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Original Articles

Living with chronic risk: healthy women with a family history of breast/ovarian cancer

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Pages 315-331 | Published online: 12 May 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (10)

Carla L. Fisher, Amanda Kastrinos, Nicole Piemonte, Mollie R. Canzona, Bianca Wolf & Teri Pipe. (2022) Coping with breast cancer together: Challenging topics for mothers and their adolescent-young adult (AYA) daughters. Journal of Psychosocial Oncology 40:6, pages 756-769.
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Laura Louise Heinsen, Ayo Wahlberg & Helle Vendel Petersen. (2022) Surveillance life and the shaping of ‘genetically at risk’ chronicities in Denmark. Anthropology & Medicine 29:1, pages 29-44.
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Marleah Dean & Carla L. Fisher. (2019) Uncertainty and previvors’ cancer risk management: understanding the decision-making process. Journal of Applied Communication Research 47:4, pages 460-483.
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Mark Gaspar, Troy Grennan, Irving Salit & Daniel Grace. (2018) Confronting comorbidity risks within HIV biographies: gay men’s integration of HPV-associated anal cancer risk into their narratives of living with HIV. Health, Risk & Society 20:5-6, pages 276-296.
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Emily Ross, Tineke Broer, Anne Kerr & Sarah Cunningham-Burley. (2018) Identity, community and care in online accounts of hereditary colorectal cancer syndrome. New Genetics and Society 37:2, pages 117-136.
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CarlaL. Fisher. (2010) Coping with Breast Cancer across Adulthood: Emotional Support Communication in the Mother–Daughter Bond. Journal of Applied Communication Research 38:4, pages 386-411.
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Kanayo Umeh & Leonnie Jones. (2010) Mutually Dependent Health Beliefs Associated With Breast Self-examination in British Female University Students. Journal of American College Health 59:2, pages 126-131.
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Anna Ugalde, Paul Martin & Gwyneth Rees. (2008) Psychological impact of receiving genetic risk information for breast cancer, with and without lifestyle information. Australian Journal of Psychology 60:1, pages 1-9.
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Articles from other publishers (43)

Carla L. Fisher, Gemme Campbell-Salome, Diliara Bagautdinova, Kevin B. Wright, Larry F. Forthun, Kelsey C. Bacharz, M. Devyn Mullis, Bianca Wolf, Deidre B. Pereira, Lisa Spiguel & Carma L. Bylund. (2023) Young Adult Caregiving Daughters and Diagnosed Mothers Navigating Breast Cancer Together: Open and Avoidant Communication and Psychosocial Outcomes. Cancers 15:15, pages 3864.
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Friederike Kendel, Katharina Klein, Stephen Schüürhuis, Laura Besch, Markus A. Feufel & Dorothee Speiser. (2022) What Causes Cancer in Women with a gBRCA Pathogenic Variant? Counselees’ Causal Attributions and Associations with Perceived Control. Genes 13:8, pages 1399.
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Carla L. Fisher, Amanda Kastrinos, Alana Curley, Mollie R. Canzona, Nicole Piemonte, Bianca Wolf & Teri Pipe. (2022) Helping Diagnosed Mothers and Their Adolescent-Young Adult Daughters Navigate Challenging Breast Cancer Conversations. Cancer Care Research Online 2:3, pages e025.
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Audrey Fong Lien Kwong, Catherine Spencer & Sudha Sundar. 2022. Gynecological Oncology. Gynecological Oncology 27 34 .
Jens O. ZinnJens O. Zinn. 2020. Understanding Risk-Taking. Understanding Risk-Taking 145 223 .
Delyth Crimes & Gareth Enticott. (2019) Assessing the Social and Psychological Impacts of Endemic Animal Disease Amongst Farmers. Frontiers in Veterinary Science 6.
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Mikko Jauho. (2019) Patients‐in‐waiting or chronically healthy individuals? People with elevated cholesterol talk about risk. Sociology of Health & Illness 41:5, pages 867-881.
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Maria Caiata-Zufferey. (2018) The Abductive Art of Discovery. International Journal of Qualitative Methods 17:1, pages 160940691775097.
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Carla L. Fisher, Bianca M. Wolf, Craig Fowler & Mollie Rose Canzona. (2017) Experiences of “openness” between mothers and daughters during breast cancer: implications for coping and healthy outcomes. Psycho-Oncology 26:11, pages 1872-1880.
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Dawn Schroeder, Wendy Duggleby & Brenda L. Cameron. (2017) Moving In and Out of the What-Ifs. Cancer Nursing 40:5, pages 386-393.
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Hannah G. Fielden, Stephen L. Brown, Pooja Saini, Helen Beesley & Peter Salmon. (2017) How do women at increased breast cancer risk perceive and decide between risks of cancer and risk-reducing treatments? A synthesis of qualitative research. Psycho-Oncology 26:9, pages 1254-1262.
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Rebecca Llewellyn, Wayne Cunningham, Chrystal Jaye, Jessica Young, Richard Egan & Peter Radue. (2017) ‘Why worry about something you can’t control?’ Negotiated risk, longevity and health behaviours. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 21:3, pages 259-277.
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Jörgen Sparf. (2016) Disability and Vulnerability: Interpretations of Risk in Everyday Life. Journal of Contingencies and Crisis Management 24:4, pages 244-252.
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Britta Pelters & Barbro Wijma. (2015) Neither a sinner nor a saint: Health as a present-day religion in the age of healthism. Social Theory & Health 14:1, pages 129-148.
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Melissa J. Garner, Bonnie A. McGregor, Karly M. Murphy, Alex L. Koenig, Emily D. Dolan & Denise Albano. (2015) Optimism and depression: a new look at social support as a mediator among women at risk for breast cancer. Psycho-Oncology 24:12, pages 1708-1713.
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Maria Caiata-Zufferey. (2015) Genetically at-risk status and individual agency. A qualitative study on asymptomatic women living with genetic risk of breast/ovarian cancer. Social Science & Medicine 132, pages 141-148.
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Gabrielle T. Reid, Fiona M. Walter & Jon D. Emery. (2014) A Qualitative Evaluation of the Psychosocial Impact of Family History Screening in Australian Primary Care. Journal of Genetic Counseling 24:2, pages 312-324.
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Sharlene Hesse-Biber. (2014) The Genetic Testing Experience of BRCA-Positive Women. Qualitative Health Research 24:6, pages 773-789.
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Willem Eijzenga, Daniela EE Hahn, Neil K Aaronson, Irma Kluijt & Eveline MA Bleiker. (2013) Specific Psychosocial Issues of Individuals Undergoing Genetic Counseling for Cancer – A Literature Review. Journal of Genetic Counseling 23:2, pages 133-146.
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Maria Caiata-Zufferey. (2013) Des données aux indicesFrom data to clues. About discovery procedures in a study on the management of genetic risk of breast/ovarian cancer. SociologieS.
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Gareth Enticott, Alex Franklin & Steven Van Winden. (2012) Biosecurity and food security: spatial strategies for combating bovine tuberculosis in the UK . The Geographical Journal 178:4, pages 327-337.
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Carma L. Bylund, Carla L. Fisher, Dale Brashers, Shawna Edgerson, Emily A. Glogowski, Sherry R. Boyar, Yelena Kemel, Sara Spencer & David Kissane. (2011) Sources of Uncertainty About Daughters’ Breast Cancer Risk that Emerge During Genetic Counseling Consultations. Journal of Genetic Counseling 21:2, pages 292-304.
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Louise A Keogh, Belinda J McClaren, Carmel Apicella & John L Hopper. (2011) How do women at increased, but unexplained, familial risk of breast cancer perceive and manage their risk? A qualitative interview study. Hereditary Cancer in Clinical Practice 9:1.
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Holly Etchegary. (2010) ‘I put it on the back burner most days’: Living with chronic risk. Health:: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 15:6, pages 633-649.
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Christine Holmberg, Mary Daly & Worta McCaskill-Stevens. (2010) Risk scores and decision making: the anatomy of a decision to reduce breast cancer risk. Journal of Nursing and Healthcare of Chronic Illness 2:4, pages 271-280.
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Holly Etchegary, Louise Lemyre & Brenda Wilson. (2010) Bringing the Social into Genetics: The Psychosocial Genetics Risk Assessment and Management Framework (PG-RAM). Current Psychology 29:3, pages 171-187.
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Wendy L. Lipworth, Heather M. Davey, Stacy M. Carter, Claire Hooker & Wendy Hu. (2010) Beliefs and beyond: what can we learn from qualitative studies of lay people’s understandings of cancer risk?. Health Expectations 13:2, pages 113-124.
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Heather A. Douglas, Rebekah J. Hamilton & Robin E. Grubs. (2009) The Effect of BRCA Gene Testing on Family Relationships: A Thematic Analysis of Qualitative Interviews. Journal of Genetic Counseling 18:5, pages 418-435.
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Rebekah Hamilton. (2009) Genetics: Breast Cancer as an Exemplar. Nursing Clinics of North America 44:3, pages 327-338.
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Michelle Proulx, Marie‐Dominique Beaulieu, Christine Loignon, Marie‐Hélène Mayrand, Christine Maugard, Nathalie Bellavance & Diane Provencher. (2009) Experiences and Decisions that Motivate Women at Increased Risk of Breast Cancer to Participate in an Experimental Screening Program. Journal of Genetic Counseling 18:2, pages 160-172.
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Rebekah Hamilton, Janet K. Williams, Barbara J. Bowers & Kathleen Calzone. (2008) Life Trajectories, Genetic Testing, and Risk Reduction Decisions in 18–39 Year Old Women at Risk for Hereditary Breast and Ovarian Cancer. Journal of Genetic Counseling 18:2, pages 147-159.
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Cheryl B. Crotser & Marcia Boehmke. (2009) Survivorship considerations in adults with hereditary breast and ovarian cancer syndrome: state of the science. Journal of Cancer Survivorship 3:1, pages 21-42.
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Holly Etchegary, Brenda Wilson, Jamie Brehaut, Allison Lott, Nicole Langlois & Philip S. Wells. (2008) Psychosocial aspects of venous thromboembolic disease: An exploratory study. Thrombosis Research 122:4, pages 491-500.
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Mary McCullum, Joan L Bottorff, Mary Kelly, Stephanie A Kieffer & Lynda G Balneaves. (2007) Time to decide about risk-reducing mastectomy: A case series of BRCA1/2 gene mutation carriers. BMC Women's Health 7:1.
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Regina H. Kenen, Pamela J. Shapiro, Liisa Hantsoo, Susan Friedman & James C. Coyne. (2007) Women with BRCA1 or BRCA2 Mutations Renegotiating a Post‐Prophylactic Mastectomy Identity: Self‐Image and Self‐Disclosure. . Journal of Genetic Counseling 16:6, pages 789-798.
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Gwyneth Rees, Clara Gaff, Mary‐Anne Young & Paul R. Martin. (2007) Health Beliefs and Behaviors of Women Who Have Received Genetic Counseling For Breast Cancer. Journal of Genetic Counseling 16:4, pages 457-468.
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Tom Sanders, Rona Campbell, Jenny Donovan & Debbie Sharp. (2016) Narrative Accounts of Hereditary Risk. Qualitative Health Research 17:4, pages 510-520.
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Talya Salant, Pamela S. Ganschow, Olufunmilayo I. Olopade & Diane S. Lauderdale. (2006) “Why take it if you don’t have anything?” breast cancer risk perceptions and prevention choices at a public hospital. Journal of General Internal Medicine 21:7, pages 779-785.
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Regina Kenen, Audrey Ardern‐Jones & Rosalind Eeles. (2006) “Social Separation” Among Women Under 40 Years of Age Diagnosed with Breast Cancer and Carrying a BRCA1 or BRCA2 Mutation . Journal of Genetic Counseling 15:3, pages 149-162.
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E WinchesterShirley V Hodgson. (2016) Psychosocial and Ethical Issues Relating to Genetic Testing for BRCA1 and BRCA2 Breast Cancer Susceptibility Genes . Women's Health 2:3, pages 357-373.
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A. ARDERN-JONES, R. KENEN & R. EELES. (2005) Too much, too soon? Patients and health professionals' views concerning the impact of genetic testing at the time of breast cancer diagnosis in women under the age of 40. European Journal of Cancer Care 14:3, pages 272-281.
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Holly Etchegary. (2004) Psychological Aspects of Predictive Genetic-Test Decisions: What Do We Know So Far?. Analyses of Social Issues and Public Policy 4:1, pages 13-31.
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Regina Kenen, Audrey Ardern-Jones & Rosalind Eeles. (2003) Family stories and the use of heuristics: women from suspected hereditary breast and ovarian cancer (HBOC) families. Sociology of Health and Illness 25:7, pages 838-865.
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