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Original Articles

A wish to know but not always tell – couples living with dementia talk about disclosure preferences

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Pages 157-167 | Received 02 Mar 2012, Accepted 10 Oct 2012, Published online: 21 Nov 2012

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (3)

Hannah Wehrmann, Bernhard Michalowsky, Simon Lepper, Wiebke Mohr, Anika Raedke & Wolfgang Hoffmann. (2021) Priorities and Preferences of People Living with Dementia or Cognitive Impairment – A Systematic Review. Patient Preference and Adherence 15, pages 2793-2807.
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Manik Gopinath, Sheila Peace & Caroline Holland. (2018) Conserving Habitus: Home, Couplehood and Dementia. Home Cultures 15:3, pages 223-263.
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Elizabeth Peel. (2015) Diagnostic communication in the memory clinic: a conversation analytic perspective. Aging & Mental Health 19:12, pages 1123-1130.
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Articles from other publishers (24)

C. Meis & A. Corvol. (2023) Annoncer une maladie d’Alzheimer : pourquoi et comment ?. La Revue de Médecine Interne 44:3, pages 139-142.
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Emilie Wawrziczny, Sandrine Picard, Amandine Buquet, Elodie Traversac, François Puisieux, Florence Pasquier, Dominique Huvent-Grelle & Karyn Doba. (2022) Hypnosis Intervention for Couples Confronted with Alzheimer’s Disease: Promising Results of a First Exploratory Study. Journal of Alzheimer's Disease 89:4, pages 1351-1366.
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Armin Nowroozpoor, Jeff Dussetschleger, William Perry, Mary Sano, Amy Aloysi, Michael Belleville, Alexandria Brackett, Jon Mark Hirshon, William Hung, Joan Michelle Moccia, Ugochi Ohuabunwa, Manish N. Shah, Ula Hwang, Neelum Aggarwal, M. Fernanda Bellolio, Marian (Emmy) Betz, Kevin Biese, Cynthia Brandt, Stacey Bruursema, Ryan Carnahan, Christopher R. Carpenter, David Carr, Jennie Chin-Hansen, Morgan Daven, Nida Degesys, Scott M. Dresden, Michael Ellenbogen, Jason Falvey, Beverly Foster, Cameron Gettel, Andrea Gilmore-Bykovskyi, Elizabeth Goldberg, Jin Han, James Hardy, S. Nicole Hastings, Teresita Hogan, Eric Isaacs, Naveena Jaspal, Jerry Johnson, Kathleen Kelly, Maura Kennedy, Amy Kind, Michael Malone, Monica Moreno, Nancy Morrow-Howell, Brenda Oiyemhonlan, Jason Resendez, Kristin L. Rising, Bob Savage, Joe Suyama, Jeremy Swartzberg, Vaishal Tolia, Allan Vann, Teresa Webb & Sandra Weintraub. (2022) Detecting Cognitive Impairment and Dementia in the Emergency Department: A Scoping Review. Journal of the American Medical Directors Association 23:8, pages 1314.e31-1314.e88.
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Susan Carol Albert, José Eduardo Martinelli & Maria Silvia Costa Pessoa. (2022) Dementia and its impacts on the intimate, sexual couple relationship: A systematic review of qualitative research studies. Dementia 21:4, pages 1449-1466.
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Helga Merl, Kathleen Veronica Doherty, Jane Alty & Katharine Salmon. (2022) Truth, hope and the disclosure of a dementia diagnosis: A scoping review of the ethical considerations from the perspective of the person, carer and clinician. Dementia 21:3, pages 1050-1068.
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Marie Tyrrell, Ragnhild Hedman, Bjöörn Fossum, Kirsti Skovdahl, Dorota Religa & Pernilla Hillerås. (2021) Feeling valued versus abandoned: Voices of persons who have completed a cognitive assessment. International Journal of Older People Nursing 16:6.
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Ingrid Hellström & Sandra Torres. (2021) Couplehood as a compass: Spousal perspectives on the diminished everyday competence of partners. Dementia 20:7, pages 2380-2392.
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Hanan AboJabel, Einat Argavan, Sharon Hassin-Baer, Rivka Inzelberg & Perla Werner. (2021) Exploring the perceptions and stigmatizing experiences of Israeli family caregivers of people with Parkinson's disease. Journal of Aging Studies 56, pages 100910.
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Vanessa Giffoni de Medeiros Nunes Pinheiro Peixoto, Rosiane Viana Zuza Diniz & Clécio de Oliveira Godeiro Junior. (2020) SPIKES-D: a proposal to adapt the SPIKES protocol to deliver the diagnosis of dementia. Dementia & Neuropsychologia 14:4, pages 333-339.
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Jong-min Jeong. (2019) The Affective Creativity of a Couple in Dementia Care. Culture, Medicine, and Psychiatry 44:3, pages 360-381.
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Rosalie Ashworth. (2017) Perceptions of stigma among people affected by early- and late-onset Alzheimer’s disease. Journal of Health Psychology 25:4, pages 490-510.
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Cate Bailey, Jemima Dooley & Rose McCabe. (2018) ‘How do they want to know?’ Doctors’ perspectives on making and communicating a diagnosis of dementia. Dementia 18:7-8, pages 3004-3022.
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Craig Sinclair, Kate Gersbach, Michelle Hogan, Romola S. Bucks, Kirsten A. Auret, Josephine M. Clayton, Meera Agar & Sue Kurrle. (2018) How couples with dementia experience healthcare, lifestyle, and everyday decision-making. International Psychogeriatrics 30:11, pages 1639-1647.
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Therése Bielsten, Reena Lasrado, John Keady, Agneta Kullberg & Ingrid Hellström. (2018) Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia. Qualitative Health Research 28:11, pages 1719-1734.
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Caroline Desprès. (2018) Dissimuler ou mentir ?To hide or to lie? Creating meaning and identity in Alzheimer disease. Anthropologie et Santé:16.
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Deborah O'Connor, Jim Mann & Elaine Wiersma. (2018) Stigma, discrimination and agency: Diagnostic disclosure as an everyday practice shaping social citizenship. Journal of Aging Studies 44, pages 45-51.
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Silke Hoppe. (2017) A Sorrow Shared is a Sorrow Halved: The Search for Empathetic Understanding of Family Members of a Person with Early-Onset Dementia. Culture, Medicine, and Psychiatry 42:1, pages 180-201.
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Lars-Christer Hydén, Eleonor Antelius, Charlotta Plejert, Danielle Jones & Elizabeth Peel. 2018. Living With Dementia. Living With Dementia 68 92 .
Natalie Zizzo, Emily Bell, Anne-Louise Lafontaine & Eric Racine. (2017) Examining chronic care patient preferences for involvement in health-care decision making: the case of Parkinson's disease patients in a patient-centred clinic. Health Expectations 20:4, pages 655-664.
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Anette Hansen, Solveig Hauge & Ådel Bergland. (2016) Balancing the use of language to enable care: a qualitative study of oral and written language used in assessments and allocations of community healthcare services for persons with dementia. BMC Health Services Research 16:1.
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Ingrid Hellström & Sandra Torres. (2016) The “not yet” horizon: Understandings of the future amongst couples living with dementia. Dementia 15:6, pages 1562-1585.
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Chris Gilleard & Paul Higgs. 2016. The Palgrave Handbook of the Philosophy of Aging. The Palgrave Handbook of the Philosophy of Aging 445 468 .
Kathy Murphy, Fionnuala Jordan, Andrew Hunter, Adeline Cooney & Dympna Casey. (2014) Articulating the strategies for maximising the inclusion of people with dementia in qualitative research studies. Dementia 14:6, pages 800-824.
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Maree Mastwyk, David Ames, Kathryn A. Ellis, Edmond Chiu & Briony Dow. (2014) Disclosing a dementia diagnosis: what do patients and family consider important?. International Psychogeriatrics 26:8, pages 1263-1272.
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