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Article

Quality of life for young adults with severe intellectual disability: mothers’ thoughts and reflections

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Pages 131-146 | Published online: 10 Jul 2009

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Åsa-Sara Sernheim, Helena Hemmingsson, Helene Lidström, I. Witt Engerström & G. M. Liedberg. (2020) Rett syndrome: Teenagers’ and young adults’ activities, usage of time and responses during an ordinary week – a diary study. Scandinavian Journal of Occupational Therapy 27:5, pages 323-335.
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Camille Gauthier-Boudreault, Audrée Jeanne Beaudoin, Frances Gallagher & Mélanie Couture. (2019) Scoping review of social participation of individuals with profound intellectual disability in adulthood: What can I do once I finish school?. Journal of Intellectual & Developmental Disability 44:2, pages 248-260.
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Jessica Merrells, Angus Buchanan & Rebecca Waters. (2019) “We feel left out”: Experiences of social inclusion from the perspective of young adults with intellectual disability. Journal of Intellectual & Developmental Disability 44:1, pages 13-22.
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Jessica Merrells, Angus Buchanan & Rebecca Waters. (2018) The experience of social inclusion for people with intellectual disability within community recreational programs: A systematic review. Journal of Intellectual & Developmental Disability 43:4, pages 381-391.
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Junhyoung Kim, Mary Lou Schilling, May Kim & Areum Han. (2016) Contribution of Leisure Satisfaction, Acceptance Disability, and Social Relationship to Life Satisfaction among Korean Individuals with Intellectual Disability. Journal of Mental Health Research in Intellectual Disabilities 9:3, pages 157-170.
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Melissa Scott, Kitty-Rose Foley, Jenny Bourke, Helen Leonard & Sonya Girdler. (2014) “I have a good life”: the meaning of well-being from the perspective of young adults with Down syndrome. Disability and Rehabilitation 36:15, pages 1290-1298.
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K-R. Foley, P. Dyke, S. Girdler, J. Bourke & H. Leonard. (2012) Young adults with intellectual disability transitioning from school to post-school: A literature review framed within the ICF. Disability and Rehabilitation 34:20, pages 1747-1764.
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SusanE. Roush, Kathleen Fresher- Samways, Jill Stolgitis, Jody Rabbitat & Ed Cardinal. (2007) Self- and Caregiver-Reported Experiences of Young Adults with Developmental Disabilities. Journal of Social Work in Disability & Rehabilitation 6:4, pages 53-73.
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Articles from other publishers (34)

Jaekuk Park, Eunra Kim, Younghee Cho & Yujeong Park. (2022) Factors associating with the changes in life satisfaction among individuals with intellectual disabilities: a latent class growth model analysis. Current Psychology 42:13, pages 10508-10518.
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Marie Blížkovská, Vicente Martínez-Tur, Luminita Pătras, Carolina Moliner, Esther Gracia & José Ramos. (2022) Using Autonomous Teams to Improve Quality of Life of People with Intellectual Disabilities. Applied Research in Quality of Life 17:4, pages 2387-2403.
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Samantha Noyek, Theresa C. Davies, Beata Batorowicz, Elizabeth Delarosa & Nora Fayed. (2022) The “Recreated Experiences” Approach: Exploring the Experiences of Persons Previously Excluded in Research. International Journal of Qualitative Methods 21, pages 160940692210867.
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Matt Silver. (2021) Motivation, engagement and outcomes in curriculum development in a specialist SEND School in England. Support for Learning 36:1, pages 133-146.
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Meghan G. Blaskowitz, Paul Wesley Scott, Lindsay Randall, Macie Zelenko, Bridget M. Green, Erin McGrady, Elana Famularo & Megan Lonergan. (2020) Closing the Gap: Identifying Self-Reported Quality of Life Differences Between Youth With and Without Intellectual and Developmental Disabilities. Inclusion 8:3, pages 241-254.
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James B. McCauley, Andrew Pickles, Marisela Huerta & Catherine Lord. (2020) Defining Positive Outcomes in More and Less Cognitively Able Autistic Adults. Autism Research 13:9, pages 1548-1560.
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Aitana Fernandez-Villardon, Pilar Alvarez, Leire Ugalde & Itxaso Tellado. (2020) Fostering the Social Development of Children with Special Educational Needs or Disabilities (SEND) through Dialogue and Interaction: A Literature Review. Social Sciences 9:6, pages 97.
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Ciara Sheridan, Mary‐Pat OMalley‐Keighran & Clare Carroll. (2019) What are the perspectives of adolescents with Down syndrome about their quality of life? A scoping review. British Journal of Learning Disabilities 48:2, pages 98-105.
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Carli Friedman. (2019) Quality-of-Life Outcomes of Older Adults with Severe Disabilities. Research and Practice for Persons with Severe Disabilities 44:4, pages 237-250.
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Haris Memisevic & Mirjana Djordjevic. 2019. Handbook of Intellectual Disabilities. Handbook of Intellectual Disabilities 91 107 .
Paula Jacobs, Kenneth MacMahon & Ethel Quayle. (2018) Transition from school to adult services for young people with severe or profound intellectual disability: A systematic review utilizing framework synthesis. Journal of Applied Research in Intellectual Disabilities 31:6, pages 962-982.
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Claudio Di Lorito, Alessandro Bosco, Linda Birt & Angela Hassiotis. (2018) Co-research with adults with intellectual disability: A systematic review. Journal of Applied Research in Intellectual Disabilities 31:5, pages 669-686.
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B. L. Ncube, A. Perry & J. A. Weiss. (2018) The quality of life of children with severe developmental disabilities. Journal of Intellectual Disability Research 62:3, pages 237-244.
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mine kizir & İlknur Çifci Tekinarslan. (2017) Ağır ve Çoklu Yetersizliği (AÇYE) Olan Çocuk Annelerinin Yaşadıkları Sorunların ve Sorunlarla Baş Etme Yöntemlerinin Belirlenmesi. Ankara Üniversitesi Eğitim Bilimleri Fakültesi Özel Eğitim Dergisi.
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Genevieve Young-Southward, Christopher Philo & Sally-Ann Cooper. (2017) What Effect Does Transition Have on Health and Well-Being in Young People with Intellectual Disabilities? A Systematic Review. Journal of Applied Research in Intellectual Disabilities 30:5, pages 805-823.
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Zachary RossettiDonna LehrDana PelerinShuoxi HuangLeslie Lederer. (2016) Parent Involvement in Meaningful Post-School Experiences for Young Adults With IDD and Pervasive Support Needs. Intellectual and Developmental Disabilities 54:4, pages 260-272.
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Erika Ikeda, Chris Kr?geloh, Tineke Water & Erica A. Hinckson. (2015) An Exploratory Study of Self-reported Quality of Life in Children with Autism Spectrum Disorder and Intellectual Disability. Child Indicators Research 9:1, pages 133-153.
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Zachary Rossetti, Donna Lehr, Leslie Lederer, Dana Pelerin & Shuoxi Huang. (2015) Parent Perceptions of Time Spent Meaningfully by Young Adults With Pervasive Support Needs. Research and Practice for Persons with Severe Disabilities 40:1, pages 3-19.
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Brooke Ingersoll, Katherine Walton, Danielle Carlsen & Theresa Hamlin. (2013) Social Intervention for Adolescents With Autism and Significant Intellectual Disability: Initial Efficacy of Reciprocal Imitation Training. American Journal on Intellectual and Developmental Disabilities 118:4, pages 247-261.
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Dawn H. HelpsTina S. Herzberg. (2019) The Use of an iPad2 as a Leisure Activity for a Student with Multiple Disabilities. Journal of Visual Impairment & Blindness 107:3, pages 232-236.
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Jorien Luijkx, Annet ten Brug & Carla Vlaskamp. (2013) How Parents Experience the Quality of Support: A Survey in Residential Care. Journal of Policy and Practice in Intellectual Disabilities 10:1, pages 37-44.
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Katherine M. Walton & Brooke R. Ingersoll. (2012) Improving Social Skills in Adolescents and Adults with Autism and Severe to Profound Intellectual Disability: A Review of the Literature. Journal of Autism and Developmental Disorders 43:3, pages 594-615.
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Kenneth K. Poon, Lynette Koh & Iliana Magiati. (2013) Parental perspectives on the importance and likelihood of adult outcomes for children with Autism Spectrum Disorders, Intellectual Disabilities or Multiple Disabilities. Research in Autism Spectrum Disorders 7:2, pages 382-390.
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Marco Bertelli, Annamaria Bianco, Daniela Scuticchio & Ivan Brown. 2012. Quality of life in Italy. Quality of life in Italy 305 319 .
M. Bertelli, A. Bianco, M. Rossi, D. Scuticchio & I. Brown. (2011) Relationship between individual quality of life and family quality of life for people with intellectual disability living in Italy. Journal of Intellectual Disability Research 55:12, pages 1136-1150.
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Giulio E. Lancioni, Nirbhay N. Singh, Mark F. O’Reilly, Jeff Sigafoos, Doretta Oliva, Angela Smaldone, Maria L. La Martire, Gloria Alberti & Francesca Scigliuzzo. (2011) A verbal-instruction system to help persons with multiple disabilities perform complex food- and drink-preparation tasks independently. Research in Developmental Disabilities 32:6, pages 2739-2747.
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Debora M. Kagohara. (2010) Three Students with Developmental Disabilities Learn to Operate an iPod to Access Age-Appropriate Entertainment Videos. Journal of Behavioral Education 20:1, pages 33-43.
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Giulio E. LancioniNirbhay N. Singh, Mark F. O'Reilly, Jeff Sigafoos & Doretta Oliva. (2011) A Verbal-Instruction System to Help a Woman With Intellectual Disability and Blindness Manage Food- and Drink-Preparation Tasks. Clinical Case Studies 10:1, pages 79-90.
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Erik W. Carter, Audrey A. Trainor, Nicole Ditchman, Beth Swedeen & Laura Owens. (2010) Evaluation of a Multicomponent Intervention Package to Increase Summer Work Experiences for Transition-Age Youth with Severe Disabilities. Research and Practice for Persons with Severe Disabilities 34:2, pages 1-12.
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Cameron L. Neece, Bonnie R. Kraemer & Jan Blacher. (2009) Transition Satisfaction and Family Well Being Among Parents of Young Adults With Severe Intellectual Disability. Intellectual and Developmental Disabilities 47:1, pages 31-43.
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Y. C. Chou, R. L. Schalock, P. Y. Tzou, L. C. Lin, A. L. Chang, W. P. Lee & S. C. Chang. (2007) Quality of life of adults with intellectual disabilities who live with families in Taiwan. Journal of Intellectual Disability Research 51:11, pages 875-883.
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J. Schneider, N. Wedgewood, G. Llewellyn & D. McConnell. (2006) Families challenged by and accommodating to the adolescent years. Journal of Intellectual Disability Research 50:12, pages 926-936.
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Jan Blacher, Cameron L Neece & Emilie Paczkowski. (2005) Families and intellectual disability. Current Opinion in Psychiatry 18:5, pages 507-513.
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Kylie Valentine, Marianne Rajkovic, Brooke Dinning & Denise Thompson. (2011) Post-Diagnosis Support for Children with Autism Spectrum Disorder, Their Families and Carers. SSRN Electronic Journal.
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