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Research Article

Inter-evaluator reliability of the ALS Functional Rating Scale

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Pages 235-239 | Published online: 10 Jul 2009

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Christina N. Fournier, Virginia James & Jonathan D. Glass. (2023) Clinically meaningful change: evaluation of the Rasch-built Overall Amyotrophic Lateral Sclerosis Disability Scale (ROADS) and the ALSFRS-R. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 311-316.
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Thomas Meyer, Susanne Spittel, Torsten Grehl, Ute Weyen, Robert Steinbach, Dagmar Kettemann, Susanne Petri, Patrick Weydt, René Günther, Petra Baum, Elena Schlapakow, Jan Christoph Koch, Matthias Boentert, Joachim Wolf, Julian Grosskreutz, Annekathrin Rödiger, Benjamin Ilse, Moritz Metelmann, Jenny Norden, Ruhan Yasemin Koc, Péter Körtvélyessy, Alessio Riitano, Bertram Walter, Barbara Hildebrandt, Friedrich Schaudinn, Christoph Münch & André Maier. (2023) Remote digital assessment of amyotrophic lateral sclerosis functional rating scale – a multicenter observational study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 175-184.
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Franco Franchignoni, Jessica Mandrioli, Andrea Giordano & Salvatore Ferro. (2015) A further Rasch study confirms that ALSFRS-R does not conform to fundamental measurement requirements. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:5-6, pages 331-337.
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Jordan R. Green, Yana Yunusova, Mili S. Kuruvilla, Jun Wang, Gary L. Pattee, Lori Synhorst, Lorne Zinman & James D. Berry. (2013) Bulbar and speech motor assessment in ALS: Challenges and future directions. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 14:7-8, pages 494-500.
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André Maier, Teresa Holm, Paul Wicks, Laura Steinfurth, Peter Linke, Christoph Münch, Robert Meyer & Thomas Meyer. (2012) Online assessment of ALS functional rating scale compares well to in-clinic evaluation: A prospective trial. Amyotrophic Lateral Sclerosis 13:2, pages 210-216.
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Noah Lechtzin, Nicholas J. Maragakis, Richard Kimball, Anne Busse, Virginia Hoffman & Lora Clawson. (2009) Accurate ALSFRS-R scores can be generated from retrospective review of clinic notes. Amyotrophic Lateral Sclerosis 10:4, pages 244-247.
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Imelda J. M. De groot, Marcel W. M. Post, Tineke van Heuveln, Leonard H. Van den berg & Eline Lindeman. (2007) Cross‐sectional and longitudinal correlations between disease progression and different health‐related quality of life domains in persons with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis 8:6, pages 356-361.
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Petra Kaufmann, Gilbero Levy, Jacquelina Montes, Richaro Buchsbaum, Alexandra I. Barsdorf, Vanessa Battista, Rachel Arbing, Paul H. Gordon, Hiroshi Mitsumoto, Brvce Levin, John L. P. Thompson, Petra Kaufmann, Gilbero Levy, Jacquelina Montes, Richaro Buchsbaum, Alexandra I. Barsdorf, Vanessa Battista, Rachel Arbing, Paul H. Gordon, Hiroshi Mitsumoto, Brvce Levin & John L. P. Thompson. (2007) Excellent inter‐rater, intra‐rater, and telephone‐administered reliability of the ALSFRS‐R in a multicenter clinical trial. Amyotrophic Lateral Sclerosis 8:1, pages 42-46.
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Robert Bowser, Merit Cudkowicz & Rima Kaddurah-Daouk. (2006) Biomarkers for amyotrophic lateral sclerosis. Expert Review of Molecular Diagnostics 6:3, pages 387-398.
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Articles from other publishers (22)

Cara Donohue, Jennifer L. Chapin, Amber Anderson, Lauren DiBiase, Lauren Tabor Gray, James P. Wymer & Emily K. Plowman. (2023) Sensitivity and specificity of the Amyotrophic Lateral Sclerosis Functional Rating Scale—Revised to detect dysarthria in individuals with amyotrophic lateral sclerosis. Muscle & Nerve 68:3, pages 296-302.
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Christina N. Fournier. (2022) Considerations for Amyotrophic Lateral Sclerosis (ALS) Clinical Trial Design. Neurotherapeutics 19:4, pages 1180-1192.
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Tara Peseschkian, Isabell Cordts, René Günther, Benjamin Stolte, Daniel Zeller, Carsten Schröter, Ute Weyen, Martin Regensburger, Joachim Wolf, Ilka Schneider, Andreas Hermann, Moritz Metelmann, Zacharias Kohl, Ralf A. Linker, Jan Christoph Koch, Boriana Büchner, Ulrike Weiland, Erik Schönfelder, Felix Heinrich, Alma Osmanovic, Thomas Klopstock, Johannes Dorst, Albert C. Ludolph, Matthias Boentert, Tim Hagenacker, Marcus Deschauer, Paul Lingor, Susanne Petri & Olivia Schreiber-Katz. (2021) A Nation-Wide, Multi-Center Study on the Quality of Life of ALS Patients in Germany. Brain Sciences 11:3, pages 372.
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Monika Barczewska, Stanisław Maksymowicz, Izabela Zdolińska-Malinowska, Tomasz Siwek & Mariusz Grudniak. (2020) Umbilical Cord Mesenchymal Stem Cells in Amyotrophic Lateral Sclerosis: an Original Study. Stem Cell Reviews and Reports 16:5, pages 922-932.
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Leonhard A Bakker, Carin D Schröder, Harold H G Tan, Simone M A G Vugts, Ruben P A van Eijk, Michael A van Es, Johanna M A Visser-Meily & Leonard H van den Berg. (2020) Development and assessment of the inter-rater and intra-rater reproducibility of a self-administration version of the ALSFRS-R. Journal of Neurology, Neurosurgery & Psychiatry 91:1, pages 75-81.
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Jiaoting Jin, Fangfang Hu, Qiuli Zhang, Qiaoyi Chen, Haining Li, Xing Qin, Rui Jia, Li Kang, Yonghui Dang & Jingxia Dang. (2019) Dominant Heterogeneity of Upper and Lower Motor Neuron Degeneration to Motor Manifestation of Involved Region in Amyotrophic Lateral Sclerosis. Scientific Reports 9:1.
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Wendy E. Schell, Victoria S. Mar & Carolyn P. Da Silva. (2019) Correlation of falls in patients with Amyotrophic Lateral Sclerosis with objective measures of balance, strength, and spasticity. NeuroRehabilitation 44:1, pages 85-93.
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Thomas Welton, Jerome J. Maller, R. Marc Lebel, Ek T. Tan, Dominic B. Rowe & Stuart M. Grieve. (2019) Diffusion kurtosis and quantitative susceptibility mapping MRI are sensitive to structural abnormalities in amyotrophic lateral sclerosis. NeuroImage: Clinical 24, pages 101953.
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Jordan R. Green, Kristen M. Allison, Claire Cordella, Brian D. Richburg, Gary L. Pattee, James D. Berry, Eric A. Macklin, Erik P. Pioro & Richard A. Smith. (2018) Additional evidence for a therapeutic effect of dextromethorphan/quinidine on bulbar motor function in patients with amyotrophic lateral sclerosis: A quantitative speech analysis. British Journal of Clinical Pharmacology 84:12, pages 2849-2856.
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Michael Lee & Alana McCambridge. (2018) Clinimetrics: Amyotrophic Lateral Sclerosis Functional Rating Scale-revised (ALSFRS-R). Journal of Physiotherapy 64:4, pages 269-270.
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Michael BenatarJoanne WuuPeter M. AndersenNazem AtassiWilliam DavidMerit CudkowiczDavid Schoenfeld. (2018) Randomized, double-blind, placebo-controlled trial of arimoclomol in rapidly progressive SOD1 ALS . Neurology 90:7.
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Leonhard A. Bakker, Carin D. Schröder, Michael A. van Es, Paul Westers, Johanna M. A. Visser-Meily & Leonard H. van den Berg. (2017) Assessment of the factorial validity and reliability of the ALSFRS-R: a revision of its measurement model. Journal of Neurology 264:7, pages 1413-1420.
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Jessica Mandrioli, Sara Biguzzi, Carlo Guidi, Elisabetta Sette, Emilio Terlizzi, Alessandro Ravasio, Mario Casmiro, Fabrizio Salvi, Rocco Liguori, Romana Rizzi, Vladimiro Pietrini, Annamaria Borghi, Rita Rinaldi, Nicola Fini, Elisabetta Chierici, Mario Santangelo, Enrico Granieri, Vittoria Mussuto, Silvia De Pasqua, Eleni Georgoulopoulou, Antonio Fasano, Salvatore Ferro & Roberto D’Alessandro. (2015) Heterogeneity in ALSFRS-R decline and survival: a population-based study in Italy. Neurological Sciences 36:12, pages 2243-2252.
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Seward B. Rutkove. (2015) Clinical Measures of Disease Progression in Amyotrophic Lateral Sclerosis. Neurotherapeutics 12:2, pages 384-393.
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Susanne Abdulla, Stefan Vielhaber, Sonja Körner, Judith Machts, Hans-Jochen Heinze, Reinhard Dengler & Susanne Petri. (2013) Validation of the German version of the extended ALS functional rating scale as a patient-reported outcome measure. Journal of Neurology 260:9, pages 2242-2255.
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Matilde Yáñez, Lucía Galán, Jorge Matías-Guiu, Alvaro Vela, Antonio Guerrero & Antonio G. García. (2011) CSF from amyotrophic lateral sclerosis patients produces glutamate independent death of rat motor brain cortical neurons: Protection by resveratrol but not riluzole. Brain Research 1423, pages 77-86.
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Swati P Aggarwal, Lorne Zinman, Elizabeth Simpson, Jane McKinley, Katherine E Jackson, Hanika Pinto, Petra Kaufman, Robin A Conwit, David Schoenfeld, Jeremy Shefner & Merit Cudkowicz. (2010) Safety and efficacy of lithium in combination with riluzole for treatment of amyotrophic lateral sclerosis: a randomised, double-blind, placebo-controlled trial. The Lancet Neurology 9:5, pages 481-488.
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Keyte Guedes, Cecília Pereira, Karina Pavan & Berenice Cataldo Oliveira Valério. (2010) Cross-cultural adaptation and validation of als Functional Rating Scale-Revised in Portuguese language. Arquivos de Neuro-Psiquiatria 68:1, pages 44-47.
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Hongyun Huang, Lin Chen, Haitao Xi, Hongmei Wang, Jian Zhang, Feng Zhang & Yancheng Liu. (2008) Fetal olfactory ensheathing cells transplantation in amyotrophic lateral sclerosis patients: a controlled pilot study. Clinical Transplantation 22:6, pages 710-718.
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Andrei Voustianiouk, Gregory Seidel, Janki Panchal, Mark Sivak, Adam Czaplinski, Albert Yen, Stanley H. Appel & Dale J. Lange. (2008) ALSFRS and appel ALS scores: Discordance with disease progression. Muscle & Nerve 37:5, pages 668-672.
Crossref
J. MontesG. LevyS. AlbertP. KaufmannR. BuchsbaumP. H. GordonH. Mitsumoto. (2006) Development and evaluation of a self-administered version of the ALSFRS-R. Neurology 67:7, pages 1294-1296.
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Marco Orsini, Marcos RG de Freitas, Mariana P Mello, Jhon P Botelho, Fernando de Mendonça Cardoso, Osvaldo JM Nascimento & Gabriel R de Freitas. (1999) Medidas de Avaliação na Esclerose Lateral Amiotrófica. Revista Neurociências 16:2, pages 144-151.
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