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Original Articles

Caring and coping: The dementia caregivers

, , , , &
Pages 702-711 | Received 14 Sep 2010, Accepted 05 Feb 2011, Published online: 03 May 2011

Keep up to date with the latest research on this topic with citation updates for this article.

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Marianna Tsatali, Maria Egkiazarova, Maria Toumpalidou, Konstantina Karagiozi, Petrina Margaritidou & Magda Tsolaki. (2022) Greek Adaptation of the Positive Aspects of Caregiving (PAC) Scale in Dementia Caregivers. Clinical Gerontologist 45:3, pages 538-547.
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Nicole B. Haverstock, Joelle C. Ruthig & Judith G. Chipperfield. (2020) Primary and secondary control strategies and psychological well-being among familial caregivers of older adults with dementia. The Journal of Social Psychology 160:1, pages 61-74.
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Hiroshi Morimoto, Nobuo Furuta, Mitsue Kono & Mayumi Kabeya. (2019) Stress-buffering Effect of Coping Strategies on Interrole Conflict among Family Caregivers of People with Dementia. Clinical Gerontologist 42:1, pages 34-46.
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Philia Issari & Christina Tsaliki. (2017) Stories of family caregivers of people with dementia in Greece: Implications for counselling. European Journal of Psychotherapy & Counselling 19:3, pages 290-306.
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Rabia Khalaila & Miri Cohen. (2016) Emotional suppression, caregiving burden, mastery, coping strategies and mental health in spousal caregivers. Aging & Mental Health 20:9, pages 908-917.
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Pasquale De Fazio, Paola Ciambrone, Gregorio Cerminara, Elvira Barbuto, Antonella Bruni, Patrizia Gentile, Amalia Talarico, Roberto Lacava, Pietro Gareri & Cristina Segura-García. (2015) Depressive symptoms in caregivers of patients with dementia: demographic variables and burden. Clinical Interventions in Aging 10, pages 1085-1090.
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Christine M. Snyder, Elizabeth Fauth, Joseph Wanzek, Kathleen W. Piercy, Maria C. Norton, Chris Corcoran, Peter V. Rabins, Constantine G. Lyketsos & JoAnn T. Tschanz. (2015) Dementia caregivers’ coping strategies and their relationship to health and well-being: the Cache County Study. Aging & Mental Health 19:5, pages 390-399.
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Frøydis Kristine Bruvik, Ingun Dina Ulstein, Anette Hylen Ranhoff & Knut Engedal. (2013) The effect of coping on the burden in family carers of persons with dementia. Aging & Mental Health 17:8, pages 973-978.
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Carlos Chiatti, Mirko Di Rosa, Maria Gabriella Melchiorre, Lamberto Manzoli, JosephM. Rimland & Giovanni Lamura. (2013) Migrant care workers as protective factor against caregiver burden: results from a longitudinal analysis of the EUROFAMCARE study in Italy. Aging & Mental Health 17:5, pages 609-614.
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Renée Benedetti, Lynne Cohen & Myra Taylor. (2013) “There's really no other option”: Italian Australians’ Experiences of Caring for a Family Member With Dementia. Journal of Women & Aging 25:2, pages 138-164.
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Articles from other publishers (45)

Fereshteh Zamani‐Alavijeh, Shakiba Zahed, Maryam Emami, Shahrzad Bazargan‐Hejazi, Majid Barekatain, Akbar Hassanzadeh & Ahmad Ali Eslami. (2023) The effect of educational intervention based on the Progressively Lowered Stress Threshold extended model on the process of caregiving for people with dementia. Psychogeriatrics 23:6, pages 1019-1026.
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Andrea Scerbe, Megan E. O’Connell, Arlene Astell, Debra Morgan, Julie Kosteniuk, Ivan Panyavin, Andrea DesRoches & Claire Webster. (2023) Digital tools for delivery of dementia education for caregivers of persons with dementia: A systematic review and meta-analysis of impact on caregiver distress and depressive symptoms. PLOS ONE 18:5, pages e0283600.
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Mijung Lee & Ishan C. Williams. (2022) Predictive factors on caregiver burden in caregivers of individuals with cognitive impairment. International Journal of Care Coordination 26:1, pages 34-43.
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Franziska Laporte Uribe. 2023. Normenwandel in der alternden Gesellschaft. Normenwandel in der alternden Gesellschaft 71 84 .
Oladele Atoyebi, Janice J. Eng, François Routhier, Marie-Louise Bird & W. Ben Mortenson. (2022) A systematic review of systematic reviews of needs of family caregivers of older adults with dementia. European Journal of Ageing 19:3, pages 381-396.
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Wen Juan Ma, Bin He, Yu Huan Wang, Wei Huang & Jia Zhou. (2021) Relationships between Kazakh elders' disability severity and informal care time in far north‐western low‐income areas in China: The mediating roles of caregiver health and home‐based care quality. International Journal of Nursing Practice 28:3.
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María Nieves Rodríguez-Madrid, María del Río-Lozano, Rosario Fernández-Peña & María del Mar García-Calvente. (2021) Changes in Caregiver Personal Support Networks: Gender Differences and Effects on Health (CUIDAR-SE Study). International Journal of Environmental Research and Public Health 18:21, pages 11723.
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Lili Yang, Huiling Ye & Qiuhua Sun. (2020) Family caregivers' experiences of interaction with people with mild‐to‐moderate dementia in China: A qualitative study. International Journal of Nursing Practice 27:4.
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Rachel Clarke, Nicolas Farina, Henglien Lisa Chen & Jennifer M. Rusted. (2020) Quality of Life and Well-being of Carers of People With Dementia: Are There Differences Between Working and Nonworking Carers? Results From the IDEAL Program. Journal of Applied Gerontology 40:7, pages 752-762.
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Bente Nordtug, Wenche K Malmedal, Rigmor Einang Alnes, Kari Blindheim, Gunn Steinsheim & Aud Moe. (2021) Informal caregivers and persons with dementia’s everyday life coping. Health Psychology Open 8:1, pages 205510292110009.
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Ipsita Basu & Susmita Mukhopadhyay. 2021. Dementia Care. Dementia Care 199 226 .
Ingrid L. Potgieter. 2021. Agile Coping in the Digital Workplace. Agile Coping in the Digital Workplace 57 78 .
Clotilde Larochette, Emilie Wawrziczny, David Papo, Florence Pasquier & Pascal Antoine. (2019) An acceptance, role transition, and couple dynamics-based program for caregivers: A qualitative study of the experience of spouses of persons with young-onset dementia. Dementia 19:8, pages 2714-2731.
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Hao Fong Sit, Lei Huang, Kay Chang, Wai I Chau & Brian J. Hall. (2020) Caregiving burden among informal caregivers of people with disability. British Journal of Health Psychology 25:3, pages 790-813.
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Anna Laura Luiu, Nicolas Favez, Mireille Betrancourt, Nicolas Szilas & Frederic Ehrler. (2020) Family Relationships and Alzheimer’s Disease: A Systematic Review. Journal of Alzheimer's Disease 76:4, pages 1595-1608.
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Carla J Thompson, Nancy Bridier, Lesley Leonard & Steve Morse. (2018) Exploring stress, coping, and decision-making considerations of Alzheimer’s family caregivers. Dementia 19:6, pages 1907-1926.
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Catriona George & Nuno Ferreira. (2020) Carer burden and positive gain in dementia. Working with Older People 24:2, pages 113-123.
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Ipsita Basu & Susmita Mukhopadhyay. (2019) Factors related to adverse mental health condition of demented family caregivers: A study in West Bengal, India. Anthropological Review 82:4, pages 373-388.
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E. Monfort. (2019) Comment évoluent les relations entre patients déments et proches aidants. NPG Neurologie - Psychiatrie - Gériatrie 19:112, pages 227-232.
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Tuğba Atak & Mustafa ÖZEKES. (2019) Demanslı Hastalarla İlgilenen Aile Üyelerinin Bakım Veren Yükünün İncelenmesi. Ege Eğitim Dergisi, pages 145-161.
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Anne Marie Sandvoll, Terese Bjordal, Ingvild Hollekve & Merete Johnsen Dale. (2019) Tailor-made services: Cooperation and supervision are essential for older people with dementia and challenging behaviour. Scandinavian Psychologist 6.
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Jacqueline van der Lee, Ton J. E. M. Bakker & Rose-Marie Dröes. (2018) Recovery from burden: informal caregiver profiles that predict treatment success. International Psychogeriatrics 31:3, pages 317-329.
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María del Carmen Pérez‐Fuentes, María del Mar Molero Jurado & José Jesús Gázquez Linares. 2018. Caregiving and Home Care. Caregiving and Home Care.
Sandrine Pihet, Christina Moses Passini & Manuela Eicher. (2017) Good and Bad Days. Nursing Research 66:6, pages 421-431.
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Alejandra Morlett Paredes, Paul B Perrin, Silvina V Peralta, Miriam E Stolfi, Eliana Morelli & Juan Carlos Arango-Lasprilla. (2015) Structural equation model linking dementia cognitive functioning, caregiver mental health, burden, and quality of informal care in Argentina. Dementia 16:6, pages 766-779.
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Wen Ting Wang, Bin He, Yu Huan Wang, Mei Yan Wang, Xue Feng Chen, Fu Chen Wu & Xue Yang. (2017) The relationships among Muslim Uyghur and Kazakh disabled elders' life satisfaction, activity of daily living, and informal family caregiver's burden, depression, and life satisfaction in far western China: A structural equation model. International Journal of Nursing Practice 23:2, pages e12521.
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Francesca Rosa, Annamaria Bagnasco, Giuseppe Aleo, Sally Kendall & Loredana Sasso. (2017) Resilience as a concept for understanding family caregiving of adults with Chronic Obstructive Pulmonary Disease (COPD): an integrative review. Nursing Open 4:2, pages 61-75.
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Kyeonga Yoon. (2017) Effects of Caregiving Burden on Gain and Family Quality of Life Among Dementia Family Caregivers: The Moderating Role of Coping Strategies. Korean Journal of Gerontological Social Welfare 72:1, pages 257-282.
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Emilie Wawrziczny, Florence Pasquier, Francine Ducharme, Marie-Jeanne Kergoat & Pascal Antoine. (2017) Do spouse caregivers of persons with early- and late-onset dementia cope differently? A comparative study. Archives of Gerontology and Geriatrics 69, pages 162-168.
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Melinde Coetzee, Anta A. Marx & Ingrid L. Potgieter. (2017) Examining the construct validity of the positive coping behavioural inventory. SA Journal of Industrial Psychology 43:0.
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Kuem Sun Han & Hee Su Lim. (2016) File-up Stress, Family Hardiness and Mental Health Status in Family Caregivers Caring for Elderly Dementia . Korean Journal of Stress Research 24:4, pages 309-316.
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Camille Branger, Rachel Burton, Megan E O’Connell, Norma Stewart & Debra Morgan. (2014) Coping with cognitive impairment and dementia: Rural caregivers’ perspectives. Dementia 15:4, pages 814-831.
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Débora Dalpai, Ramon Castro Reis & Analuiza Camozzato de Pádua. (2016) Effect of caregiver characteristics on dementia management strategies. Dementia & Neuropsychologia 10:2, pages 143-147.
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Jane Tuomola, Jiaying Soon, Paul Fisher & Philip Yap. (2016) Lived Experience of Caregivers of Persons with Dementia and the Impact on their Sense of Self: A Qualitative Study in Singapore. Journal of Cross-Cultural Gerontology 31:2, pages 157-172.
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Alexandra Wennberg, Cheryl Dye, Blaiz Streetman-Loy & Hiep Pham. (2015) Alzheimer's Patient Familial Caregivers: A Review of Burden and Interventions. Health & Social Work 40:4, pages e162-e169.
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Injeong Lee. (2014) The Effects of Stressors and Coping on Depression of the Oldest Old. Health and Social Welfare Review 34:4, pages 264-294.
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Kuldip Kumar & Manushree Gupta. (2014) Clinical and socio-demographic determinants of psychological health and burden in family caregivers of patients with unipolar depression. Asian Journal of Psychiatry 9, pages 51-56.
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Unchulee Taemeeyapradit, Dussadee Udomittipong & Sawitri Assanangkornchai. (2014) Development of a burden scale for caregivers of dementia patients. Asian Journal of Psychiatry 8, pages 22-25.
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Philippe Thomas, Remy Billon, Jean Albert Chaumier, Geraldine Barruche & Cyril Hazif Thomas. (2014) Psycho-Social Hazards for Staff in Geriatrics and Geriatric Psychiatry. Open Journal of Psychiatry 04:02, pages 91-98.
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Ryan Li, Claudia Cooper & Gill Livingston. (2014) Relationship of coping style to mood and anxiety disorders in dementia carers. Current Opinion in Psychiatry 27:1, pages 52-56.
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Carlotta Franchi, Francesca Arosio, Codjo Djignefa Djade, Gabriella Salvini Porro & Alessandro Nobili. (2013) Caregivers’ perceptions of the therapeutic benefits of drug treatments for dementia. Aging Clinical and Experimental Research 25:6, pages 677-683.
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Nicola T. Lautenschlager, Alexander F. Kurz, Samantha Loi & Barbara Cramer. (2013) Personality of mental healthcaregivers. Current Opinion in Psychiatry 26:1, pages 97-101.
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