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Research Article

Agreement among three quality of life measures in patients with ALS

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Pages 269-275 | Published online: 10 Jul 2009

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Nicole Peters, Vanina Dal Bello-Haas, Tara Packham, Marvin Chum, Colleen O’Connell, Wendy S Johnston, Joy C MacDermid, John Turnbull, Jill Van Damme & Ayse Kuspinar. (2021) Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study. Patient Related Outcome Measures 12, pages 191-203.
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Joanna Epton, Robert Harris & Crispin Jenkinson. (2009) Quality of life in amyotrophic lateral sclerosis/motor neuron disease: A structured review. Amyotrophic Lateral Sclerosis 10:1, pages 15-26.
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Imelda J. M. De groot, Marcel W. M. Post, Tineke van Heuveln, Leonard H. Van den berg & Eline Lindeman. (2007) Cross‐sectional and longitudinal correlations between disease progression and different health‐related quality of life domains in persons with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis 8:6, pages 356-361.
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Articles from other publishers (5)

Faryal Zahir, Alicia Hanman, Nazmehr Yazdani, Sabrina La Rosa, Gemma Sleik, Brooke Sullivan, Ava Mehdipour, Selina Malouka & Ayse Kuspinar. (2023) Assessing the psychometric properties of quality of life measures in individuals with amyotrophic lateral sclerosis: a systematic review. Quality of Life Research 32:9, pages 2447-2462.
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Nicole Peters, Vanina Dal Bello-Haas, Tara Packham, Ava Mehdipour & Ayse Kuspinar. (2021) Psychometric Properties of Preference-Based Measures for Economic Evaluation in Amyotrophic Lateral Sclerosis: A Systematic Review. Neurology Research International 2021, pages 1-13.
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Catherine Heffernan & Crispin Jenkinson. (2016) Review Paper: Measuring outcomes for neurological disorders: a review of disease-specific health status instruments for three degenerative neurological conditions. Chronic Illness 1:2, pages 131-142.
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Rhidian A Hughes, Fiona Aspinal, Irene J Higginson, Julia M Addington-Hall, Maria Dunckley, Christina Faull & Anu Sinha. (2004) Assessing palliative care outcomes for people with motor neurone disease living at home. International Journal of Palliative Nursing 10:9, pages 449-453.
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N.D. NelsonM. TrailJ.N. Van, S.H. AppelE.C. Lai. (2003) Quality of Life in Patients with Amyotrophic Lateral Sclerosis: Perceptions, Coping Resources, and Illness Characteristics. Journal of Palliative Medicine 6:3, pages 417-424.
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