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Aging & Mental Health Volume 15, 2011 - Issue 8
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Original Articles

A caregiver perspective of how Alzheimer's disease and related disorders affect couple intimacy

Steven M. Harris Department of Family Social Science, University of Minnesota, St. Paul, MN, USACorrespondence[email protected]
,
Mark S. Adams Counseling and Psychological Services Center, Weber State University, Ogden, UT, USA
,
Max Zubatsky Department of Family Social Science, University of Minnesota, St. Paul, MN, USA
&
Mark White New Hope Christian Counseling, Lubbock, TX, USA
Pages 950-960 | Received 21 Dec 2010, Accepted 31 Mar 2011, Published online: 04 Jul 2011

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Linn J. Sandberg. (2023) Too late for love? Sexuality and intimacy in heterosexual couples living with an Alzheimer’s disease diagnosis. Sexual and Relationship Therapy 38:1, pages 118-139.
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Aimee E. Miller-Ott, R. Amanda Cooper & Evan Lobdell. (2022) “It Just Shifted Everything in Our Family Dynamic:” Recalibration within the Family System in Response to Alzheimer’s Disease. Journal of Family Communication 22:2, pages 156-174.
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Nancy Couture, Patrick Villeneuve & Sophie Éthier. (2021) Five Functions of Art Therapy Supporting Couples Affected by Alzheimer’s Disease. Art Therapy 38:2, pages 69-77.
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Alessandro Bosco, Justine Schneider, Donna Maria Coleston-Shields, Lidia Sousa & Martin Orrell. (2019) Dyadic construction of dementia: meta-ethnography and behaviour-process synthesis. Aging & Mental Health 23:6, pages 651-659.
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Cornelia R. Karger. (2018) Emotional experience in patients with advanced Alzheimer's disease from the perspective of families, professional caregivers, physicians, and scientists. Aging & Mental Health 22:3, pages 316-322.
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Kristen Holdsworth & Marita McCabe. (2018) The Impact of Dementia on Relationships, Intimacy, and Sexuality in Later Life Couples: An Integrative Qualitative Analysis of Existing Literature. Clinical Gerontologist 41:1, pages 3-19.
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Linda Høgsnes, Christina Melin-Johansson, Karl Gustaf Norbergh & Ella Danielson. (2014) The existential life situations of spouses of persons with dementia before and after relocating to a nursing home. Aging & Mental Health 18:2, pages 152-160.
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Articles from other publishers (40)

Ifah Arbel, Jill I. Cameron, Barry Trentham & Deirdre R. Dawson. (2023) A narrative inquiry into how oldest-old care-givers of people with dementia manage age-related care-giving challenges. Ageing and Society, pages 1-30.
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Susan Carol Albert, José Eduardo Martinelli & Maria Silvia Costa Pessoa. (2023) Couples living with Alzheimer’s disease talk about sex and intimacy: A phenomenological qualitative study. Dementia 22:2, pages 390-404.
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Irina Catrinel CrăciunIrina Catrinel Crăciun. 2023. Förderung der Entwicklung im mittleren und höheren Lebensalter. Förderung der Entwicklung im mittleren und höheren Lebensalter 309 342 .
Irina Catrinel CrăciunIrina Catrinel Crăciun. 2023. Fostering Development in Midlife and Older Age. Fostering Development in Midlife and Older Age 263 291 .
Päivi Eskola, Outi Jolanki & Mari Aaltonen. (2022) Through Thick and Thin: The Meaning of Dementia for the Intimacy of Ageing Couples. Healthcare 10:12, pages 2559.
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Mia I Loft, Rikke Guldager & Ingrid Poulsen. (2022) Caring from a distance: how a COVID-19 visitor ban affects relatives when a loved one is admitted to a neurological or neurosurgical ward. Journal of Research in Nursing 27:6, pages 532-542.
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Frauke Claes & Paul Enzlin. (2022) Dementia and Sexuality: A Story of Continued Renegotiation. The Gerontologist.
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Siti Khadijah Binti Mohamad Asfia, Jessica Bucholc, Nikki McCaffrey, Cathrine Mihalopoulos, Anne Muldowney & Lidia Engel. (2022) Understanding the Quality of Life Impacts of Providing Informal Care to People with Dementia: A Systematic Review of Qualitative Studies. Journal of Alzheimer's Disease 88:4, pages 1293-1309.
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Mika Musgrave-Takeda, Miyuki Ishibashi & Harue Masaki. (2022) The experience of being a spouse of a person with dementia in respect to their marital relationship in Japan. Dementia 21:6, pages 2020-2034.
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Susan Carol Albert, José Eduardo Martinelli & Maria Silvia Costa Pessoa. (2022) Dementia and its impacts on the intimate, sexual couple relationship: A systematic review of qualitative research studies. Dementia 21:4, pages 1449-1466.
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R. Amanda Cooper & Margaret J. Pitts. (2021) Caregiving spouses’ experiences of relational uncertainty and partner influence in the prolonged relational transition of Alzheimer’s disease and related dementias. Journal of Social and Personal Relationships 39:5, pages 1434-1459.
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Isabelle G. Velloze, Dylan J. Jester, Dilip V. Jeste & Brent T. Mausbach. (2022) Interventions to reduce loneliness in caregivers: An integrative review of the literature. Psychiatry Research 311, pages 114508.
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R. Amanda Cooper, Margaret J. Pitts & Jake Harwood. (2021) “That's when the relationship shifted”: Relational and communicative turning points in Alzheimer's disease and related dementias. Personal Relationships 29:1, pages 217-235.
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Carmelle Peisah, Liat Ayalon, Hilde Verbeek, Susan Mary Benbow, Esther Wiskerke, Kiran Rabheru & Oluwatoyin Sorinmade. (2021) Sexuality and the Human Rights of Persons With Dementia. The American Journal of Geriatric Psychiatry 29:10, pages 1021-1026.
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Gareth O’Rourke, Liz Lloyd, Agnes Bezzina, Ailsa Cameron, Tricia Jessiman & Randall Smith. (2020) Supporting Older Co-Resident Carers of Older People – The Impact of Care Act Implementation in Four Local Authorities in England. Social Policy and Society 20:3, pages 371-384.
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Caroline J. Deutsch, Noelle Robertson & Janis M. Miyasaki. (2021) Psychological Impact of Parkinson Disease Delusions on Spouse Caregivers: A Qualitative Study. Brain Sciences 11:7, pages 871.
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Anne Fee, Sonja McIlfatrick & Assumpta Ryan. (2019) ‘When it faded in her … it faded in me’: a qualitative study exploring the impact of care-giving on the experience of spousal intimacy for older male care-givers. Ageing and Society 41:1, pages 29-50.
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Clotilde Larochette, Emilie Wawrziczny, David Papo, Florence Pasquier & Pascal Antoine. (2019) An acceptance, role transition, and couple dynamics-based program for caregivers: A qualitative study of the experience of spouses of persons with young-onset dementia. Dementia 19:8, pages 2714-2731.
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Isabelle Van Pevenage, Chloé Dauphinais, Didier Dupont & Valérie Bourgeois-Guérin. (2020) Proche aidance et conjugalité aux âges avancés : motivations et postures. Gérontologie et société vol. 42 / n° 161:1, pages 37-54.
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Matija Sinković & Lauren Towler. (2018) Sexual Aging: A Systematic Review of Qualitative Research on the Sexuality and Sexual Health of Older Adults. Qualitative Health Research 29:9, pages 1239-1254.
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Yagmur Ar & A Nuray Karanci. (2017) Turkish Adult Children as Caregivers of Parents with Alzheimer’s Disease: Perceptions and Caregiving Experiences. Dementia 18:3, pages 882-902.
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Vaitsa Giannouli. 2019. Social Issues Surrounding Harassment and Assault. Social Issues Surrounding Harassment and Assault 625 639 .
Erin R. Conway, Brittany Watson, Gemma Tatangelo & Marita McCabe. (2018) Is it all bleak? A systematic review of factors contributing to relationship change in dementia. International Psychogeriatrics 30:11, pages 1619-1637.
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Kathy Kniepmann & Stephanie Kerr. (2018) Sexuality and Intimacy Following Stroke: Perspectives of Partners. Sexuality and Disability 36:3, pages 219-230.
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Sabina Vatter, Kathryn R McDonald, Emma Stanmore, Linda Clare, Sheree A McCormick & Iracema Leroi. (2018) A qualitative study of female caregiving spouses’ experiences of intimate relationships as cognition declines in Parkinson’s disease. Age and Ageing 47:4, pages 604-610.
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Vaitsa Giannouli. 2018. Social, Psychological, and Forensic Perspectives on Sexual Abuse. Social, Psychological, and Forensic Perspectives on Sexual Abuse 207 221 .
Anneli Sarvimäki, Bettina Stenbock-Hult, Eija Sundell & Christine Oesch-Börman. (2017) The vulnerability of family caregivers in relation to vulnerability as understood by nurses. Scandinavian Journal of Caring Sciences 31:1, pages 112-119.
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Lieslot Mahieu, Luc Anckaert & Chris Gastmans. (2014) Intimacy and Sexuality in Institutionalized Dementia Care: Clinical-Ethical Considerations. Health Care Analysis 25:1, pages 52-71.
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Briony Dow & Sue Malta. (2017) People with Alzheimer's disease and their spouse-caregivers: differences in perceptions of sexual satisfaction?. International Psychogeriatrics 29:2, pages 181-183.
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Emilie Wawrziczny, Guillaume Berna, Francine Ducharme, Marie-Jeanne Kergoat, Florence Pasquier & Pascal Antoine. (2016) Modeling the Distress of Spousal Caregivers of People with Dementia. Journal of Alzheimer's Disease 55:2, pages 703-716.
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Shari Brotman, Jennifer Drummond, Marjorie Silverman, Tamara Sussman, Pam Orzeck, Lucy Barylak, Isabelle Wallach & Veronique Billette. (2016) Talking about Sexuality and Intimacy with Women Spousal Caregivers: Perspectives of Service Providers. Health & Social Work 41:4, pages 263-270.
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Margaret Pozzebon, Jacinta Douglas & David Ames. (2016) Spouses’ experience of living with a partner diagnosed with a dementia: a synthesis of the qualitative research. International Psychogeriatrics 28:4, pages 537-556.
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Bruce D. Walmsley & Lynne McCormack. (2014) Synthesis of Meaning. Journal of Humanistic Psychology 56:2, pages 122-143.
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Siren Eriksen, Anne-Sofie Helvik, Lene Kristin Juvet, Kirsti Skovdahl, Linn Hege Førsund & Ellen Karine Grov. (2016) The Experience of Relations in Persons with Dementia: A Systematic Meta-Synthesis. Dementia and Geriatric Cognitive Disorders 42:5-6, pages 342-368.
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KAITLYN P. ROLAND & NEENA L. CHAPPELL. (2014) A typology of care-giving across neurodegenerative diseases presenting with dementia. Ageing and Society 35:9, pages 1905-1927.
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Hazel Thornton & Rosslyn Offord. (2015) Non-pharmacological management of sexual behaviours that challenge in dementia. Reviews in Clinical Gerontology 25:3, pages 194-201.
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Andrew S. London & Janet M. Wilmoth. 2014. Family Relationships and Familial Responses to Health Issues. Family Relationships and Familial Responses to Health Issues 103 134 .
Sophie Éthier, Catherine Gagnon-Grégoire & Janine Dupont. (2015) Le travail des baluchonneuses accompagnant une personne atteinte de démence de type Alzheimer : une responsabilité morale ?. Service social 60:2, pages 71-85.
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J. D. Drummond, Shari Brotman, Marjorie Silverman, Tamara Sussman, Pam Orzeck, Lucy Barylak & Isabelle Wallach. (2013) The Impact of Caregiving. Affilia 28:4, pages 415-428.
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Carmita H.N. Abdo. (2013) Sexuality and couple intimacy in dementia. Current Opinion in Psychiatry 26:6, pages 593-598.
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