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Miscellaneous

Reactions to “Ethical challenges and complexities of including people with intellectual disability as participants in research” by Dr Teresa Iacono

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Pages 180-182 | Published online: 10 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (2)

Colleen A. Kidney & Katherine E. McDonald. (2014) A toolkit for accessible and respectful engagement in research. Disability & Society 29:7, pages 1013-1030.
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Teresa Iacono. (2006) Further comments on the researched, researchers and ethics committees: A response. Journal of Intellectual & Developmental Disability 31:3, pages 189-191.
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Articles from other publishers (20)

Ryan M. Niemiec & Dan TomasuloRyan M. Niemiec & Dan Tomasulo. 2023. Character Strengths and Abilities Within Disabilities. Character Strengths and Abilities Within Disabilities 147 166 .
Boris Handal, Chris Campbell, Kevin Watson, Marguerite Maher, Keagan Brewer, Anne-Marie Irwin & Marc Fellman. (2021) Human research ethics committees members: ethical review personal perceptions. Monash Bioethics Review 39:1, pages 94-114.
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Melaneia Warwick. 2020. Belonging for People with Profound Intellectual and Multiple Disabilities. Belonging for People with Profound Intellectual and Multiple Disabilities 113 126 .
Susan Taylor & Susan Balandin. (2020) The Ethics of Inclusion in AAC Research of Participants with Complex Communication Needs. Scandinavian Journal of Disability Research 22:1, pages 108-115.
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Stuart Wark, Catherine MacPhail, Kathy McKay & Arne Müeller. (2017) Informed consent in a vulnerable population group: supporting individuals aging with intellectual disability to participate in developing their own health and support programs. Australian Health Review 41:4, pages 436.
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Bonnie Fader Wilkenfeld. (2014) “Being Heard”. Research on Social Work Practice 25:6, pages 702-710.
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Boris Handal, Kevin Watson, Marc Fellman, Marguerite Maher & Miya White. 2015. Conscience, Leadership and the Problem of ‘Dirty Hands’. Conscience, Leadership and the Problem of ‘Dirty Hands’ 139 152 .
Jamil Jivraj, Lori-Ann Sacrey, Amanda Newton, David Nicholas & Lonnie Zwaigenbaum. (2014) Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review. Autism 18:7, pages 782-793.
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Kate Caldwell. (2013) Dyadic interviewing: a technique valuing interdependence in interviews with individuals with intellectual disabilities. Qualitative Research 14:4, pages 488-507.
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Katherine E. McDonaldDora M. Raymaker. (2013) Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research. American Journal of Public Health 103:12, pages 2165-2173.
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Willi Horner‐Johnson & Danielle Bailey. (2013) Assessing Understanding and Obtaining Consent From Adults With Intellectual Disabilities for a Health Promotion Study. Journal of Policy and Practice in Intellectual Disabilities 10:3, pages 260-265.
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Christina Nicolaidis, Dora Raymaker, Katherine McDonald, Sebastian Dern, W. Cody Boisclair, Elesia Ashkenazy & Amanda Baggs. (2012) Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership. Journal of General Internal Medicine 28:6, pages 761-769.
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K. E. McDonald, C. A. Kidney & M. Patka. (2012) ‘You need to let your voice be heard’: research participants' views on research. Journal of Intellectual Disability Research 57:3, pages 216-225.
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J. C. d'Abrera, A. J. Holland, J. Landt, G. Stocks‐Gee & S. H. Zaman. (2011) A neuroimaging proof of principle study of Down's syndrome and dementia: ethical and methodological challenges in intrusive research. Journal of Intellectual Disability Research 57:2, pages 105-118.
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Zack Marshall, Stephanie Nixon, Denise Nepveux, Tess Vo, Ciann Wilson, Sarah Flicker, Alex McClelland & Devon Proudfoot. (2012) Navigating Risks and Professional Roles: Research with Lesbian, Gay, Bisexual, Trans, and Queer Young People with Intellectual Disabilities. Journal of Empirical Research on Human Research Ethics 7:4, pages 20-33.
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Katherine Elizabeth McDonald. (2012) “We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research. American Journal on Intellectual and Developmental Disabilities 117:4, pages 263-274.
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Katherine E. McDonald & Colleen A. Kidney. (2012) What Is Right? Ethics in Intellectual Disabilities Research. Journal of Policy and Practice in Intellectual Disabilities 9:1, pages 27-39.
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Katherine E. McDonald, Colleen A. Kidney, Sandra L. Nelms, Michael R. Parker, Ali Kimmel & Christopher B. Keys. (2009) Including Adults With Intellectual Disabilities in Research: Scientists' Perceptions of Risks and Protections. Journal of Policy and Practice in Intellectual Disabilities 6:4, pages 244-252.
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Katherine E. McDonald, Christopher B. Keys & David B. Henry. (2008) Gatekeepers of Science: Attitudes Toward the Research Participation of Adults With Intellectual Disability. American Journal on Mental Retardation 113:6, pages 466-478.
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Michael G. Aman & Cristan A. Farmer. (2008) Psychotropic Medication Research in Children and Adolescents: Empirical Findings and Ethical Implications. Journal of Empirical Research on Human Research Ethics 3:3, pages 39-47.
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