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New Genetics and Society
Critical Studies of Contemporary Biosciences
Volume 30, 2011 - Issue 4
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Articles

DTC genetic testing companies fail transparency prescriptions

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Pages 291-307 | Published online: 01 Nov 2011

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Emily Christofides & Kieran O’Doherty. (2016) Company disclosure and consumer perceptions of the privacy implications of direct-to-consumer genetic testing. New Genetics and Society 35:2, pages 101-123.
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KENTARO NAGAI, MIKIHITO TANAKA, ALESSANDRO R. MARCON, RYUMA SHINEHA, KATSUSHI TOKUNAGA, TIMOTHY CAULFIELD & YASUKO TAKEZAWA. (2023) Comparing direct-to-consumer genetic testing services in English, Japanese, and Chinese websites. Anthropological Science 131:1, pages 3-13.
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Piotr S. Bobkowski, John C. Watson & Olushola O. Aromona. (2020) A Little Bit of That from One of Your Grandparents: Interpreting Others’ Direct-to-Consumer Genetic Ancestry Results. Genealogy 4:2, pages 54.
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A. C. Palk, S. Dalvie, J. de Vries, A. R. Martin & D. J. Stein. (2019) Potential use of clinical polygenic risk scores in psychiatry – ethical implications and communicating high polygenic risk. Philosophy, Ethics, and Humanities in Medicine 14:1.
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Erin Tutty, Chriselle Hickerton, Melissa M. Adamski & Sylvia A. Metcalfe. (2019) Personal genomic testing for nutrition and wellness in Australia: A content analysis of online information. Nutrition & Dietetics 76:3, pages 263-270.
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Suchetana De, Anna-Maija Pietilä, Terhi Iso-Touru, Anu Hopia, Raija Tahvonen & Kirsi Vähäkangas. (2019) Information Provided to Consumers about Direct-to-Consumer Nutrigenetic Testing. Public Health Genomics 22:5-6, pages 162-173.
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Ramzi G. Salloum, Thomas J. George, Natalie Silver, Merry-Jennifer Markham, Jaclyn M. Hall, Yi Guo, Jiang Bian & Elizabeth A. Shenkman. (2018) Rural-urban and racial-ethnic differences in awareness of direct-to-consumer genetic testing. BMC Public Health 18:1.
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Lauren Badalato, Louiza Kalokairinou & Pascal Borry. (2017) Third party interpretation of raw genetic data: an ethical exploration. European Journal of Human Genetics 25:11, pages 1189-1194.
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Jada G. Hamilton, Elyse Shuk, Guedy Arniella, C. Javier González, Geoffrey S. Gold, Francesca Gany, Mark E. Robson & Jennifer L. Hay. (2016) Genetic Testing Awareness and Attitudes among Latinos: Exploring Shared Perceptions and Gender-Based Differences. Public Health Genomics 19:1, pages 34-46.
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Kevin Dew, Anne Scott & Allison KirkmanKevin Dew, Anne Scott & Allison Kirkman. 2016. Social, Political and Cultural Dimensions of Health. Social, Political and Cultural Dimensions of Health 199 214 .
Loredana Covolo, Sara Rubinelli, Elisabetta Ceretti & Umberto Gelatti. (2015) Internet-Based Direct-to-Consumer Genetic Testing: A Systematic Review. Journal of Medical Internet Research 17:12, pages e279.
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Tanya Agurs-Collins, Rebecca Ferrer, Allison Ottenbacher, Erika A. Waters, Mary E. O’Connell & Jada G. Hamilton. (2015) Public Awareness of Direct-to-Consumer Genetic Tests: Findings from the 2013 U.S. Health Information National Trends Survey. Journal of Cancer Education 30:4, pages 799-807.
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Jada G. Hamilton, Heather M. Edwards, Muin J. Khoury & Stephen H. Taplin. (2014) Cancer Screening and Genetics: A Tale of Two Paradigms. Cancer Epidemiology, Biomarkers & Prevention 23:6, pages 909-916.
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Anders Nordgren. (2012) Neither as harmful as feared by critics nor as empowering as promised by providers: risk information offered direct to consumer by personal genomics companies. Journal of Community Genetics 5:1, pages 59-68.
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Paula Saukko. (2013) State of play in direct-to-consumer genetic testing for lifestyle-related diseases: market, marketing content, user experiences and regulation. Proceedings of the Nutrition Society 72:1, pages 53-60.
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