Advanced search
Publication Cover
Aging & Mental Health Volume 21, 2017 - Issue 1: Special Issue on Social Health in Dementia
Submit an article Journal homepage
1,393
Views
26
CrossRef citations to date
0
Altmetric
Original Articles

Caregiver profiles in dementia related to quality of life, depression and perseverance time in the European Actifcare study: the importance of social health

Eveline P.C.J. JanssenDepartment of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The Netherlands;Department of Old Age Psychiatry, Mondriaan, Heerlen, The NetherlandsORCID Iconhttp://orcid.org/0000-0002-2129-2431View further author information
ORCID Icon,
Marjolein de VugtDepartment of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The NetherlandsView further author information
,
Sebastian KöhlerDepartment of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The NetherlandsORCID Iconhttp://orcid.org/0000-0002-2398-0609View further author information
ORCID Icon,
Claire WolfsDepartment of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The NetherlandsView further author information
,
Liselot KerpershoekDepartment of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The NetherlandsView further author information
,
Ron L.H. HandelsDepartment of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The NetherlandsORCID Iconhttp://orcid.org/0000-0002-8663-0630View further author information
ORCID Icon,
Martin OrrellDepartment of Psychiatry and Applied Psychology, Faculty of Medicine & Health Sciences, Institute of Mental Health, University of Nottingham, Nottingham, United KingdomView further author information
,
Bob WoodsDementia Services Development Centre Wales, Bangor University, Bango, United KingdomView further author information
,
Hannah JelleyDementia Services Development Centre Wales, Bangor University, Bango, United KingdomView further author information
,
Astrid StephanMedical Faculty, Institute for Health and Nursing Science, Halle-Wittenberg, GermanyView further author information
,
Anja BieberMedical Faculty, Institute for Health and Nursing Science, Halle-Wittenberg, GermanyView further author information
,
Gabriele MeyerMedical Faculty, Institute for Health and Nursing Science, Halle-Wittenberg, GermanyView further author information
,
Knut EngedalNorwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, NorwayView further author information
,
Geir SelbaekNorwegian National Advisory Unit on Ageing and Health, Vestfold Hospital Trust, Tønsberg, NorwayView further author information
,
Anders WimoDepartment of Neurobiology, Care sciences and Society, Karolinska Institut, Stockholm, SwedenView further author information
,
Kate IrvingSchool of Nursing and Human Sciences, Dublin City University, Dublin, IrelandView further author information
,
Louise HopperSchool of Nursing and Human Sciences, Dublin City University, Dublin, IrelandView further author information
,
Maria MarquesCEDOC – Chronic Diseases Research Center, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, PortugalView further author information
,
Manuel Gonçalves-PereiraCEDOC – Chronic Diseases Research Center, Nova Medical School, Faculdade de Ciências Médicas, Universidade Nova de Lisboa, Lisbon, PortugalView further author information
,
Elisa PortolaniAlzheimer Unit, IRCCS Centro San Giovanni di Dio, Fatebenefratelli, Brescia, ItalyView further author information
,
Orazio ZanettiAlzheimer Unit, IRCCS Centro San Giovanni di Dio, Fatebenefratelli, Brescia, ItalyView further author information
&
Frans R. VerheyDepartment of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience, Alzheimer Center Limburg, Maastricht University Medical Center, Maastricht, The NetherlandsCorrespondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-8307-8406View further author information
ORCID Icon show all
Pages 49-57 | Received 20 Jul 2016, Accepted 27 Oct 2016, Published online: 21 Nov 2016

Citations (26)

Keep up to date with the latest research on this topic with citation updates for this article.

Subscribe to citation updates

Read on this site (3)

Eva Y. L. Tan, Niels Janssen, Ron Handels, Inez H. G. B. Ramakers, Frans R. J. Verhey, Wiesje M. van der Flier, René J. F. Melis, Marcel G. M. Olde Rikkert, Jos M. G. A. Schols & Marjolein E. de Vugt. (2023) Determinants of quality of life in family caregivers in MCI: a comparison with mild dementia. Aging & Mental Health 27:10, pages 1983-1989.
Read now
Liselot Kerpershoek, Bob Woods, Claire Wolfs, Frans Verhey, Hannah Jelley, Anja Bieber, Astrid Stephan, Mona Michelet, Geir Selbaek, Ron Handels, Anders Wimo, Louise Hopper, Kate Irving, Maria J. Marques, Manuel Gonçalves-Pereira, Elisa Portolani, Orazio Zanetti & Marjolein de Vugt. (2020) Do caregiver profiles predict the use of dementia care services? Findings from the Actifcare study. Aging & Mental Health 24:2, pages 272-279.
Read now
Marjolein de Vugt & Rose-Marie Dröes. (2017) Social health in dementia. Towards a positive dementia discourse. Aging & Mental Health 21:1, pages 1-3.
Read now

Articles from other publishers (23)

Carly L. Brantner, John P. Bentley & David L. Roth. (2023) Subtypes of Transitions into a Family Caregiving Role: A Latent Class Analysis. Journal of Applied Gerontology.
Crossref
Henrik Wiegelmann, Karin Wolf-Ostermann, Niels Janssen, Hein van Hout, Janet L. MacNeil Vroomen & Farhad Arzideh. (2023) Sociodemographic structure and health care-related outcomes of community-dwelling dementia caregiving dyads: a latent class replication study. BMC Health Services Research 23:1.
Crossref
Viktoria Hoel, Wei Qi Koh & Duygu Sezgin. (2023) Enrichment of dementia caregiving relationships through psychosocial interventions: A scoping review. Frontiers in Medicine 9.
Crossref
Elena Gambella, Silvia Valenza, Maria Velia Giulietti, Cristina Gagliardi, Patrizia Civerchia, Paolo Fabbietti, Fabrizia Lattanzio & Giuseppe Pelliccioni. (2022) “The Community That Takes Care of Itself”. Family & Community Health 45:4, pages 238-246.
Crossref
Viktoria Hoel, Eliva Atieno Ambugo & Karin Wolf-Ostermann. (2022) Sustaining Our Relationship: Dyadic Interactions Supported by Technology for People with Dementia and Their Informal Caregivers. International Journal of Environmental Research and Public Health 19:17, pages 10956.
Crossref
Jan Dreyer, Johannes Michael Bergmann, Kerstin Köhler, Iris Hochgraeber, Christiane Pinkert, Martina Roes, Jochen René Thyrian, Henrik Wiegelmann & Bernhard Holle. (2022) Differences and commonalities of home-based care arrangements for persons living with dementia in Germany – a theory-driven development of types using multiple correspondence analysis and hierarchical cluster analysis. BMC Geriatrics 22:1.
Crossref
Vanessa Burholt, Deborah Balmer, Rosemary Frey, Pare Meha, John Parsons, Mary Roberts, Mary Louisa Simpson, Janine Wiles, Moema Gregorzewski, Teuila Percival & Rangimahora Reddy. (2022) Health equity and wellbeing among older people’s caregivers in New Zealand during COVID-19: Protocol for a qualitative study. PLOS ONE 17:7, pages e0271114.
Crossref
Jaeeon Yoo, Junga Oh, Sang-Youn Kim, Jungmin Shin, Siekyeong Kim & Changhyun Roh. (2022) Impact of Digital Device, Exercise, and Music Intervention Programs on the Cognition and Depression of the Elderly in South Korea: A Meta-Regression Analysis. International Journal of Environmental Research and Public Health 19:7, pages 4036.
Crossref
Teng-Yin Yeh, Jian-An Su & Chih-Cheng Chang. (2022) Factors associated with the quality of life in family caregivers of people with dementia in Taiwan. Taiwanese Journal of Psychiatry 36:3, pages 123.
Crossref
Henrik Wiegelmann, Karin Wolf-Ostermann, Werner Brannath, Farhad Arzideh, Jan Dreyer, Rene Thyrian, Liane Schirra-Weirich & Lisa Verhaert. (2021) Sociodemographic aspects and health care-related outcomes: a latent class analysis of informal dementia care dyads. BMC Health Services Research 21:1.
Crossref
Wayne F.W. Chong, Leong Hwee Ng, Ringo M-H Ho, Gerald C.H. Koh, Helen Hoenig, David B. Matchar, Philip Yap, Narayanaswamy Venketasubramanian, Kelvin B. Tan, Chou Ning, Edward Menon, Hui Meng Chang, Deidre A. De Silva, Kim En Lee, Boon Yeow Tan, Sherry H.Y. Young, Yee Sien Ng, Tian Ming Tu, Yan Hoon Ang, Tseng Tsai Yeo, Reshma A. Merchant, Keng He Kong, Rajinder Singh, Yu Li Ng & Angela Cheong. (2021) Stroke Rehabilitation Use and Caregiver Psychosocial Health Profiles in Singapore: A Latent Profile Transition Analysis. Journal of the American Medical Directors Association 22:11, pages 2350-2357.e2.
Crossref
Iris van der Heide, Nienke van Wezel, Marco Blom, Peter Spreeuwenberg, Walter L.J.M. Devillé & Anneke L. Francke. (2021) Effects of an educational intervention on health-related quality of life among family caregivers of people with dementia with a Turkish or Moroccan immigrant background: Insights from a cluster randomised controlled trial. Patient Education and Counseling 104:5, pages 1168-1175.
Crossref
Catalina López‐Martínez, Vasiliki Orgeta, Antonio Frías‐Osuna & Rafael del‐Pino‐Casado. (2020) The mediating role of sense of coherence on mental health outcomes in carers of older dependent relatives: A longitudinal study. International Journal of Geriatric Psychiatry 36:5, pages 722-730.
Crossref
Agustin Ibáñez, Stefanie Danielle Pina-Escudero, Katherine L Possin, Yakeel T Quiroz, Fernando Aguzzoli Peres, Andrea Slachevsky, Ana Luisa Sosa, Sonia M D Brucki & Bruce L Miller. (2021) Dementia caregiving across Latin America and the Caribbean and brain health diplomacy. The Lancet Healthy Longevity 2:4, pages e222-e231.
Crossref
Clotilde Larochette, Emilie Wawrziczny, David Papo, Florence Pasquier & Pascal Antoine. (2019) An acceptance, role transition, and couple dynamics-based program for caregivers: A qualitative study of the experience of spouses of persons with young-onset dementia. Dementia 19:8, pages 2714-2731.
Crossref
Niels Janssen, Ron L. Handels, Sebastian Köhler, Manuel Gonçalves-Pereira, Maria J. Marques, Kate Irving, Louise Hopper, Anja Bieber, Martin Orrell, Geir Selbæk, Mona Michelet, Anders Wimo, Orazio Zanetti, Daniel M. Portolani, Bob Woods, Hannah Jelley, Silvia M.A.A. Evers & Frans R.J. Verhey. (2020) Profiles of Met and Unmet Needs in People with Dementia According to Caregivers’ Perspective: Results from a European Multicenter Study. Journal of the American Medical Directors Association 21:11, pages 1609-1616.e1.
Crossref
Elizabeth Pritchard, Amy Cussen, Veronica Delafosse, Miriam Swift, Laura Jolliffe & Harriet Yeates. (2020) Interventions supporting caregiver readiness when caring for patients with dementia following discharge home: A mixed‐methods systematic review. Australasian Journal on Ageing 39:3.
Crossref
Antonio Lobo, Elena Lobo & Concepción De-la-Cámara. (2019) Dementia care in high-income countries. Current Opinion in Psychiatry 32:5, pages 465-470.
Crossref
Márta Fekete, Agnes Szabo, Christine Stephens & Fiona Alpass. (2017) Older New Zealanders in caregiving roles: Psychological functioning of caregivers of people living with dementia. Dementia 18:5, pages 1663-1678.
Crossref
Güler Duru aşiret, Gülcan BAĞCIVAN & Cemile KÜTMEÇ YILMAZ. (2019) THE TURKISH VERSION OF THE CARER’S ASSESSMENT OF SATISFACTION INDEX (CASI-TR): ITS VALIDATION AND RELIABILITY. Türk Fizyoterapi ve Rehabilitasyon Dergisi.
Crossref
Carlos Chiatti, Danae Rodríguez Gatta, Agneta Malmgren Fänge, Valerio Scandali, Filippo Masera & Connie Lethin. (2018) Utilization of Formal and Informal Care by Community-Living People with Dementia: A Comparative Study between Sweden and Italy. International Journal of Environmental Research and Public Health 15:12, pages 2679.
Crossref
Panagis Galiatsatos, Amelia Gurley & W. Daniel Hale. (2017) Policy and advocacy for informal caregivers: How state policy influenced a community initiative. Journal of Public Health Policy 38:4, pages 503-508.
Crossref
Ingrid den Boer. (2017) Wie zorgt er voor de mantelzorger?. Bijblijven 33:4-5, pages 324-330.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.