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ARTICLES

Professionals’ views on the roles and needs of family carers of adults with cerebral palsy and complex communication needs in hospital

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Pages 127-136 | Published online: 10 Jul 2009

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Read on this site (10)

Betty-Jean M Dee-Price, Lorna Hallahan, Diane Nelson Bryen & Joanne M Watson. (2021) Every voice counts: exploring communication accessible research methods. Disability & Society 36:2, pages 240-264.
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Jessica Gosnell Caron & Janice Light. (2017) Social media experiences of adolescents and young adults with cerebral palsy who use augmentative and alternative communication. International Journal of Speech-Language Pathology 19:1, pages 30-42.
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Abby Foster, Robyn O’Halloran, Miranda Rose & Linda Worrall. (2016) “Communication is taking a back seat”: speech pathologists’ perceptions of aphasia management in acute hospital settings. Aphasiology 30:5, pages 585-608.
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Suzanne Prior, Annalu Waller & Thilo Kroll. (2013) Focus groups as a requirements gathering method with adults with severe speech and physical impairments. Behaviour & Information Technology 32:8, pages 752-760.
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Bronwyn Hemsley, Maryanne Werninck & Linda Worrall. (2013) “That really shouldn't have happened”: People with aphasia and their spouses narrate adverse events in hospital. Aphasiology 27:6, pages 706-722.
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Barbara Collier, Sarah W. Blackstone & Andrew Taylor. (2012) Communication Access to Businesses and Organizations for People with Complex Communication Needs. Augmentative and Alternative Communication 28:4, pages 205-218.
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Andrea Lesperance, Stefanie Blain & Tom Chau. (2011) An Integrated Approach to Detecting Communicative Intent Amid Hyperkinetic Movements in Children. Augmentative and Alternative Communication 27:3, pages 150-162.
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Yona Lunsky, Ami Tint, Suzanne Robinson, Alin Khodaverdian & Christine Jaskulski. (2011) Emergency Psychiatric Service Use by Individuals With Intellectual Disabilities Living With Family. Journal of Mental Health Research in Intellectual Disabilities 4:3, pages 172-185.
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Ruth Webber, Barbara Bowers & Christine Bigby. (2010) Hospital experiences of older people with intellectual disability: Responses of group home staff and family members. Journal of Intellectual & Developmental Disability 35:3, pages 155-164.
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Articles from other publishers (16)

Irene Belperio, Kim Devery, Deidre D Morgan, Deb Rawlings, Parimala Raghavendra & Ruth Walker. (2022) Health and disability care providers’ experiences and perspectives on end-of-life care needs of individuals with long-standing physical disability: A qualitative interview study. Palliative Medicine 37:1, pages 131-139.
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Carolyn Baylor, Cait Brown, Tracy M. Mroz & Michael Burns. (2022) Understanding How Older Adults with Communication Difficulties Access Health Services: What We Can Learn from the National Health and Aging Trends Study (NHATS). Seminars in Speech and Language 43:03, pages 176-197.
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Manjula Manikandan, Claire Kerr, Grace Lavelle, Michael Walsh, Aisling Walsh & Jennifer M Ryan. (2021) Health service use among adults with cerebral palsy: a mixed‐methods systematic review. Developmental Medicine & Child Neurology 64:4, pages 429-446.
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Ruth Northway, Stacey Rees, Michelle Davies & Sharon Williams. (2017) Hospital passports, patient safety and person-centred care: A review of documents currently used for people with intellectual disabilities in the UK. Journal of Clinical Nursing 26:23-24, pages 5160-5168.
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Bronwyn Hemsley, Andrew Georgiou, Rob Carter, Sophie Hill, Isabel Higgins, Paulette van Vliet & Susan Balandin. (2016) Use of the My Health Record by people with communication disability in Australia. Health Information Management Journal 45:3, pages 107-115.
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Bronwyn Hemsley, Andrew Georgiou, Sophie Hill, Megan Rollo, Joanne Steel & Susan Balandin. (2016) An integrative review of patient safety in studies on the care and safety of patients with communication disabilities in hospital. Patient Education and Counseling 99:4, pages 501-511.
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Michael Burns, Carolyn Baylor, Brian J. Dudgeon, Helene Starks & Kathryn Yorkston. (2015) Asking the Stakeholders: Perspectives of Individuals With Aphasia, Their Family Members, and Physicians Regarding Communication in Medical Interactions. American Journal of Speech-Language Pathology 24:3, pages 341-357.
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M. Wade Shrader, John Jones, Mandy N. Falk, Greg R. White, David R. Burk & Lee S. Segal. (2015) Hip reconstruction is more painful than spine fusion in children with cerebral palsy. Journal of Children's Orthopaedics 9:3, pages 221-225.
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Mohsen Adib-Hajbaghery & Zahra Rezaei-Shahsavarloo. (2015) Nursing students' knowledge of and performance in communicating with patients with hearing impairment. Japan Journal of Nursing Science 12:2, pages 135-144.
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M. Wade Shrader, Mandy N. Falk, Richard S. Cotugno, John S. Jones, Greg R. White & Lee S. Segal. (2014) Are We Undermedicating Patients With Neuromuscular Scoliosis After Posterior Spinal Fusion?. Spine Deformity 2:5, pages 399-403.
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Mohsen Adib Hajbaghery & Zahra Rezaei Shahsavarloo. (2014) Assessing the Nursing and Midwifery Students Competencies in Communication With Patients With Severe Communication Problems. Nursing and Midwifery Studies 3:2.
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Laurie BuysRosemary AirdEvonne Miller. (2018) Active Ageing among Older Adults with Lifelong Intellectual Disabilities: The Role of Familial and Nonfamilial Social Networks. Families in Society: The Journal of Contemporary Social Services 93:1, pages 55-64.
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Bronwyn Hemsley, Susan Balandin & Linda Worrall. (2011) Nursing the patient with complex communication needs: time as a barrier and a facilitator to successful communication in hospital. Journal of Advanced Nursing 68:1, pages 116-126.
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Bronwyn Hemsley, Susan Balandin & Linda Worrall. (2011) Nursing the Patient With Developmental Disability in Hospital. Qualitative Health Research 21:12, pages 1632-1642.
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Gail K. Auslander. (2011) Family caregivers of hospitalized adults in Israel: A point-prevalence survey and exploration of tasks and motives. Research in Nursing & Health 34:3, pages 204-217.
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Bronwyn Hemsley, Susan Balandin & Leanne Togher. (2007) Family Caregivers Discuss Roles and Needs in Supporting Adults with Cerebral Palsy and Complex Communication Needs in the Hospital Setting. Journal of Developmental and Physical Disabilities 20:3, pages 257-274.
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