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Heor Trends

Patient value: its nature, measurement, and role in real world evidence studies and outcomes-based reimbursement

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Pages 474-480 | Received 15 Aug 2017, Accepted 26 Feb 2018, Published online: 23 Mar 2018

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Stephen P. McKenna & Alice Heaney. (2021) Setting and maintaining standards for patient-reported outcome measures: can we rely on the COSMIN checklists?. Journal of Medical Economics 24:1, pages 502-511.
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Stephen P. McKenna, Alice Heaney & Jeanette Wilburn. (2019) Measurement of patient-reported outcomes. 2: Are current measures failing us?. Journal of Medical Economics 22:6, pages 523-530.
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Debra Jones, Simon Lal, Chloe French, Anne Marie Sowerbutts, Matthew Gittins, Simon Gabe, Diane Brundrett, Alison Culkin, Chris Calvert, Beth Thompson, Sheldon C. Cooper, Jane Fletcher, Clare Donnellan, Alastair Forbes, Ching Lam, Shellie Radford, Christopher G. Mountford, Daniel Rogers, Rebecca Muggridge, Lisa Sharkey, Penny Neild, Carolyn Wheatley, Philip Stevens & Sorrel Burden. (2023) Investigating the Relationship between Home Parenteral Support and Needs-Based Quality of Life in Patients with Chronic Intestinal Failure: A National Multi-Centre Longitudinal Cohort Study. Nutrients 15:3, pages 622.
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James Luccarelli. (2022) Demographics and medical comorbidities among hospitalized patients with Prader–Willi Syndrome: A National Inpatient Sample analysis . American Journal of Medical Genetics Part A 188:10, pages 2899-2907.
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Graham B. Jones & Justin M. Wright. (2022) The economic imperatives for technology enabled wellness centered healthcare. Journal of Public Health Policy 43:3, pages 456-468.
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James Luccarelli, Thomas H. McCoyJrJr, Stephen J. Seiner & Michael E. Henry. (2021) Real‐world evidence of age‐independent electroconvulsive therapy efficacy: A retrospective cohort study. Acta Psychiatrica Scandinavica 145:1, pages 100-108.
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Alice Heaney, Jeanette Wilburn, Matthew Rouse, Shannon Langmead, Jaishri O. Blakeley, Susan Huson & Stephen P. McKenna. (2020) The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas. Molecular Genetics & Genomic Medicine 8:12.
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Jeppe Eriksen, Ann Bygholm & Pernille Bertelsen. (2020) The Purpose of Patient-Reported Outcome (PRO) Post Its Digitalization and Integration into Clinical Practice: An Interdisciplinary Redefinition Resembling PROs Theoretical and Practical Evolvement. Applied Sciences 10:21, pages 7507.
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Stephen P. McKenna, Matthew Rouse, Alice Heaney & Peter Hagell. (2020) International Development of the Alzheimer’s Patient Partners Life Impact Questionnaire (APPLIQue). American Journal of Alzheimer's Disease & Other Dementiasr 35, pages 153331752095169.
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Paul A. Manner. (2019) Guest Editorial: Is There Value in Value-based Health Care?. Clinical Orthopaedics & Related Research 477:2, pages 265-267.
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Alice Heaney, Jeanette Wilburn, Shannon Langmead, Jaishri Blakeley, Susan Huson, Carly Jim & Stephen P McKenna. (2019) A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1. SAGE Open Medicine 7, pages 205031211982968.
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