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Journal of Intellectual & Developmental Disability Volume 34, 2009 - Issue 3
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Articles

Understanding mealtime changes for adults with cerebral palsy and the implications for support servicesFootnote

Susan Balandin University College Molde, Norway; The University of Sydney, AustraliaCorrespondence[email protected]
,
Bronwyn Hemsley The University of Sydney, Australia; The University of Queensland, Australia
,
Leah Hanley The University of Sydney, Australia
&
Justine Joan Sheppard Teacher's College, Columbia University, New York
Pages 197-206 | Published online: 19 Sep 2009

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Read on this site (10)

Rebecca Smith, Lucy Bryant & Bronwyn Hemsley. (2022) Perspectives of people with dysphagia and their supporters on the potential for 3D food printing to improve mealtime-related quality of life. Disability and Rehabilitation: Assistive Technology 0:0, pages 1-9.
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Beatrice Manduchi, Margaret Walshe, Éilish Burke, Rachael Carroll, Philip McCallion & Mary McCarron. (2021) Prevalence and risk factors of choking in older adults with intellectual disability: Results from a national cross-sectional study. Journal of Intellectual & Developmental Disability 46:2, pages 126-137.
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Lianne Remijn, Lenie van den Engel-Hoek, Ton Satink, Bert J. M. de Swart & Maria W. G. Nijhuis-van der Sanden. (2019) “Everyone sees you sitting there struggling with your food”: experiences of adolescents and young adults with cerebral palsy. Disability and Rehabilitation 41:16, pages 1898-1905.
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Janet Robertson, Darren Chadwick, Susannah Baines, Eric Emerson & Chris Hatton. (2018) People with intellectual disabilities and dysphagia. Disability and Rehabilitation 40:11, pages 1345-1360.
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Leigha Jane Dark, Lindy Clemson & Susan Balandin. (2016) Communication changes experienced by adults with cerebral palsy as they age. International Journal of Speech-Language Pathology 18:6, pages 521-532.
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Bronwyn Hemsley, Susan Balandin, Justine Joan Sheppard, Andrew Georgiou & Sophie Hill. (2015) A call for dysphagia-related safety incident research in people with developmental disabilities. Journal of Intellectual & Developmental Disability 40:1, pages 99-103.
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Ulrika Ferm, Elisabeth Ahlsén & Eva Björck-Åkesson. (2012) Patterns of communicative interaction between a child with severe speech and physical impairments and her caregiver during a mealtime activity. Journal of Intellectual & Developmental Disability 37:1, pages 11-26.
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Angela Dew, Susan Balandin & Gwynnyth Llewellyn. (2011) Using a Life Course Approach to Explore How the Use of AAC Impacts on Adult Sibling Relationships. Augmentative and Alternative Communication 27:4, pages 245-255.
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Susan Balandin & Monique Hines. (2011) The involvement of people with lifelong disability and communication impairment in lecturing to speech-language pathology students. International Journal of Speech-Language Pathology 13:5, pages 436-445.
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Päivi Adolfsson, Ylva Mattsson Sydner & Christina Fjellström. (2010) Social aspects of eating events among people with intellectual disability in community living. Journal of Intellectual & Developmental Disability 35:4, pages 259-267.
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Articles from other publishers (30)

Sotiriοs Ι. Εkonomou, Miroslav Hadnađev, Aristea Gioxari, Olawoyin Rantimi Abosede, Shwe Soe & Alexandros Ch. Stratakos. (2024) Advancing dysphagia-oriented multi-ingredient meal development: Optimising hydrocolloid incorporation in 3D printed nutritious meals. Food Hydrocolloids 147, pages 109300.
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Aslak Emil Lyster, Solvejg Lis Hansen, Christina Therese Andersen, Jens Bo Nielsen, Klaas Westerterp, Loek Wouters, Bente Kiens & Anina Ritterband-Rosenbaum. (2023) Oral Motor Impairments Contribute to Weight Status of Adults with Severe Cerebral Palsy. Nutrients 15:24, pages 5042.
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Philemon Benison Dasari, Himanshu Verma, Harisha Madishetty, Jothirmai Pagidimarri & Janaki Balaji. (2023) Transadaptation and Validation of the Telugu Version of the Dysphagia Handicap Index. Seminars in Speech and Language.
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Rebecca Smith, Lucy Bryant & Bronwyn Hemsley. (2022) The true cost of dysphagia on quality of life: The views of adults with swallowing disability. International Journal of Language & Communication Disorders 58:2, pages 451-466.
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Bedoor S. Nagshabandi, Lauren Zinnershine & Samantha E. Shune. (2023) A Review of Factors Contributing to Adults' Adherence to Dysphagia Dietary Recommendations Through an Ecological Lens. American Journal of Speech-Language Pathology 32:1, pages 341-357.
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You Gyoung Yi. 2023. Diet and Nutrition in Neurological Disorders. Diet and Nutrition in Neurological Disorders 335 348 .
Rebecca Smith, Lucy Bryant & Bronwyn Hemsley. (2022) “Know the risks but balance that with their enjoyment”: Impacts of dysphagia on quality of life from the perspectives of allied health professionals. Advances in Communication and Swallowing 25:2, pages 83-95.
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You Gyoung Yi. (2022) Intervention for swallowing problems in adults with cerebral palsy. Developmental Medicine & Child Neurology 64:8, pages 938-939.
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Anita McAllister, Eva Sjöstrand & Elisabet Rodby‐Bousquet. (2022) Eating and drinking ability and nutritional status in adults with cerebral palsy. Developmental Medicine & Child Neurology 64:8, pages 1017-1024.
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Courtney Reddacliff, Bronwyn Hemsley, Rebecca Smith, Sayne Dalton, Sarah Jones, Amy Fitzpatrick, Fiona Given, Jack Kelly, Xanthe Lawson, Simon Darcy, Deborah Debono, Kath Benfer & Susan Balandin. (2022) Examining the Content and Outcomes of Training in Dysphagia and Mealtime Management: A Systematic Review Informing Co-Design of New Training. American Journal of Speech-Language Pathology 31:3, pages 1535-1552.
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Rebecca Smith, Lucy Bryant, Courtney Reddacliff & Bronwyn Hemsley. (2022) A review of the impact of food design on the mealtimes of people with swallowing disability who require texture-modified food. International Journal of Food Design 7:1, pages 7-28.
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Rebecca Smith, Lucy Bryant & Bronwyn Hemsley. (2022) Dysphagia and Quality of Life, Participation, and Inclusion Experiences and Outcomes for Adults and Children With Dysphagia: A Scoping Review. Perspectives of the ASHA Special Interest Groups 7:1, pages 181-196.
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Sung Eun Hyun, You Gyoung Yi & Hyung-Ik Shin. (2020) Reliability and Validity of the Eating and Drinking Ability Classification System in Adults with Cerebral Palsy. Dysphagia 36:3, pages 351-361.
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Beatrice Manduchi, Gina Marni Fainman & Margaret Walshe. (2019) Interventions for Feeding and Swallowing Disorders in Adults with Intellectual Disability: A Systematic Review of the Evidence. Dysphagia 35:2, pages 207-219.
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Renée Speyer, Reinie Cordier, Jae‐Hyun Kim, Naomi Cocks, Emilia Michou & Sarah Wilkes‐Gillan. (2019) Prevalence of drooling, swallowing, and feeding problems in cerebral palsy across the lifespan: a systematic review and meta‐analyses. Developmental Medicine & Child Neurology 61:11, pages 1249-1258.
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Bronwyn Hemsley, Joanne Steel, Justine Joan Sheppard, Georgia A. Malandraki, Lucy Bryant & Susan Balandin. (2019) Dying for a Meal: An Integrative Review of Characteristics of Choking Incidents and Recommendations to Prevent Fatal and Nonfatal Choking Across Populations. American Journal of Speech-Language Pathology 28:3, pages 1283-1297.
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You Gyoung Yi, Se Hee Jung & Moon Suk Bang. (2019) Emerging Issues in Cerebral Palsy Associated With Aging: A Physiatrist Perspective. Annals of Rehabilitation Medicine 43:3, pages 241-249.
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You Gyoung Yi, Byung-Mo Oh, Han Gil Seo, Hyung-Ik Shin & Moon Suk Bang. (2019) Dysphagia-Related Quality of Life in Adults with Cerebral Palsy on Full Oral Diet Without Enteral Nutrition. Dysphagia 34:2, pages 201-209.
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Han Gil Seo, You Gyoung Yi, Young-Ah Choi, Ja-ho Leigh, Youbin Yi, Keewon Kim & Moon Suk Bang. (2019) Oropharyngeal Dysphagia in Adults With Dyskinetic Cerebral Palsy and Cervical Dystonia: A Preliminary Study. Archives of Physical Medicine and Rehabilitation 100:3, pages 495-500.e1.
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Francesca Morgante, Ganesh Bavikatte, Fahim Anwar & Biju Mohamed. (2019) The burden of sialorrhoea in chronic neurological conditions: current treatment options and the role of incobotulinumtoxinA (Xeomin®). Therapeutic Advances in Neurological Disorders 12, pages 175628641988860.
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Seda AYAZ TAŞ & Tamer ÇANKAYA. (2018) Spastik Kuadriparetik Serebral Palsili Çocuklarin Beslenme Davranişlari İle Beslenme Düzeyleri Arasindaki İlişkinin Araştırılması. Sağlık Bilimleri ve Meslekleri Dergisi.
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Darren D. Chadwick. (2017) Dysphagia Management for People With Intellectual Disabilities: Practitioner Identified Processes, Barriers, and Solutions. Journal of Policy and Practice in Intellectual Disabilities 14:4, pages 319-331.
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C. M. Perez, A. P. Wagner, S. L. Ball, S. R. White, I. C. H. Clare, A. J. Holland & M. Redley. (2017) Prognostic models for identifying adults with intellectual disabilities and mealtime support needs who are at greatest risk of respiratory infection and emergency hospitalisation. Journal of Intellectual Disability Research 61:8, pages 737-754.
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Munir Dag, Eric Svanelöv & Christine Gustafsson. (2015) Experiences of using Bestic, an eating aid for people with intellectual disabilities. Journal of Intellectual Disabilities 21:1, pages 87-98.
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Susan Guthrie & Jois Stansfield. (2017) Teatime Threats. Choking Incidents at the Evening Meal. Journal of Applied Research in Intellectual Disabilities 30:1, pages 47-60.
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Bibiana Fuzer da Silva, Simone Augusta Finard & Maira Rozenfeld Olchik. (2016) Qualidade de vida em pacientes com doença de Machado-Joseph sob acompanhamento fonoaudiológico para disfagia. Revista CEFAC 18:4, pages 992-1000.
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Margaret A. Turk, Lynne Rommeiser Logan & Frieda Ansoanuur. (2013) Adults with Childhood Onset Disabilities: A Focused Review of Three Conditions. Current Physical Medicine and Rehabilitation Reports 1:2, pages 72-87.
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Susan Guthrie, Hazel Roddam, Sharmin Panna & Gordon Fairburn. (2012) Capacity to choose and refuse? A case study. Advances in Mental Health and Intellectual Disabilities 6:6, pages 293-300.
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S. L. Ball, S. G. Panter, M. Redley, C.‐A. Proctor, K. Byrne, I. C. H. Clare & A. J. Holland. (2011) The extent and nature of need for mealtime support among adults with intellectual disabilities. Journal of Intellectual Disability Research 56:4, pages 382-401.
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Cláudia Inês Oliveira Vianna & Heloisa Sawada Suzuki. (2011) Paralisia cerebral: análise dos padrões da deglutição antes e após intervenção fonoaudiológica. Revista CEFAC 13:5, pages 790-800.
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