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ARTICLES

Quality‐enhancing interventions for people with profound intellectual and multiple disabilities: A review of the empirical research literature

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Pages 163-178 | Published online: 10 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (19)

Torsten Hammann, Jakob Valič, Gašper Slapničar & Mitja Luštrek. (2022) The missing piece. Physiological data as a factor for identifying emotions of people with profound intellectual and multiple disabilities. International Journal of Developmental Disabilities 0:0, pages 1-17.
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Ineke Haakma, Anke A. De Boer, Sanne Van Esch, Alexander E. M. G. Minnaert & Annette A. J Van Der Putten. (2021) Inclusion moments for students with profound intellectual and multiple disabilities in mainstream schools: The teacher assistant’s role in supporting peer interactions. European Journal of Special Needs Education 36:2, pages 231-247.
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Laura Gormley, Heidi Penrose, Maeve Bracken & Brittany Barron. (2020) Training behavioural therapists in presession pairing skills to evaluate the impact on children’s life skill acquisition rates. International Journal of Developmental Disabilities 66:5, pages 339-347.
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Petri J. C. M. Embregts, Wietske M. W. J. van Oorsouw, Sophie C. Wintels, Robby W. van Delden, Vanessa Evers & Dennis Reidsma. (2020) Comparing a playful interactive product to watching television: an exploratory study for people with profound intellectual and multiple disabilities. Journal of Intellectual & Developmental Disability 45:1, pages 78-88.
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R. W. van Delden, S. C. Wintels, W. M. W. J. van Oorsouw, V. Evers, P. J. C. M. Embregts, D. K. J. Heylen & D. Reidsma. (2020) Alertness, movement, and affective behaviour of people with profound intellectual and multiple disabilities (PIMD) on introduction of a playful interactive product: Can we get your attention?. Journal of Intellectual & Developmental Disability 45:1, pages 66-77.
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Appolonia M. Nieuwenhuijse, Dick L. Willems, Johannes B. van Goudoever, Michael A. Echteld & Erik Olsman. (2019) Quality of life of persons with profound intellectual and multiple disabilities: A narrative literature review of concepts, assessment methods and assessors. Journal of Intellectual & Developmental Disability 44:3, pages 261-271.
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Annette A. J. van der Putten, Leontien W. M. Bossink, Niek Frans, Suzanne Houwen & Carla Vlaskamp. (2017) Motor activation in people with profound intellectual and multiple disabilities in daily practice. Journal of Intellectual & Developmental Disability 42:1, pages 1-11.
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Kirsten A. van den Bosch, Carla Vlaskamp, Tjeerd C. Andringa, Wendy J. Post & Wied A. J. J. M. Ruijssenaars. (2016) Examining relationships between staff attributions of soundscapes and core affect in people with severe or profound intellectual and visual disabilities. Journal of Intellectual & Developmental Disability 41:1, pages 21-30.
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Daniel Östlund. (2015) Students with profound and multiple disabilities in education in Sweden: teaching organisation and modes of student participation. Research and Practice in Intellectual and Developmental Disabilities 2:2, pages 148-164.
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Ine Hostyn & Bea Maes. (2013) Interaction with a person with profound intellectual and multiple disabilities: A case study in dialogue with an experienced staff member. Journal of Intellectual & Developmental Disability 38:3, pages 189-204.
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Stefanie Blain-Moraes, Stephanie Chesser, Shauna Kingsnorth, Patricia McKeever & Elaine Biddiss. (2013) Biomusic: A Novel Technology for Revealing the Personhood of People with Profound Multiple Disabilities. Augmentative and Alternative Communication 29:2, pages 159-173.
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Meredith Prain, Keith R. Mcvilly & Paul Ramcharan. (2012) Interacting with adults with congenital deafblindness: The experiences of disability support workers. Journal of Intellectual & Developmental Disability 37:1, pages 27-34.
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Carlo Schuengel, Sabina Kef, Saskia Damen & Mijkje Worm. (2012) Attachment representations and response to video-feedback intervention for professional caregivers. Attachment & Human Development 14:2, pages 83-99.
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Stefanie Blain & Patricia McKeever. (2011) Revealing Personhood Through Biomusic of Individuals Without Communicative Interaction Ability. Augmentative and Alternative Communication 27:1, pages 1-4.
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Katja Koski, Kaisa Martikainen, Katja Burakoff & Kaisa Launonen. (2010) Staff members' understandings about communication with individuals who have multiple learning disabilities: A case of Finnish OIVA communication training. Journal of Intellectual & Developmental Disability 35:4, pages 279-289.
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Ine Hostyn & Bea Maes. (2009) Interaction between persons with profound intellectual and multiple disabilities and their partners: A literature review. Journal of Intellectual & Developmental Disability 34:4, pages 296-312.
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Hilary Johnson, Jacinta Douglas, Christine Bigby & Teresa Iacono. (2009) Maximizing community inclusion through mainstream communication services for adults with severe disabilities. International Journal of Speech-Language Pathology 11:3, pages 180-190.
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Articles from other publishers (50)

Marie-Christine Rousseau, Myriam Winance & Karine Baumstarck. (2023) Polyhandicap, profound intellectual multiple disabilities : Concept and definition of a highly specific public health issue. Revue d'Épidémiologie et de Santé Publique 71:6, pages 102184.
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A. M. Nieuwenhuijse, D. L. Willems & K. Kruithof. (2023) Understanding quality of life of persons with profound intellectual and multiple disabilities. Journal of Policy and Practice in Intellectual Disabilities.
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Tanja W. M. Doodeman, Carlo Schuengel & Paula S. Sterkenburg. (2023) Effects of the Attune & Stimulate ‐checklist for caregivers of people with severe and profound intellectual disabilities: A randomised controlled trial . Journal of Applied Research in Intellectual Disabilities 36:5, pages 1136-1149.
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A.M. Nieuwenhuijse, D.L. Willems, J.B. van Goudoever & E. Olsman. (2023) Parent perspectives on the assessment of quality of life of their children with profound intellectual and multiple disabilities in the Netherlands. Research in Developmental Disabilities 139, pages 104536.
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Noemi Heister, Peter Zentel & Stefanie Köb. (2023) Participation in Everyday Leisure and Its Influencing Factors for People with Intellectual Disabilities: A Scoping Review of the Empirical Findings. Disabilities 3:2, pages 269-294.
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Jordi Carrillo Pujol. (2022) La discapacidad de especial dificultad. Perspectivas y líneas de actuación. Siglo Cero Revista Española sobre Discapacidad Intelectual 53:4, pages 53-67.
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Marie Matérne & Marie Holmefur. (2022) Residential care staff are the key to quality of health care for adults with profound intellectual and multiple disabilities in Sweden. BMC Health Services Research 22:1.
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Vivette J C van Cooten, Marieke F M Gielissen, Ghislaine A P G van Mastrigt, Wouter den Hollander, Silvia M A A Evers, Odile Smeets, Filip Smit & Brigitte Boon. (2022) Smart Continence Care for People With Profound Intellectual and Multiple Disabilities: Protocol for a Cluster Randomized Trial and Trial-Based Economic Evaluation. JMIR Research Protocols 11:11, pages e42555.
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Lauren Emily Yuile, Andy Smidt & Sinead Quinlan. (2020) Valuing relationships: The impact of a sensory program on the interactions of adolescents with severe-to-profound intellectual disabilities. Journal of Intellectual Disabilities 25:4, pages 527-553.
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Marie‐Christine Rousseau, Jean‐Francois Dagois, Claire Lausecker, Eric Humbertclaude, Alain Dominique, Ilyes Hamouda, Pascal Auquier, Thierry Billette de Villemeur & Karine Baumstarck. (2021) Healthcare of Persons With Complex Developmental Disabilities From Three European Experiences: France, Italy, and Norway. Journal of Policy and Practice in Intellectual Disabilities 18:4, pages 273-278.
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Von Ralph Dane Marquez Herbuela, Tomonori Karita, Yoshiya Furukawa, Yoshinori Wada, Yoshihiro Yagi, Shuichiro Senba, Eiko Onishi & Tatsuo Saeki. (2021) Integrating Behavior of Children with Profound Intellectual, Multiple, or Severe Motor Disabilities With Location and Environment Data Sensors for Independent Communication and Mobility: App Development and Pilot Testing. JMIR Rehabilitation and Assistive Technologies 8:2, pages e28020.
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Eva Svensson & Lisbeth Nilsson. (2020) Inter‐rater reliability of the assessment of learning powered mobility use, version 2.0, when applied with children and adults engaged in Driving to Learn in a powered wheelchair. Australian Occupational Therapy Journal 68:2, pages 115-123.
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Ramón Enrique Aja Ramos, Jose Ángel Rus Foronda, Ainhoa Ezquerro Martínez, Mirko Gerolin Pelucci, Agustín Illera Martínez, Sergio Martínez Torres, Carmen Montes Benedicte & Gemma Pernía Vela. (2020) Resultados personales: una perspectiva longitudinal de la calidad de vida. Siglo Cero Revista Española sobre Discapacidad Intelectual 51:3, pages 61-82.
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Sara Nijs. (2020) Peer interactions among persons with profound intellectual and multiple disabilities. La nouvelle revue - Éducation et société inclusives N° 88:1, pages 153-169.
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Sara Nijs. (2020) Interactions entre pairs chez les personnes polyhandicapées. La nouvelle revue - Éducation et société inclusives N° 88:1, pages 135-152.
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Laura Gormley, Olive Healy, Amanda Doherty, Darragh O’Regan & Ian Grey. (2019) Staff Training in Intellectual and Developmental Disability Settings: a Scoping Review. Journal of Developmental and Physical Disabilities 32:2, pages 187-212.
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Hadewych R. M. M. Schepens, Joris Van Puyenbroeck & Bea Maes. (2018) How to improve the quality of life of elderly people with intellectual disability: A systematic literature review of support strategies. Journal of Applied Research in Intellectual Disabilities 32:3, pages 483-521.
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S. Damen, S. Kef, M. Worm, M. J. Janssen & C. Schuengel. (2011) Effects of video-feedback interaction training for professional caregivers of children and adults with visual and intellectual disabilities. Journal of Intellectual Disability Research 55:6, pages 581-595.
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Vera Munde, Carla Vlaskamp, Wied Ruijssenaars & Han Nakken. (2009) Experts Discussing “Alertness in Individuals with PIMD”: A Concept Mapping Procedure. Journal of Developmental and Physical Disabilities 21:4, pages 263-277.
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