent, Shikkiah de Quadros-Wander & Jane A. McGillivray. (2013) Perceived Control’s Influence on Wellbeing in Residential Care Versus Community Dwelling Older Adults. Journal of Happiness Studies 15:4, pages 845-855.
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Ann-Louise Glasberg, Tony Pellfolk & Lisbeth Fagerström. (2014) Zest for life among 65- and 75-year-olds in Northern Finland and Sweden - a cross-sectional study. Scandinavian Journal of Caring Sciences 28:2, pages 328-336.
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S. de Quadros-Wander, J. McGillivray & J. Broadbent. (2013) The influence of perceived control on subjective wellbeing in later life. Social Indicators Research 115:3, pages 999-1010.
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Dieneke Smit, Bernadette Willemse, Jacomine de Lange & Anne Margriet Pot. (2013) Wellbeing-enhancing occupation and organizational and environmental contributors in long-term dementia care facilities: an explorative study. International Psychogeriatrics 26:1, pages 69-80.
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J. Duxbury, D. Pulsford, M. Hadi & S. Sykes. (2013) Staff and relatives' perspectives on the aggressive behaviour of older people with dementia in residential care: a qualitative study. Journal of Psychiatric and Mental Health Nursing 20:9, pages 792-800.
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Gill Livingston & Claudia Cooper. 2013. Designing and Delivering Dementia Services. Designing and Delivering Dementia Services 3 16 .
Zoe C Nowell, Amanda Thornton & Jane Simpson. (2011) The subjective experience of personhood in dementia care settings. Dementia 12:4, pages 394-409.
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Leander K. Mitchell & Nancy A. Pachana. (2013) Rehabilitation in Residential Aged Care Facilities: Barriers and Facilitators in a Dementia Context. The Australian Journal of Rehabilitation Counselling 19:1, pages 57-63.
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Laura Sury, Kim Burns & Henry Brodaty. (2013) Moving in: adjustment of people living with dementia going into a nursing home and their families. International Psychogeriatrics 25:6, pages 867-876.
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Jennifer Mullin, Jane Simpson & Katherine Froggatt. (2011) Experiences of spouses of people with dementia in long-term care. Dementia 12:2, pages 177-191.
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Desiree Boughtwood, Christopher Shanley, Jon Adams, Yvonne Santalucia, Helena Kyriazopoulos, Jeffrey Rowland & Dimity Pond. (2011) The role of the bilingual/bicultural worker in dementia education, support and care. Dementia 12:1, pages 7-21.
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Ana Diaz-Ponce & Suzanne Cahill. 2013. Aging in European Societies. Aging in European Societies 97 115 .
Alisoun Milne. (2011) Living with dementia in a care home: capturing the experiences of residents. Quality in Ageing and Older Adults 12:2, pages 76-85.
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Erin Browning Ball. (2011) Contributing to the Interview of a Lifetime. The ASHA Leader 16:4, pages 30-31.
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Carmel Hughes, Kate Lapane & Ngaire Kerse. (2011) Prescribing for older people in nursing homes: challenges for the future. International Journal of Older People Nursing 6:1, pages 63-70.
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Angela van BaalenAd J.J.M. VingerhoetsHerman J. SixmaJacomine de Lange. (2010) How to evaluate quality of care from the perspective of people with dementia: An overview of the literature. Dementia 10:1, pages 112-137.
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Alisoun Milne. 2010. Principles and Practice of Geriatric Psychiatry. Principles and Practice of Geriatric Psychiatry 78 82 .
Wendy Moyle. (2010) Is quality of life being compromised in people with dementia in long-term care?. International Journal of Older People Nursing 5:3, pages 245-252.
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Eun-Hi KongJanet A. Deatrick & Lois K. Evans. (2009) The Experiences of Korean Immigrant Caregivers of Non-English-Speaking Older Relatives With Dementia in American Nursing Homes. Qualitative Health Research 20:3, pages 319-329.
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Henna Hasson & Judith E. Arnetz. (2010) A comparative study of nursing staff, care recipients’ and their relatives’ perceptions of quality of older people care. International Journal of Older People Nursing 5:1, pages 5-15.
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Tineke A. Abma, Christi J. Nierse & Guy A. M. Widdershoven. (2009) Patients as Partners in Responsive Research: Methodological Notions for Collaborations in Mixed Research Teams. Qualitative Health Research 19:3, pages 401-415.
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L. Clare, J. Rowlands, E. Bruce, C. Surr & M. Downs. (2008) The Experience of Living With Dementia in Residential Care: An Interpretative Phenomenological Analysis. The Gerontologist 48:6, pages 711-720.
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Birgitta Fläckman, Venke Sørlie & Mona Kihlgren. (2008) Unmet expectations: why nursing home staff leave care work. International Journal of Older People Nursing 3:1, pages 55-62.
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Carmel M Hughes. (2008) Compliance with Medication in Nursing Homes for Older People. Drugs & Aging 25:6, pages 445-454.
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G. J. Westerhof & C. L. M. Keyes. (2006) After the Fall of the Berlin Wall: Perceptions and Consequences of Stability and Change Among Middle-Aged and Older East and West Germans. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 61:5, pages S240-S247.
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Ladislav Volicer, Joyce Simard, Jessica Heartquist Pupa, Rachel Medrek & Mary Ellen Riordan. (2006) Effects of Continuous Activity Programming on Behavioral Symptoms of Dementia. Journal of the American Medical Directors Association 7:7, pages 426-431.
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