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Emma Harding, Samuel Rossi-Harries, Shaima Alterkawi, Claire Waddington, Adetola Grillo, Olivia Wood, Emilie V. Brotherhood, Gill Windle, Mary Pat Sullivan, Paul M. Camic, Joshua Stott & Sebastian J. Crutch. (2023) ‘The oxygen of shared experience’: exploring social support processes within peer support groups for carers of people with non-memory-led and inherited dementias. Aging & Mental Health 27:10, pages 1912-1928.
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Agnes Leu, Elena Guggiari, Daniel Phelps, Lennart Magnusson, Henk Herman Nap, Renske Hoefman, Feylyn Lewis, Sara Santini, Marco Socci, Licia Boccaletti, Valentina Hlebec, Tatjana Rakar, Tjaša Hudobivnik & Elizabeth Hanson. (2022) Cross-national Analysis of Legislation, Policy and Service Frameworks for Adolescent Young Carers in Europe. Journal of Youth Studies 25:9, pages 1215-1235.
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Courtney Poole & Tom G. Patterson. (2022) Experiences and Needs of Children Who Have a Parent with Young Onset Dementia: A Meta-ethnographic Review. Clinical Gerontologist 45:4, pages 750-762.
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Lilian Hartman, Crispin Jenkinson & David Morley. (2020) Young People’s Response to Parental Neurological Disorder: A Structured Review. Adolescent Health, Medicine and Therapeutics 11, pages 39-51.
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Geraldine Boyle. (2020) The Moral Resilience of Young People Who Care. Ethics and Social Welfare 14:3, pages 266-281.
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Gemma Gough & Anthea Gulliford. (2020) Resilience amongst young carers: investigating protective factors and benefit-finding as perceived by young carers. Educational Psychology in Practice 36:2, pages 149-169.
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Pat Sikes & Melanie Hall. (2017) ‘Every time I see him he’s the worst he’s ever been and the best he’ll ever be’: grief and sadness in children and young people who have a parent with dementia. Mortality 22:4, pages 324-338.
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Articles from other publishers (60)
Marianne Saragosa, Shoshana Hahn-Goldberg, Yona Lunsky, Jill I Cameron, Isabelle Caven, Susan Bookey-Bassett, Kristine Newman & Karen Okrainec. (2023) Young carers’ perspectives on navigating the healthcare system and co-designing support for their caring roles: a mixed-methods qualitative study. BMJ Open 13:12, pages e075804.
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Camille Bou. (2023) Factors Associated with the Quality-of-Life of Young Unpaid Carers: A Systematic Review of the Evidence from 2003 to 2019. International Journal of Environmental Research and Public Health 20:6, pages 4807.
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Ann‐Sofie Bergman & Ulrika Järkestig Berggren. (2022) Records of personal assistance applications reveal young carers: Viewed from the rights of the child. Children & Society 37:2, pages 485-501.
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Geraldine Boyle, Georgina Constantinou & Rebecca Garcia. (2022) Does gender influence children's and young people's caring? A qualitative, systematic review and meta‐ethnography. Children & Society 37:2, pages 404-423.
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Geraldine Boyle & Elizabeth Mozdiak. (2023) Young Adult Carers Services in England: Facilitating Choice over Future Caring?. Health & Social Care in the Community 2023, pages 1-8.
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Maddison Wiggins, Alison McEwen & Adrienne Sexton. (2023) Young-onset dementia: A systematic review of the psychological and social impact on relatives. Patient Education and Counseling 107, pages 107585.
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Vasileios Stamou, Jan Oyebode, Jenny La Fontaine, Mary O'Malley, Jacqueline Parkes & Janet Carter. (2023) Good practice in needs-based post-diagnostic support for people with young onset dementia: findings from the Angela Project. Ageing and Society, pages 1-24.
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Patricia Masterson-Algar, Kieren Egan, Greg Flynn, Gwenllian Hughes, Aimee Spector, Joshua Stott & Gill Windle. (2022) iSupport for Young Carers: An Adaptation of an e-Health Intervention for Young Dementia Carers. International Journal of Environmental Research and Public Health 20:1, pages 127.
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Ludmila Fleitas Alfonzo, Ankur Singh, George Disney, Jennifer Ervin & Tania King. (2022) Mental health of young informal carers: a systematic review. Social Psychiatry and Psychiatric Epidemiology 57:12, pages 2345-2358.
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Gill Windle, Catherine MacLeod, Katherine Algar-Skaife, Joshua Stott, Claire Waddington, Paul M. Camic, Mary Pat Sullivan, Emilie Brotherhood & Sebastian Crutch. (2022) A systematic review and psychometric evaluation of resilience measurement scales for people living with dementia and their carers. BMC Medical Research Methodology 22:1.
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Tim Moore, Helen M. Bourke‐Taylor, Natalie Greenland, Stewart McDougall, Luke Robinson, Ted Brown & Leah Bromfield. (2021) Young carers and educational engagement: Quantitative analysis of bursary applications in Australia. Health & Social Care in the Community 30:5.
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Hanne Groennestad & Wenche Malmedal. (2022) Having a Parent with Early-Onset Dementia: A Qualitative Study of Young Adult Children. Nursing Research and Practice 2022, pages 1-11.
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Cathal Blake & Louise Hopper. (2022) Childhood perspectives of parental young onset dementia: A qualitative data synthesis. Dementia 21:4, pages 1304-1327.
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Sara Santini, Barbara D’Amen, Marco Socci, Mirko Di Rosa, Elizabeth Hanson & Valentina Hlebec. (2022) Difficulties and Needs of Adolescent Young Caregivers of Grandparents in Italy and Slovenia: A Concurrent Mixed-Methods Study. International Journal of Environmental Research and Public Health 19:5, pages 2837.
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Sarah Bannon, Mira Reichman, Paula Popok, Juliana Wagner, Melissa Gates, Simrit Uppal, Lisa LeFeber, Bonnie Wong, Bradford C Dickerson & Ana-Maria Vranceanu. (2022) In It Together: A Qualitative Meta-Synthesis of Common and Unique Psychosocial Stressors and Adaptive Coping Strategies of Persons With Young-Onset Dementia and Their Caregivers. The Gerontologist 62:2, pages e123-e139.
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Silke Hoppe. (2021) Identity work of children with a parent with early-onset dementia in the Netherlands: Giving meaning through narrative construction. Dementia 21:1, pages 196-213.
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Barbara D’Amen, Marco Socci, Mirko Di Rosa, Giulia Casu, Licia Boccaletti, Elizabeth Hanson & Sara Santini. (2021) Italian Adolescent Young Caregivers of Grandparents: Difficulties Experienced and Support Needed in Intergenerational Caregiving—Qualitative Findings from a European Union Funded Project. International Journal of Environmental Research and Public Health 19:1, pages 103.
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Åke Grundberg, Jonas Sandberg & Åsa G Craftman. (2021) Childrens’ and young adults’ perspectives of having a parent with dementia diagnosis: A scoping review. Dementia 20:8, pages 2933-2956.
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Anna V Cartwright, Charlotte R Stoner, Richard D Pione & Aimee Spector. (2021) The experiences of those affected by parental young onset dementia: A qualitative systematic literature review. Dementia 20:7, pages 2618-2639.
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Hannah Wepf, Stephen Joseph & Agnes Leu. (2021) Pathways to Mental Well-Being in Young Carers: The Role of Benefit Finding, Coping, Helplessness, and Caring Tasks. Journal of Youth and Adolescence 50:9, pages 1911-1924.
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Fabiela Bigossi. (2021) Jeunes aidants : acteurs indispensables et invisibles de l’aide familiale. La revue internationale de l'éducation familiale n° 48:2, pages 133-157.
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Hannah Jelley, Liselot Kerpershoek, Frans Verhey, Claire Wolfs, Marjolein de Vugt, Anja Bieber, Astrid Stephan, Gabriele Meyer, Mona Michelet, Geir Selbaek, Britt-Marie Sjölund, Anders Sköldunger, Louise Hopper, Kate Irving, Maria Marques, Maria Conceição Balsinha, Manuel Gonçalves-Pereira, Daniel Michael Portolani, Orazio Zanetti & Bob Woods. (2019) Carers’ experiences of timely access to and use of dementia care services in eight European countries. Ageing and Society 41:2, pages 403-420.
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