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Miscellaneous

Commentary on Iacono (2006): “Ethical challenges and complexities of including people with intellectual disability as participants in research”

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Pages 186-188 | Published online: 10 Jul 2009

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Read on this site (5)

Klaudia Wos, Celina Kamecka-Antczak & Mateusz Szafrański. (2021) In search of solutions regarding the sex education of people with intellectual disabilities in Poland - participatory action research. European Journal of Special Needs Education 36:4, pages 517-530.
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Colleen A. Kidney & Katherine E. McDonald. (2014) A toolkit for accessible and respectful engagement in research. Disability & Society 29:7, pages 1013-1030.
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Maurice A. Feldman, Susan M. Battin, Olivia A. Shaw & Ruth Luckasson. (2013) Inclusion of children with disabilities in mainstream child development research. Disability & Society 28:7, pages 997-1011.
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Kathy Boxall & Sue Ralph. (2009) Research ethics and the use of visual images in research with people with intellectual disability. Journal of Intellectual & Developmental Disability 34:1, pages 45-54.
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Teresa Iacono. (2006) Further comments on the researched, researchers and ethics committees: A response. Journal of Intellectual & Developmental Disability 31:3, pages 189-191.
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Articles from other publishers (22)

Dan Goodley, Magda Szarota & Agnieszka Wołowicz. 2020. The Palgrave Encyclopedia of the Possible. The Palgrave Encyclopedia of the Possible 1 8 .
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Klaudia Wos & Ditta Baczała. (2021) Parenting by mothers with intellectual disabilities in Poland: A photovoice study. Journal of Applied Research in Intellectual Disabilities 34:6, pages 1452-1462.
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Susan Taylor & Susan Balandin. (2020) The Ethics of Inclusion in AAC Research of Participants with Complex Communication Needs. Scandinavian Journal of Disability Research 22:1, pages 108-115.
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Dan Goodley, Magda Szarota & Agnieszka Wołowicz. 2020. The Palgrave Encyclopedia of the Possible. The Palgrave Encyclopedia of the Possible 1 8 .
Niall O’Kane, Sujata Soni & Angela Hassiotis. 2019. Seminars in the Psychiatry of Intellectual Disability. Seminars in the Psychiatry of Intellectual Disability 231 244 .
Paula Jacobs, Kenneth MacMahon & Ethel Quayle. (2018) Transition from school to adult services for young people with severe or profound intellectual disability: A systematic review utilizing framework synthesis. Journal of Applied Research in Intellectual Disabilities 31:6, pages 962-982.
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Bradley Crook, Rose Tomlins, Ann Bancroft & Laura Ogi. (2016) ‘So often they do not get recruited’: exploring service user and staff perspectives on participation in learning disability research and the barriers that inhibit it. British Journal of Learning Disabilities 44:2, pages 130-137.
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Lesley Goldsmith & Heather Skirton. (2015) Research involving people with a learning disability – methodological challenges and ethical considerations. Journal of Research in Nursing 20:6, pages 435-446.
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M. A. Feldman, J. Bosett, C. Collet & P. Burnham-Riosa. (2014) Where are persons with intellectual disabilities in medical research? A survey of published clinical trials. Journal of Intellectual Disability Research 58:9, pages 800-809.
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Kate Caldwell. (2013) Dyadic interviewing: a technique valuing interdependence in interviews with individuals with intellectual disabilities. Qualitative Research 14:4, pages 488-507.
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Amanda Milliner. 2014. Researching the Police in the 21st Century. Researching the Police in the 21st Century 170 191 .
Katherine E. McDonaldDora M. Raymaker. (2013) Paradigm Shifts in Disability and Health: Toward More Ethical Public Health Research. American Journal of Public Health 103:12, pages 2165-2173.
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Willi Horner-Johnson & Danielle Bailey. (2013) Assessing Understanding and Obtaining Consent From Adults With Intellectual Disabilities for a Health Promotion Study. Journal of Policy and Practice in Intellectual Disabilities 10:3, pages 260-265.
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Christina Nicolaidis, Dora Raymaker, Katherine McDonald, Sebastian Dern, W. Cody Boisclair, Elesia Ashkenazy & Amanda Baggs. (2012) Comparison of Healthcare Experiences in Autistic and Non-Autistic Adults: A Cross-Sectional Online Survey Facilitated by an Academic-Community Partnership. Journal of General Internal Medicine 28:6, pages 761-769.
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J. C. d'Abrera, A. J. Holland, J. Landt, G. Stocks-Gee & S. H. Zaman. (2013) A neuroimaging proof of principle study of Down's syndrome and dementia: ethical and methodological challenges in intrusive research. Journal of Intellectual Disability Research 57:2, pages 105-118.
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Katherine McDonald & Mazna Patka. (2012) “There is No Black or White”: Scientific Community Views on Ethics in Intellectual and Developmental Disability Research. Journal of Policy and Practice in Intellectual Disabilities 9:3, pages 206-214.
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Katherine Elizabeth McDonald. (2012) “We Want Respect”: Adults with Intellectual and Developmental Disabilities Address Respect in Research. American Journal on Intellectual and Developmental Disabilities 117:4, pages 263-274.
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Katherine E. McDonald & Colleen A. Kidney. (2012) What Is Right? Ethics in Intellectual Disabilities Research. Journal of Policy and Practice in Intellectual Disabilities 9:1, pages 27-39.
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Kathy Boxall & Sue Ralph. (2011) Research ethics committees and the benefits of involving people with profound and multiple learning disabilities in research. British Journal of Learning Disabilities 39:3, pages 173-180.
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Katherine E. McDonald, Colleen A. Kidney, Sandra L. Nelms, Michael R. Parker, Ali Kimmel & Christopher B. Keys. (2009) Including Adults With Intellectual Disabilities in Research: Scientists' Perceptions of Risks and Protections. Journal of Policy and Practice in Intellectual Disabilities 6:4, pages 244-252.
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Katherine E. McDonald, Christopher B. Keys & David B. Henry. (2008) Gatekeepers of Science: Attitudes Toward the Research Participation of Adults With Intellectual Disability. American Journal on Mental Retardation 113:6, pages 466-478.
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