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Journal of Occupational Science Volume 30, 2023 - Issue 4
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Feature Articles

“I can control what I do with my daily life”: Occupational experiences of adolescents and young adults with Li-Fraumeni Syndrome

Alix G. Sleighta Department of Physical Medicine and Rehabilitation, Cedars-Sinai Medical Centre, Los Angeles, Chumash, Tongva, & Kizh Territory, California, USA;b Center for Integrated Research in Cancer and Lifestyle, Cedars-Sinai Medical Centre, Los Angeles, Chumash, Tongva, & Kizh Territory, California, USA;c Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, Bethesda, Piscataway Territory, Maryland, USACorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0001-5317-060X
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Camella J. Risingc Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, Bethesda, Piscataway Territory, Maryland, USAORCID Iconhttps://orcid.org/0000-0002-4099-528X
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Patrick Boydd Behavioral Research Program, Department of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, Piscataway Territory, Maryland, USAORCID Iconhttps://orcid.org/0000-0001-9950-2745
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Catherine Wilsnacke Steve Hicks School of Social Work, University of Texas at Austin, Austin, Texas, USAORCID Iconhttps://orcid.org/0000-0001-5427-1015
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Margaret Goodfellowf Mrs. T. H. Chan Division of Occupational Science & Occupational Therapy, University of Southern California, Los Angeles, Chumash, Tongva, & Kizh Territory, California, USA
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Payal P. Khinchac Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, Bethesda, Piscataway Territory, Maryland, USAORCID Iconhttps://orcid.org/0000-0003-2473-7800
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Allison Werner-Linc Clinical Genetics Branch, Division of Cancer Epidemiology and Genetics, National Cancer Institute, Bethesda, Piscataway Territory, Maryland, USAORCID Iconhttps://orcid.org/0000-0003-3133-820X
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Pages 661-672 | Accepted 31 Jan 2022, Published online: 24 Mar 2022

Citations (3)

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Read on this site (1)

Clare Hocking. (2023) Editorial. Journal of Occupational Science 30:4, pages 533-538.
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Articles from other publishers (2)

Allison Werner‐Lin, Rowan Forbes Shepherd, Camella J. Rising, Ashley S. Thompson, Chloe Huelsnitz, Catherine Wilsnack, Patrick Boyd, Alix G. Sleight, Sadie Hutson & Payal P. Khincha. (2023) How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? “ With Li‐Fraumeni syndrome, it’s just an intermission ” . Psycho-Oncology 32:3, pages 375-382.
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Camella J. Rising, Catherine Wilsnack, Patrick Boyd, Alix G. Sleight, Sadie P. Hutson, Payal P. Khincha & Allison Werner-Lin. (2022) Family communication challenges of adolescents and young adults with Li-Fraumeni syndrome: Implications for psychosocial care. Patient Education and Counseling 105:11, pages 3259-3266.
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