404
Views
47
CrossRef citations to date
0
Altmetric
Research Article

Improving the quality of life for people with ALS: The challenge ahead

&
Pages 329-336 | Published online: 10 Jul 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (8)

Meredith Bock, Y-Nhy Duong, Anthony Kim, Isabel Allen, Jennifer Murphy & Catherine Lomen-Hoerth. (2016) Cognitive-behavioral changes in amyotrophic lateral sclerosis: Screening prevalence and impact on patients and caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:5-6, pages 366-373.
Read now
Gisella Bruletti, Laura Comini, Simonetta Scalvini, Roberta Morini, Alberto Luisa, Mara Paneroni & Michele Vitacca. (2015) A two-year longitudinal study on strain and needs in caregivers of advanced ALS patients. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:3-4, pages 187-195.
Read now
Minne Bakker, Huub Creemers, Karen Schipper, Anita Beelen, Hepke Grupstra, Frans Nollet & Tineke Abma. (2015) Need and value of case management in multidisciplinary ALS care: A qualitative study on the perspectives of patients, spousal caregivers and professionals. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:3-4, pages 180-186.
Read now
Yu Kageyama, Masayuki Hirata, Takufumi Yanagisawa, Toshio Shimokawa, Jinichi Sawada, Shayne Morris, Nozomi Mizushima, Haruhiko Kishima, Osamu Sakura & Toshiki Yoshimine. (2014) Severely affected ALS patients have broad and high expectations for brain-machine interfaces. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:7-8, pages 513-519.
Read now
Lorna Jane O'Doherty, Anne Hickey & Orla Hardiman. (2010) Measuring life quality, physical function and psychological well-being in neurological illness. Amyotrophic Lateral Sclerosis 11:5, pages 461-468.
Read now
Barbara Tomik & Roberto J. Guiloff$suffix/text()$suffix/text(). (2010) Dysarthria in amyotrophic lateral sclerosis: A review. Amyotrophic Lateral Sclerosis 11:1-2, pages 4-15.
Read now
Tracy L. Peters & Mary Kay Floeter. (2009) Usage of support services in primary lateral sclerosis. Amyotrophic Lateral Sclerosis 10:3, pages 185-187.
Read now
Hiroshi Mitsumoto, Mark Bromberg, Wendy Johnston, Rup Tandan, Ira Byock, Mary Lyon, Robert G. Miller, Stanley H. Appel, Josh Benditt, James L. Bernat, Gian Domenico Borasio, Alan C. Carver, Lora Clawson, Maura. L. Del Bene, Edward J. Kasarskis, Susan B. Legrand, Raul Mandler, Jane Mccarthy, Theodore Munsat, Daniel Newman, Robert L. Sufit & Andrea Versenyi. (2005) Promoting excellence in end‐of‐life care in ALS. Amyotrophic Lateral Sclerosis 6:3, pages 145-154.
Read now

Articles from other publishers (39)

Yue Liu, Man Ding, Sijia Pan, Rumeng Zhou, Jiajia Yao, Rong Fu, Hang Yu & Zuneng Lu. (2023) MicroRNA-23a-3p Is Upregulated in Plasma Exosomes of Bulbar-onset ALS Patients and Targets ERBB4. Neuroscience 524, pages 65-78.
Crossref
Gizem Gül Koc, Fatih Safa Eranay, Ali Kokangul & Filiz Koc. (2023) Determining the Significance Weights of ALSFRS-R Items Using Analytic Hierarchy Process. Neurological Sciences and Neurophysiology 40:2, pages 88-94.
Crossref
Arianna Manini, Antonia Ratti, Alberto Brusati, Alessio Maranzano, Isabella Fogh, Silvia Peverelli, Stefano Messina, Davide Gentilini, Federico Verde, Barbara Poletti, Claudia Morelli, Vincenzo Silani & Nicola Ticozzi. (2022) TMEM106B Acts as a Modifier of Cognitive and Motor Functions in Amyotrophic Lateral Sclerosis. International Journal of Molecular Sciences 23:16, pages 9276.
Crossref
Xing Qin, Peng Wu, Ting Wen, Rui Jia, Ronghua Zhang, Jiaoting Jin, Fangfang Hu, Qiao Yi Chen & Jingxia Dang. (2022) Comparative assessment of blood Metal/metalloid levels, clinical heterogeneity, and disease severity in amyotrophic lateral sclerosis patients. NeuroToxicology 89, pages 12-19.
Crossref
Sanjana Shellikeri, Reeman Marzouqah, Benjamin Rix Brooks, Lorne Zinman, Jordan R. Green & Yana Yunusova. (2021) Psychometric Properties of Rapid Word-Based Rate Measures in the Assessment of Bulbar Amyotrophic Lateral Sclerosis: Comparisons With Syllable-Based Rate Tasks. Journal of Speech, Language, and Hearing Research 64:11, pages 4178-4191.
Crossref
Özden O. Dalgıç, Haoran Wu, F. Safa Erenay, Mustafa Y. Sir, Osman Y. Özaltın, Brian A. Crum & Kalyan S. Pasupathy. (2021) Mapping of critical events in disease progression through binary classification: Application to amyotrophic lateral sclerosis. Journal of Biomedical Informatics 123, pages 103895.
Crossref
Yu Kageyama, Xin He, Toshio Shimokawa, Jinichi Sawada, Takufumi Yanagisawa, Morris Shayne, Osamu Sakura, Haruhiko Kishima, Hideki Mochizuki, Toshiki Yoshimine & Masayuki Hirata. (2020) Nationwide survey of 780 Japanese patients with amyotrophic lateral sclerosis: their status and expectations from brain–machine interfaces. Journal of Neurology 267:10, pages 2932-2940.
Crossref
Tiziana Petrozziello, Alexandra N. Mills, Sali M.K. Farhan, Kaly A. Mueller, Eric J. Granucci, Kelly E. Glajch, James Chan, Sheena Chew, James D. Berry & Ghazaleh Sadri‐Vakili. (2020) Lipocalin‐2 is increased in amyotrophic lateral sclerosis. Muscle & Nerve 62:2, pages 272-283.
Crossref
Leila Bond, Gloria Bowen, Benjamin Mertens, Keelie Denson, Kathleen Jordan, Branislav Vidakovic & Cassie S. Mitchell. (2020) Associations of Patient Mood, Modulators of Quality of Life, and Pharmaceuticals with Amyotrophic Lateral Sclerosis Survival Duration. Behavioral Sciences 10:1, pages 33.
Crossref
Eric D. Goldstein & Benjamin H. Eidelman. (2019) Misdiagnosis: Hypoglossal palsy mimicking bulbar onset amyotrophic lateral sclerosis. eNeurologicalSci 14, pages 6-8.
Crossref
Özden O. Dalgıç, F. Safa Erenay, Kalyan S. Pasupathy, Osman Y. Özaltın, Brian A. Crum & Mustafa Y. Sir. (2019) Tollgate-based progression pathways of ALS patients. Journal of Neurology 266:3, pages 755-765.
Crossref
Yana Yunusova, Emily K. Plowman, Jordan R. Green, Carolina Barnett & Peter Bede. (2019) Clinical Measures of Bulbar Dysfunction in ALS. Frontiers in Neurology 10.
Crossref
Thaiany Sant’anna Pedrozo Campos & Francis Meire Favero. (2019) Exercícios aquáticos e em solo para pacientes com Esclerose Lateral Amiotrófica. Revista Neurociências 17:2, pages 170-177.
Crossref
Simona Portaro, Teresa Brizzi, Antonino Naro, Valeria Conti Nibali, Rosa Morabito, Alessia Bramanti & Rocco Salvatore Calabrò. (2018) Acute onset of bulbar amyotrophic lateral sclerosis after flu – look at the differential diagnosis: A case report. Journal of International Medical Research 46:7, pages 2933-2937.
Crossref
Andrea Bandini, Jordan R. Green, Jun Wang, Thomas F. Campbell, Lorne Zinman & Yana Yunusova. (2018) Kinematic Features of Jaw and Lips Distinguish Symptomatic From Presymptomatic Stages of Bulbar Decline in Amyotrophic Lateral Sclerosis. Journal of Speech, Language, and Hearing Research 61:5, pages 1118-1129.
Crossref
Andrea Bandini, Jordan R. Green, Babak Taati, Silvia Orlandi, Lorne Zinman & Yana Yunusova. (2018) Automatic Detection of Amyotrophic Lateral Sclerosis (ALS) from Video-Based Analysis of Facial Movements: Speech and Non-Speech Tasks. Automatic Detection of Amyotrophic Lateral Sclerosis (ALS) from Video-Based Analysis of Facial Movements: Speech and Non-Speech Tasks.
Ammarah Y. Soofi, Vanina Dal Bello-Haas, Michelle E. Kho & Lori Letts. (2017) The impact of rehabilitative interventions on quality of life: a qualitative evidence synthesis of personal experiences of individuals with amyotrophic lateral sclerosis. Quality of Life Research 27:4, pages 845-856.
Crossref
S. Shellikeri, V. Karthikeyan, R. Martino, S.E. Black, L. Zinman, J. Keith & Y. Yunusova. (2017) The neuropathological signature of bulbar-onset ALS: A systematic review. Neuroscience & Biobehavioral Reviews 75, pages 378-392.
Crossref
Sanjana Shellikeri, Jordan R. Green, Madhura Kulkarni, Panying Rong, Rosemary Martino, Lorne Zinman & Yana Yunusova. (2016) Speech Movement Measures as Markers of Bulbar Disease in Amyotrophic Lateral Sclerosis. Journal of Speech, Language, and Hearing Research 59:5, pages 887-899.
Crossref
Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2015) Development of a model to guide decision making in amyotrophic lateral sclerosis multidisciplinary care. Health Expectations 18:5, pages 1769-1782.
Crossref
Panying Rong, Yana Yunusova, Jun Wang & Jordan R. Green. (2015) Predicting Early Bulbar Decline in Amyotrophic Lateral Sclerosis: A Speech Subsystem Approach. Behavioural Neurology 2015, pages 1-11.
Crossref
Takamura Nagasaka & Yoshihisa Takiyama. 2015. Neurodegenerative Disorders as Systemic Diseases. Neurodegenerative Disorders as Systemic Diseases 237 275 .
Inhee Choi, Elizabeth Lee & Luke P. Lee. (2014) Current nano/biotechnological approaches in amyotrophic lateral sclerosis. Biomedical Engineering Letters 3:4, pages 209-222.
Crossref
ANN HALLUM & DIANE D. ALLEN. 2013. Neurological Rehabilitation. Neurological Rehabilitation 521 570 .
Pia Sander DreyerMichael FeldingCharlotte Sønderskov KlitnæsCharlotte Kirkegård Lorenzen. (2012) Withdrawal of Invasive Home Mechanical Ventilation in Patients with Advanced Amyotrophic Lateral Sclerosis: Ten Years of Danish Experience. Journal of Palliative Medicine 15:2, pages 205-209.
Crossref
Mary O’Brien, Bridget Whitehead, Barbara Jack & J Douglas Mitchell. (2011) Multidisciplinary team working in motor neurone disease: patient and family carer views. British Journal of Neuroscience Nursing 7:4, pages 580-585.
Crossref
Myoung Soo KimHyung-Ik ShinYusun MinJung Yoon KimJung Soon Kim. (2011) Correlation between Severe ALS Patient-Caregiver Couples' Characteristics and Caregivers' Health Related Quality of Life. Journal of Korean Academy of Nursing 41:3, pages 354.
Crossref
Jau-Shin Lou, Michael D. Weiss & Gregory T. Carter. (2010) Assessment and Management of Fatigue in Neuromuscular Disease. American Journal of Hospice and Palliative Medicine® 27:2, pages 145-157.
Crossref
Abbey R. Roach, Alyssa J. Averill, Suzanne C. Segerstrom & Edward J. Kasarskis. (2009) The Dynamics of Quality of Life in ALS Patients and Caregivers. Annals of Behavioral Medicine 37:2, pages 197-206.
Crossref
Amy Chen, Jacqueline Montes & Hiroshi Mitsumoto. (2008) The Role of Exercise in Amyotrophic Lateral Sclerosis. Physical Medicine and Rehabilitation Clinics of North America 19:3, pages 545-557.
Crossref
Jau-Shin Lou. (2008) Fatigue in Amyotrophic Lateral Sclerosis. Physical Medicine and Rehabilitation Clinics of North America 19:3, pages 533-543.
Crossref
Paula Leslie. (2008) Food for Thought: How Do Patients With ALS Decide About Having a PEG?. Perspectives on Swallowing and Swallowing Disorders (Dysphagia) 17:1, pages 33-39.
Crossref
Aleksandar Radunović, Hiroshi Mitsumoto & P Nigel Leigh. (2007) Clinical care of patients with amyotrophic lateral sclerosis. The Lancet Neurology 6:10, pages 913-925.
Crossref
Janet E. McLeod & David M. Clarke. (2007) A review of psychosocial aspects of motor neurone disease. Journal of the Neurological Sciences 258:1-2, pages 4-10.
Crossref
Paul H. Gordon & Hiroshi Mitsumoto. 2007. Motor neuron disorders and related diseases. Motor neuron disorders and related diseases 389 424 .
C. Bouteloup. (2006) Quels sont les moyens de suppléance de la fonction alimentaire et leurs indications?. Revue Neurologique 162, pages 309-319.
Crossref
J. P. Van den BergS. KalmijnE. LindemanJ. H. VeldinkM. de VisserM. M. Van der GraaffJ.H.J. WokkeL. H. Van den Berg. (2005) Multidisciplinary ALS care improves quality of life in patients with ALS. Neurology 65:8, pages 1264-1267.
Crossref
Leticia Alves Fonseca, Sissy Veloso Fontes, Isabela Pessa Anequini, Francis Meire Fávero & Acary Souza Bulle Oliveira. (2001) Orientações emergenciais para profissionais que assistem pacientes com Esclerose Lateral Amiotrófica. Revista Neurociências 20:2, pages 260-265.
Crossref
Abrahão Augusto Juviniano Quadros. (2001) Avaliação da qualidade de vida de pacientes com Esclerose Lateral Amiotrófica (ELA) em Brasília. Revista Neurociências 18:2, pages 130.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.