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Aging & Mental Health Volume 21, 2017 - Issue 11
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Original Articles

Psychological well-being over time among informal caregivers caring for persons with dementia living at home

Connie LethinDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, SwedenCorrespondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-2523-8440View further author information
ORCID Icon,
Anna Renom-GuiterasUniversity of Witten/Herdecke, Witten, GermanyView further author information
,
Sandra ZwakhalenDepartment of Health Services Research, Maastricht University, Maastricht, The NetherlandsView further author information
,
Maria Soto-MartinAlzheimer's Disease Research and Clinical Centre in Toulouse, University Hospital, Toulouse, FranceView further author information
,
Kai SaksDepartment of Internal Medicine, University of Tartu, Tartu, EstoniaORCID Iconhttp://orcid.org/0000-0002-5699-4708View further author information
ORCID Icon,
Adelaida ZabaleguiHospital Clínic de Barcelona, Barcelona, SpainORCID Iconhttp://orcid.org/0000-0003-1205-3997View further author information
ORCID Icon,
David J ChallisUniversity of Manchester, Manchester, United KingdomORCID Iconhttp://orcid.org/0000-0002-6464-2286View further author information
ORCID Icon,
Christer NilssonClinical Memory Research Unit, Department of Clinical Sciences, Lund University, Lund, SwedenView further author information
&
Staffan KarlssonDepartment of Health Sciences, Faculty of Medicine, Lund University, Lund, Sweden;Halmstad University, School of Health and Wellfare, Halmstad, SwedenORCID Iconhttp://orcid.org/0000-0002-6624-9963View further author information
ORCID Icon show all
Pages 1138-1146 | Received 07 Apr 2016, Accepted 04 Jul 2016, Published online: 27 Jul 2016

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Kim McManus, Hong Tao, Pamela J. Jennelle, Josephine C. Wheeler & Gabriella A. Anderson. (2022) The effect of a performing arts intervention on caregivers of people with mild to moderately severe dementia. Aging & Mental Health 26:4, pages 735-744.
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Areum Han, Tae Hui Kim & Hyeon Hong. (2021) A factorial randomized controlled trial to examine separate and combined effects of a simulation-based empathy enhancement program and a lecture-based education program on family caregivers of people with dementia. Aging & Mental Health 25:10, pages 1930-1940.
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Sofia Nissmark & Agneta Malmgren Fänge. (2020) Occupational balance among family members of people in palliative care. Scandinavian Journal of Occupational Therapy 27:7, pages 500-506.
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Justyna Gerłowska, Marzena Furtak-Niczyporuk & Konrad Rejdak. (2020) Robotic assistance for people with dementia: a viable option for the future?. Expert Review of Medical Devices 17:6, pages 507-518.
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Linda H. Jütten, Ruth E. Mark & Margriet M. Sitskoorn. (2020) Predicting self-esteem in informal caregivers of people with dementia: Modifiable and non-modifiable factors. Aging & Mental Health 24:2, pages 221-226.
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Articles from other publishers (35)

O. Zeynep Aksin, Basar Bilgic, Perihan Guner, Evrim D. Gunes, Kemal Kuscu, E. Lerzan Ormeci, Serpil Sayin & Hale Yapici Eser. (2023) Caregiver support and burden drive intention to engage in a peer-to-peer exchange of services among caregivers of dementia patients. Frontiers in Psychiatry 14.
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Samuel R. Nyman, Chloe Casey & Nan Greenwood. (2023) Hypothesis. Alzheimer Disease & Associated Disorders 37:2, pages 174-177.
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Aqeela Mahomed & Chrisma Pretorius. (2022) Up-Close and Personal: Conceptualizing the Self as Dementia Caregiver: a Study in Soweto, South Africa. Journal of Cross-Cultural Gerontology 37:4, pages 355-374.
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Eman Mahmoud Mohammed Shoukr, Abeer Abd El-Rahman Mohamed, Ayman Mohamed El-Ashry & Heba Ahmed Mohsen. (2022) Effect of psychological first aid program on stress level and psychological well-being among caregivers of older adults with alzheimer’s disease. BMC Nursing 21:1.
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Shanshan Wang, Qiuju Shan, Daphne Sze Ki Cheung, Xinyi Xu, Isaac Sze Him Leung & Angela Yee Man Leung. (2022) Influence of dementia literacy and caregiving appraisal on the psychological wellbeing of informal caregivers of people with dementia: A cross-sectional study. Frontiers in Medicine 9.
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Jan Elyca D. P. Biclar, Roseann Tan-Mansukhani & Patricia D. Simon. (2022) Self-Efficacy and Psychological Well-Being of Family Caregivers of Persons with Spinal Cord Injury. Psychological Studies 67:3, pages 401-410.
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Oriol Turró‐Garriga, Vanesa Viñas‐Díez, Lluís Zacarias‐Pons, Josep‐Lluís Conde‐Sala & Josep Garre‐Olmo. (2022) Longitudinal effect of dementia carers' sense of coherence on burden. International Journal of Geriatric Psychiatry 37:9.
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Qian Wu, Yuko Yamaguchi & Chieko Greiner. (2022) Factors associated with the well‐being of family caregivers of people with dementia. Psychogeriatrics 22:2, pages 218-226.
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Francesca B Falzarano, Verena Cimarolli, Kathrin Boerner, Karen L Siedlecki & Amy Horowitz. (2022) Use of Home Care Services Reduces Care-Related Strain in Long-Distance Caregivers. The Gerontologist 62:2, pages 252-261.
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Tommy Kwan-Hin Fong, Teris Cheung, Wai-Chi Chan & Calvin Pak-Wing Cheng. (2021) Depression, Anxiety and Stress on Caregivers of Persons with Dementia (CGPWD) in Hong Kong amid COVID-19 Pandemic. International Journal of Environmental Research and Public Health 19:1, pages 184.
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Megan Lippe, Addison Crowder, Patricia Carter & A. Hunter Threadgill. (2021) Variables Impacting the Quality of Life of Dementia Caregivers: A Data Visualization Analysis. Journal of Nursing Scholarship 53:6, pages 772-780.
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Jakyung Lee & Soong-nang Jang. (2021) Actor and partner effects of self-rated health on life satisfaction among family caregiver couples. Archives of Gerontology and Geriatrics 97, pages 104503.
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Herbert E. Ainamani, Wilson M. Bamwerinde, Godfrey Z. Rukundo, Sam Tumwesigire, Rebecca M. Kalibwani, Evard M. Bikaitwaho & Alexander C. Tsai. (2021) Participation in gardening activity and its association with improved mental health among family caregivers of people with dementia in rural Uganda. Preventive Medicine Reports 23, pages 101412.
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Lili Yang, Huiling Ye & Qiuhua Sun. (2020) Family caregivers' experiences of interaction with people with mild‐to‐moderate dementia in China: A qualitative study. International Journal of Nursing Practice 27:4.
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Mellissa Withers, Kristyan Cortez‐Sanchez, Joseph Herrera, John M. Ringman & Freddi Segal‐Gidan. (2021) “My backpack is so heavy”: Experiences of Latino caregivers of family with early‐onset Alzheimer's . Journal of the American Geriatrics Society 69:6, pages 1539-1547.
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Carme Ferré-Grau, Laia Raigal-Aran, Jael Lorca-Cabrera, Teresa Lluch-Canut, Maria Ferré-Bergadà, Mar Lleixá-Fortuño, Montserrat Puig-Llobet, Maria Dolores Miguel-Ruiz & Núria Albacar-Riobóo. (2021) A Mobile App–Based Intervention Program for Nonprofessional Caregivers to Promote Positive Mental Health: Randomized Controlled Trial. JMIR mHealth and uHealth 9:1, pages e21708.
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Susan M. McLennon, Altheria Davis, Sarah Covington & Joel G. Anderson. (2019) “At the End We Feel Forgotten”: Needs, Concerns, and Advice from Blogs of Dementia Family Caregivers. Clinical Nursing Research 30:1, pages 82-88.
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Elizabeth Pritchard, Amy Cussen, Veronica Delafosse, Miriam Swift, Laura Jolliffe & Harriet Yeates. (2020) Interventions supporting caregiver readiness when caring for patients with dementia following discharge home: A mixed‐methods systematic review. Australasian Journal on Ageing 39:3.
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Ciro Conversano, Rebecca Ciacchini, Graziella Orrù, Mariagrazia Di Giuseppe, Angelo Gemignani & Andrea Poli. (2020) Mindfulness, Compassion, and Self-Compassion Among Health Care Professionals: What's New? A Systematic Review. Frontiers in Psychology 11.
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Agneta Malmgren Fänge, Björg Thordardottir, Metuge Ankhesnamon Ya-Nyonge & Connie Lethin. (2020) Satisfaction with Health Care Interventions among Community Dwelling People with Cognitive Disorders and Their Informal Caregivers—A Systematic Review. Healthcare 8:3, pages 240.
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Lia Prado, Rebecca Hadley & Dawn Rose. (2020) Taking Time: A Mixed Methods Study of Parkinson’s Disease Caregiver Participation in Activities in Relation to Their Wellbeing. Parkinson's Disease 2020, pages 1-18.
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Areum Han. (2019) Interventions for Attitudes and Empathy Toward People With Dementia and Positive Aspects of Caregiving: A Systematic Review and Meta-Analysis. Research on Aging 42:2, pages 72-82.
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Andréa Fachini da Costa, Maria Carolina Barbosa Teixeira Lopes, Cássia Regina Vancini Campanharo, Ruth Ester Assayag Batista & Meiry Fernanda Pinto Okuno. (2020) QUALITY OF LIFE AND BURDEN OF CAREGIVERS OF ELDERLY PEOPLE. Texto & Contexto - Enfermagem 29.
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Recep OR & Asiye Kartal. (2019) Influence of caregiver burden on well‐being of family member caregivers of older adults. Psychogeriatrics 19:5, pages 482-490.
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Catherine Quinn, Sharon M. Nelis, Anthony Martyr, Christina Victor, Robin G. Morris & Linda Clare. (2019) Influence of Positive and Negative Dimensions of Dementia Caregiving on Caregiver Well-Being and Satisfaction With Life: Findings From the IDEAL Study. The American Journal of Geriatric Psychiatry 27:8, pages 838-848.
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Taylor Rigby, Robert T Ashwill, David K Johnson & James E Galvin. (2019) Differences in the Experience of Caregiving Between Spouse and Adult Child Caregivers in Dementia With Lewy Bodies. Innovation in Aging 3:3.
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Lethin, Hanson, Margioti, Chiatti, Gagliardi, Vaz de Carvalho & Fänge. (2019) Support Needs and Expectations of People Living with Dementia and Their Informal Carers in Everyday Life: A European Study. Social Sciences 8:7, pages 203.
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Natália Ramos Imamura de Vasconcelos, Gilsenir Maria Prevelato de Almeida Dátilo, Agnaldo Bruno Chies, Eduardo Federighi Baisi Chagas, Thiago José Querino de Vasconcelos & Pedro Marco Karan Barbosa. (2019) Oxidative stress among informal caregivers. Revista Brasileira de Geriatria e Gerontologia 22:4.
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Anne-Sofie Helvik, Geir Selbæk, Jūratė Šaltytė Benth, Irene Røen & Sverre Bergh. (2018) The course of neuropsychiatric symptoms in nursing home residents from admission to 30-month follow-up. PLOS ONE 13:10, pages e0206147.
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Miyuki H. Komachi & Kiyoko Kamibeppu. (2018) Association between resilience, acute stress symptoms and characteristics of family members of patients at early admission to the intensive care unit. Mental Health & Prevention 9, pages 34-41.
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Jill-Marit Moholt, Oddgeir Friborg, Mari Wolff Skaalvik & Nils Henriksen. (2018) Psychometric validation of the Carers of Older People in Europe Index among family caregivers of older persons with dementia. SAGE Open Medicine 6, pages 205031211879281.
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Kyoung Hee Kim & Yong Soon Shin. (2017) The Effect of Caregiver Reaction on Psychological Well-being among Family Caregivers of Cancer Patients. Korean Journal of Adult Nursing 29:6, pages 647-656.
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Annie Poirier, Philippe Voyer, France Légaré, Michèle Morin, Holly O. Witteman, Edeltraut Kröger, Bernard Martineau, Charo Rodríguez & Anik M. C. Giguere. (2017) Caring for seniors living with dementia means caring for their caregivers too. Canadian Journal of Public Health 108:5-6, pages e639-e642.
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Monica Eriksson, Mia Wennerberg, Solveig Lundgren & Ella Danielson. (2017) “Self-Employed” in Caregivinghood: The Contribution of Swedish Informal Caregivers’ Environmental and Contextual Resistance Resources and Deficits. Societies 7:3, pages 19.
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