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Original Articles

Fulfilling a sense of duty: how men and women giving care to spouses with multiple sclerosis interpret this role

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Pages 223-244 | Published online: 03 Jun 2010

Keep up to date with the latest research on this topic with citation updates for this article.

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Gogem Topcu, Heather Buchanan, Aimee Aubeeluck & Gülcan Garip. (2016) Caregiving in multiple sclerosis and quality of life: A meta-synthesis of qualitative research. Psychology & Health 31:6, pages 693-710.
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Catherine Jane Golics, Mohammad Khurshid Azam Basra, M Sam Salek & Andrew Yule Finlay. (2013) The impact of patients’ chronic disease on family quality of life: an experience from 26 specialties. International Journal of General Medicine 6, pages 787-798.
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Helene Starks, Megan A. Morris, Kathryn M. Yorkston, Robin F. Gray & Kurt L. Johnson. (2010) Being in- or out-of-sync: Couples' adaptation to change in multiple sclerosis. Disability and Rehabilitation 32:3, pages 196-206.
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Articles from other publishers (32)

Andrea Scerbe, Megan E. O’Connell, Arlene Astell, Debra Morgan, Julie Kosteniuk, Ivan Panyavin, Andrea DesRoches & Claire Webster. (2023) Digital tools for delivery of dementia education for caregivers of persons with dementia: A systematic review and meta-analysis of impact on caregiver distress and depressive symptoms. PLOS ONE 18:5, pages e0283600.
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Stefano Benini, Erika Pellegrini, Carlo Descovich & Alessandra Lugaresi. (2023) Burden and resources in caregivers of people with multiple sclerosis: A qualitative study. PLOS ONE 18:4, pages e0265297.
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Melissa A. Curran, Valerie J. Young, Nazlı Büşra Akçabozan Kayabol & Casey J. Totenhagen. (2022) A systematic review of relationship sacrifices from 2002 to 2021: Moving toward inclusivity. Personal Relationships 30:1, pages 76-112.
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Roshanth Rajachandrakumar & Marcia Finlayson. (2021) Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge. Health & Social Care in the Community 30:4.
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Anne Parkinson, Crystal Brunoro, Jack Leayr, Vanessa Fanning, Katrina Chisholm, Janet Drew, Jane Desborough & Christine Phillips. (2022) Intertwined like a double helix: A meta‐synthesis of the qualitative literature examining the experiences of living with someone with multiple sclerosis. Health Expectations 25:3, pages 803-822.
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Fatemeh Motaharinezhad, laleh lajevardi, Afsoon Hassani Mehraban & Setareh Ghahari. (2020) Occupational Challenges in the Caregivers of People with Multiple Sclerosis: A Qualitative Study. Middle East Journal of Rehabilitation and Health Studies 7:4.
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Belinda Cash, Suzanne Hodgkin & Jeni Warburton. (2017) A transformative approach to systems theory in caregiving research. Qualitative Social Work 18:4, pages 710-726.
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Belinda Cash, Jeni Warburton & Suzanne Hodgkin. (2018) Expectations of care within marriage for older couples. Australasian Journal on Ageing 38:1, pages E19-E24.
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Damien Appleton, Noelle Robertson, Laura Mitchell & Rosie Lesley. (2018) Our disease: a qualitative meta-synthesis of the experiences of spousal/partner caregivers of people with multiple sclerosis. Scandinavian Journal of Caring Sciences 32:4, pages 1262-1278.
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Lauren Killner & Andrew Soundy. (2018) Motivation and experiences of role transition in spousal caregivers of people with multiple sclerosis. International Journal of Therapy and Rehabilitation 25:8, pages 405-413.
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Chiara Rollero. (2016) The Experience of Men Caring for a Partner With Multiple Sclerosis. Journal of Nursing Scholarship 48:5, pages 482-489.
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Lori A. Mitchell, John Hirdes, Jeff W. Poss, Caroline Slegers-Boyd, Hilary Caldarelli & Lynn Martin. (2015) Informal caregivers of clients with neurological conditions: profiles, patterns and risk factors for distress from a home care prevalence study. BMC Health Services Research 15:1.
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Eun-Jeong Lee, Jessica Pieczynski, Samantha DeDios-Stern, Camille Simonetti & Gloria K. Lee. (2015) Gender differences in caregiver strain, needs for support, social support, and quality of life among spousal caregivers of persons with multiple sclerosis. Work 52:4, pages 777-787.
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Iftekhar Amin & Stan Ingman. (2014) Eldercare in the Transnational Setting: Insights from Bangladeshi Transnational Families in the United States. Journal of Cross-Cultural Gerontology 29:3, pages 315-328.
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Cristina Joy Torgé. (2014) Freedom and Imperative. Journal of Family Nursing 20:2, pages 204-225.
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Nic Hughes, Louise Locock & Sue Ziebland. (2013) Personal identity and the role of ‘carer’ among relatives and friends of people with multiple sclerosis. Social Science & Medicine 96, pages 78-85.
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Catherine Jane Golics, Mohammad Khurshid Azam Basra, Andrew Yule Finlay & Sam Salek. (2013) The impact of disease on family members: a critical aspect of medical care. Journal of the Royal Society of Medicine 106:10, pages 399-407.
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P. Milani. 2013. Aspetti psicologici nella sclerosi multipla. Aspetti psicologici nella sclerosi multipla 159 164 .
Catherine A. Marshall, Karen L. Weihs, Linda K. Larkey, Terry A. Badger, Susan Silverberg Koerner, Melissa A. Curran, Rosa Pedroza & Francisco A. R. García. (2011) “Like a Mexican Wedding”. Journal of Family Nursing 17:3, pages 380-402.
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Flora M. Hammond, Christine S. Davis, Omar Y. Whiteside, Peggy Philbrick & Mark A. Hirsch. (2011) Marital Adjustment and Stability Following Traumatic Brain Injury. Journal of Head Trauma Rehabilitation 26:1, pages 69-78.
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Kerry Mutch. (2010) In sickness and in health: experience of caring for a spouse with MS. British Journal of Nursing 19:4, pages 214-219.
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Karin S. Coyne, Louis S. Matza, Jessica Brewster‐Jordan, Christine Thompson & Tamara Bavendam. (2009) The psychometric validation of the OAB family impact measure (OAB‐FIM). Neurourology and Urodynamics 29:3, pages 359-369.
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Benedicte De Koker. 2010. Ageing, Care Need and Quality of Life. Ageing, Care Need and Quality of Life 204 221 .
Karin S. Coyne, Louis S. Matza & Jessica Brewster‐Jordan. (2009) “We have to stop again?!”: The impact of overactive bladder on family members. Neurourology and Urodynamics 28:8, pages 969-975.
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Margarita Corry & Alison While. (2009) The needs of carers of people with multiple sclerosis: a literature review. Scandinavian Journal of Caring Sciences 23:3, pages 569-588.
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A Bogosian, R Moss-Morris, L Yardley & L Dennison. (2009) Experiences of partners of people in the early stages of multiple sclerosis. Multiple Sclerosis Journal 15:7, pages 876-884.
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Cait Fraser & Deborah J. Warr. (2008) Challenging Roles: Insights Into Issues for Men Caring for Family Members With Mental Illness. American Journal of Men's Health 3:1, pages 36-49.
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Einat Peled & Ilana Sacks. (2008) The Self-Perception of Women Who Live With an Alcoholic Partner: Dialoging With Deviance, Strength, and Self-Fulfillment. Family Relations 57:3, pages 390-403.
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Victoria Team, Milica Markovic & Lenore Manderson. (2007) Family caregivers: Russian-speaking Australian women's access to welfare support. Health & Social Care in the Community 15:5, pages 397-406.
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Richard Russell. (2007) Men Doing "Women's Work:" Elderly Men Caregivers and the Gendered Construction of Care Work. The Journal of Men's Studies 15:1, pages 1-18.
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Susan Silverberg Koerner & DenYelle Baete Kenyon. (2007) Understanding "Good Days" and "Bad Days": Emotional and Physical Reactivity Among Caregivers for Elder Relatives. Family Relations 56:1, pages 1-11.
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Hennie R. Boeije, Mia S. H. Duijnstee & Maria H. F. Grypdonck. (2003) Continuation of caregiving among partners who give total care to spouses with multiple sclerosis. Health & Social Care in the Community 11:3, pages 242-252.
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