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Articles

Linked data: Opportunities and challenges in disability research

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Pages 285-291 | Published online: 10 Jul 2009

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Susan S. Johnston, Cheri W. Blue & Sondra M. Stegenga. (2022) AAC barriers and facilitators for children with Koolen de Vries syndrome and childhood apraxia of speech: parent perceptions. Augmentative and Alternative Communication 38:3, pages 148-160.
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Ben Kraal, Kate van Dooren, Vesna Popovic, Nick Lennox & Alison Livingstone. (2018) The role of electronic records in disability support. Research and Practice in Intellectual and Developmental Disabilities 5:1, pages 20-34.
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Articles from other publishers (19)

Christian M. Connell. 2023. Strengthening Child Safety and Well-Being Through Integrated Data Solutions. Strengthening Child Safety and Well-Being Through Integrated Data Solutions 1 11 .
Sandra M. Marquis, Kimberlyn McGrail & Michael V. Hayes. (2020) Mental health outcomes among parents of a child who has a developmental disability: Comparing different types of developmental disability. Disability and Health Journal 13:2, pages 100874.
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Sandra Maureen Marquis, Kimberlyn McGrail & Michael Hayes. (2020) Mental health of parents of children with a developmental disability in British Columbia, Canada. Journal of Epidemiology and Community Health 74:2, pages 173-178.
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Sandra Marquis, Kimberlyn McGrail & Michael V Hayes. (2020) Using administrative data to examine variables affecting the mental health of siblings of children who have a developmental disability. Research in Developmental Disabilities 96, pages 103516.
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Sandra M. Marquis, Kimberlyn McGrail & Michael V. Hayes. (2019) A population-level study of the mental health of siblings of children who have a developmental disability. SSM - Population Health 8, pages 100441.
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Roy McConkey, Sarah Craig & Caraíosa Kelly. (2019) The prevalence of intellectual disability: A comparison of national census and register records. Research in Developmental Disabilities 89, pages 69-75.
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Daniel J. Friedman, R. Gibson Parrish & Michael H. Fox. (2018) A Review of Global Literature on Using Administrative Data to Estimate Prevalence of Intellectual and Developmental Disabilities. Journal of Policy and Practice in Intellectual Disabilities 15:1, pages 43-62.
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Nawi Ng, Eva Flygare Wallén & Gerd Ahlström. (2017) Mortality patterns and risk among older men and women with intellectual disability: a Swedish national retrospective cohort study. BMC Geriatrics 17:1.
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Dana DeHart & Cheri Shapiro. (2016) Integrated Administrative Data & Criminal Justice Research. American Journal of Criminal Justice 42:2, pages 255-274.
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Svetlana Yampolskaya. (2018) Research at Work: Administrative Data and Behavioral Sciences Research. Families in Society: The Journal of Contemporary Social Services 98:2, pages 121-125.
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Michelle Tew, Kim M. Dalziel, Dennis J. Petrie & Philip M. Clarke. (2017) Growth of linked hospital data use in Australia: a systematic review. Australian Health Review 41:4, pages 394.
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Jane Wu, Steven G. Faux, Ian Harris, Christopher J. Poulos & Tara Alexander. (2016) Record linkage is feasible with non‐identifiable trauma and rehabilitation datasets. Australian and New Zealand Journal of Public Health 40:3, pages 245-249.
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Jane Moon, Mary P. Galea & Megan Bohensky. 2015. Big Data Analytics in Bioinformatics and Healthcare. Big Data Analytics in Bioinformatics and Healthcare 392 405 .
Elizabeth Lin, Robert Balogh, Barry Isaacs, Helene Ouellette-Kuntz, Avra Selick, Andrew S. Wilton, Virginie Cobigo & Yona Lunsky. (2014) Strengths and Limitations of Health and Disability Support Administrative Databases for Population-Based Health Research in Intellectual and Developmental Disabilities. Journal of Policy and Practice in Intellectual Disabilities 11:4, pages 235-244.
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Maria Vutcovici, Alain Bitton, Maida Sewitch, Paul Brassard, Valérie Patenaude & Samy Suissa. (2014) Time-related Bias in Administrative Health Database Studies of Disease Incidence. Epidemiology 25:6, pages 930-932.
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Joanne Wilkinson, Emily Lauer, Nechama W. Greenwood, Karen M. Freund & Amy K. Rosen. (2014) Evaluating Representativeness and Cancer Screening Outcomes in a State Department of Developmental Services Database. Intellectual and Developmental Disabilities 52:2, pages 136-146.
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Helen Leonard, Emma Glasson, Ami Bebbington, Geoff Hammond, Deirdre Croft, Terri Pikora, Jenny Fairthorne, Melissa O’Donnell, Colleen O’Leary, Michele Hansen, Linda Watson, Richard W. Francis, Kim W. Carter, Anne McKenzie, Carol Bower, Jenny Bourke & Rebecca Glauert. 2013. Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families. Using Secondary Datasets to Understand Persons with Developmental Disabilities and their Families 281 327 .
Osnat Lavenda, Beverly Hunter, McInerney Noelle, Leigh Bolick, Catherine Haselden, Diana Tester, Herman Knopf & Yoonsook Ha. (2010) Administrative Data as Children’s Well-Being Indicators: The South Carolina Data Bridge Project. Child Indicators Research 4:3, pages 439-451.
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Sheena G. Sullivan & Rafat Hussain. (2008) Hospitalisation for cancer and co-morbidities among people with learning disability in Australia. British Journal of Learning Disabilities 36:3, pages 191-197.
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