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Original Articles

Family involvement in residential long-term care: A synthesis and critical review

Pages 105-118 | Received 09 Sep 2003, Accepted 01 Feb 2004, Published online: 19 Oct 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (23)

Hannah Cross, Christopher J. Armitage, Piers Dawes, Iracema Leroi & Rebecca E. Millman. (2023) “We’re just winging it”. Identifying targets for intervention to improve the provision of hearing support for residents living with dementia in long-term care: an interview study with care staff. Disability and Rehabilitation 0:0, pages 1-11.
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Charlene H. Chu, Amanda V. Yee & Vivian Stamatopoulos. (2022) “It’s the worst thing I’ve ever been put through in my life”: the trauma experienced by essential family caregivers of loved ones in long-term care during the COVID-19 pandemic in Canada. International Journal of Qualitative Studies on Health and Well-being 17:1.
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Janice M. Keefe, Deanne Taylor, Pamela Irwin, Mary Jean Hande & Emily Hubley. (2022) Do Residential Long-Term Care Policies Support Family Involvement in Residents’ Quality of Life in Four Canadian Provinces?. Journal of Aging & Social Policy 0:0, pages 1-26.
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Marie Costa, Florian Correard, Maeva Montaleytang, Karine Baumstarck, Sandrine Loubière, Kahena Amichi, Patrick Villani, Stephane Honore, Aurélie Daumas & Pierre Verger. (2021) Acceptability of a Novel Telemedication Review for Older Adults in Nursing Homes in France: A Qualitative Study. Clinical Interventions in Aging 16, pages 19-34.
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Vivian J. Miller. (2020) The experience of transportation to visit a nursing home resident: A case study. Social Work in Health Care 59:5, pages 300-321.
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Stephanie A. Chamberlain, Wendy Duggleby, Pamela Teaster & Carole Estabrooks. (2020) Characteristics and unmet care needs of unbefriended residents in long-term care: a qualitative interview study. Aging & Mental Health 24:4, pages 659-667.
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Vivian J. Miller & Tyrone Hamler. (2019) A value-critical policy analysis of the nursing home reform act: a focus on care of African American and Latino residents. Social Work in Health Care 58:5, pages 471-493.
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Silvia Patricia Cury, Andrés Arias Astray & José Luis Palacios Gómez. (2019) Design of ISD-1: an instrument for social diagnosis in care homes for older persons. European Journal of Social Work 22:3, pages 511-525.
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Vivian J. Miller. (2019) Investigating Barriers to Family Visitation of Nursing Home Residents: A Systematic Review. Journal of Gerontological Social Work 62:3, pages 261-278.
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Candace Konnert, Calandra Speirs & Camille Mori. (2017) Conflict between Family Caregivers and Staff in Nursing Homes: Feasibility of the Daily Diary Method. Clinical Gerontologist 40:5, pages 352-361.
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Stephanie A. Chamberlain, Lori E. Weeks & Janice Keefe. (2017) Factors Influencing Family-Member Perception of “Homelikeness” in Long-Term Care Homes. Journal of Housing For the Elderly 31:4, pages 394-409.
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Linda A. Henkel, Alison Kris, Sarah Birney & Kaitlyn Krauss. (2017) The functions and value of reminiscence for older adults in long-term residential care facilities. Memory 25:3, pages 425-435.
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Elena Mariani, Myrra Vernooij-Dassen, Raymond Koopmans, Yvonne Engels & Rabih Chattat. (2017) Shared decision-making in dementia care planning: barriers and facilitators in two European countries. Aging & Mental Health 21:1, pages 31-39.
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Esther Iecovich. (2016) Live-in Care Workers in Sheltered Housing for Older Adults in Israel: The New Sheltered Housing Law. Journal of Aging & Social Policy 28:4, pages 277-291.
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Rajini Ramanathan & Paul Fisher. (2016) Singaporean Caregivers’ Experiences of Placing a Relative into Long Term Care. Clinical Gerontologist 39:3, pages 167-189.
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Clive Baldwin & Jennifer Estey. (2015) The Self and Spirituality: Overcoming Narrative Loss in Aging. Journal of Religion & Spirituality in Social Work: Social Thought 34:2, pages 205-222.
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Jenny Slape. (2014) Dementia and Palliative Care: The Spiritual Needs of Family Members. Journal of Religion, Spirituality & Aging 26:2-3, pages 215-230.
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Linda Høgsnes, Christina Melin-Johansson, Karl Gustaf Norbergh & Ella Danielson. (2014) The existential life situations of spouses of persons with dementia before and after relocating to a nursing home. Aging & Mental Health 18:2, pages 152-160.
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Katherina A. Nikzad-Terhune, Keith A. Anderson, Robert Newcomer & Joseph E. Gaugler. (2010) Do Trajectories of At-Home Dementia Caregiving Account for Burden After Nursing Home Placement? A Growth Curve Analysis. Social Work in Health Care 49:8, pages 734-752.
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Jill Manthorpe & Stephen Martineau. (2010) Deciding to Move to a Care Home: The Shared Territory of Advocacy and Social Work Support. Practice 22:4, pages 217-231.
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Daniel J. Van Dussen & Leslie A. Morgan. (2009) Gender and Informal Caregiving in CCRCs: Primary Caregivers or Support Networks?. Journal of Women & Aging 21:4, pages 251-265.
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JosephE. Gaugler. (2006) Family Involvement and Resident Psychosocial Status in Long-Term Care. Clinical Gerontologist 29:4, pages 79-98.
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Petra E M Tasseron-Dries, Hanneke J A Smaling, Miharu Nakanishi, Wilco P Achterberg & Jenny T van der Steen. (2023) What are best practices for involving family caregivers in interventions aimed at responsive behaviour stemming from unmet needs of people with dementia in nursing homes: a scoping review. BMJ Open 13:12, pages e071804.
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Sunil Bhar, Tanya E. Davison, Penelope Schofield, Stephen Quinn, Julie Ratcliffe, Joanna M. Waloszek, Sofie Dunkerley, Mark Silver, Jennifer Linossier, Deborah Koder, Rebecca Collins & Rachel Milte. (2023) Study protocol for ELders AT Ease (ELATE): a cluster randomised controlled trial of cognitive behaviour therapy to reduce depressive symptoms in aged care residents. BMC Geriatrics 23:1.
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Helen Rawson, Sarah Davies, Cherene Ockerby, Ruby Pipson, Ruth Peters, Elizabeth Manias & Bernice Redley. (2023) Work engagement, psychological empowerment and relational coordination in long‐term care: A mixed‐method examination of nurses' perceptions and experiences. Nursing Inquiry.
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Rosemary Frey & Deborah Balmer. (2023) Psychosocial well-being in Long-Term Care in the Wake of COVID-19: Findings from a Qualitative Study in New Zealand. Journal of Cross-Cultural Gerontology 38:3, pages 263-283.
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Lauren L Mitchell, Brenna Horn, Henry Stabler, Robyn W Birkeland, Colleen M Peterson, Elle A Albers & Joseph E Gaugler. (2023) Caring for a Relative With Dementia in Long-Term Care During the COVID-19 Pandemic: A Prospective Longitudinal Study. Innovation in Aging 7:4.
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Asif Khowaja, Nawal Syed, Kaitlyn Michener, Kristin Mechelse & Henriette Koning. (2023) Managers’ and Administrators’ Perspectives on Digital Technology Use in Regional Long-Term Care Homes During the COVID-19 Pandemic. Gerontology and Geriatric Medicine 9, pages 233372142211466.
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Nina Hovenga, Elleke Landeweer, Sytse Zuidema & Carlo Leget. (2022) Family involvement in nursing homes: an interpretative synthesis of literature. Nursing Ethics 29:6, pages 1530-1544.
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Sheryl Zimmerman. (2022) Families are Not Informal—They are an Essential Solution to the Workforce Crisis in Long-Term Care. Journal of the American Medical Directors Association 23:7, pages 1121-1122.
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David L. Weimer, Debra Saliba, Heather Ladd & Dana B. Mukamel. (2022) Who Visits Relatives in Nursing Homes? Predictors of at Least Weekly Visiting. Journal of the American Medical Directors Association 23:7, pages 1153-1158.e1.
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Hannah Cross, Piers Dawes, Emma Hooper, Christopher J. Armitage, Iracema Leroi & Rebecca E. Millman. (2022) Effectiveness of Hearing Rehabilitation for Care Home Residents With Dementia: A Systematic Review. Journal of the American Medical Directors Association 23:3, pages 450-460.e4.
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Iris van der Heide, Marianne J Heins, Hein P J van Hout, Robert A Verheij, Anneke L Francke & Karlijn J Joling. (2021) How Transitions in Dementia Care Trajectories Affect Health Problems in Partners: A Longitudinal Analysis With Linked Health and Administrative Data. The Journals of Gerontology: Series B 76:6, pages 1186-1194.
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Elisabeth Carlstedt & Håkan Jönson. (2019) Online representations of nursing-home life in Sweden: perspectives from staff on content, purpose and audience. Ageing and Society 40:12, pages 2754-2770.
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Eefje M. Sizoo, Annelie A. Monnier, Maryam Bloemen, Cees M.P.M. Hertogh & Martin Smalbrugge. (2020) Dilemmas With Restrictive Visiting Policies in Dutch Nursing Homes During the COVID-19 Pandemic: A Qualitative Analysis of an Open-Ended Questionnaire With Elderly Care Physicians. Journal of the American Medical Directors Association 21:12, pages 1774-1781.e2.
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Joost D. Wammes, Daisy Kolk, MSc, Judith H. van den Besselaar, MD, Janet L. MacNeil-Vroomen, PhD, Bianca M. Buurman-van Es, RN & Marjon van Rijn, PhD. (2020) Evaluating Perspectives of Relatives of Nursing Home Residents on the Nursing Home Visiting Restrictions During the COVID-19 Crisis: A Dutch Cross-Sectional Survey Study. Journal of the American Medical Directors Association 21:12, pages 1746-1750.e3.
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Sarah A. Wu, Jill Morrison‐Koechl, Susan E. Slaughter, Laura E. Middleton, Natalie Carrier, Carrie McAiney, Christina Lengyel & Heather Keller. (2020) Family member eating assistance and food intake in long‐term care: A secondary data analysis of the M3 Study. Journal of Advanced Nursing 76:11, pages 2933-2944.
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Stephanie A Chamberlain, Wendy Duggleby, Pamela B Teaster, Janet Fast & Carole A Estabrooks. (2020) Challenges in Caring for Unbefriended Residents in Long-term Care Homes: A Qualitative Study. The Journals of Gerontology: Series B 75:9, pages 2050-2061.
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Meng‐Rung Tsai, Hsiu‐Hsin Tsai, Yun‐Fang Tsai & Fang‐Yu Liao. (2020) “Tailoring homely meals”: Family members’ motivations underlying nursing home visits during residents’ meals. Japan Journal of Nursing Science 17:4.
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Ting‐Chun Yeh, Hui‐Chun Huang, Ting‐Yu Yeh, Wan‐Ting Huang, Hsiu‐Chen Huang, Yao‐Mao Chang & Wei Chen. (2020) Family members' concerns about relatives in long‐term care facilities: Acceptance of visiting restriction policy amid the COVID ‐19 pandemic . Geriatrics & Gerontology International 20:10, pages 938-942.
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Kristiana Ludlow, Kate Churruca, Louise A. Ellis, Virginia Mumford & Jeffrey Braithwaite. (2020) Family members' prioritisation of care in residential aged care facilities: A case for individualised care. Journal of Clinical Nursing 29:17-18, pages 3272-3285.
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Somayeh Faghanipour, Settimio Monteverde & Elizabeth Peter. (2020) COVID-19-related deaths in long-term care: The moral failure to care and prepare. Nursing Ethics 27:5, pages 1171-1173.
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Amy Restorick Roberts, Karen J Ishler & Kathryn Betts Adams. (2020) The Predictors of and Motivations for Increased Family Involvement in Nursing Homes. The Gerontologist 60:3, pages 535-547.
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