Citations (28)
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Marion Sommers-Spijkerman, Melinda S. Kavanaugh, Esther Kruitwagen-Van Reenen, Aimée Zwarts-Engelbert, Johanna M. A. Visser-Meily & Anita Beelen. (2023) Stigma experienced by ALS/PMA patients and their caregivers: a mixed-methods study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 327-338.
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Jessica De Wit, Anita Beelen, Constance H. C. Drossaert, Ruud Kolijn, Leonard H. Van Den Berg, Carin D. SchrÖder & Johanna M. A. Visser-Meily. (2020) Blended psychosocial support for partners of patients with ALS and PMA: results of a randomized controlled trial. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:5-6, pages 344-354.
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David Oliver, Aleksandar Radunovic, Alexander Allen & Christopher McDermott. (2017) The development of the UK National Institute of Health and Care Excellence evidence-based clinical guidelines on motor neurone disease. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:5-6, pages 313-323.
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Samar M Aoun, Lauren J Breen, Denise Howting, Robert Edis, David Oliver, Robert Henderson, Margaret O’Connor, Rodney Harris & Carol Birks. (2016) Receiving the news of a diagnosis of motor neuron disease: What does it take to make it better?. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:3-4, pages 168-178.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) What influences patient decision-making in amyotrophic lateral sclerosis multidisciplinary care? A study of patient perspectives. Patient Preference and Adherence 6, pages 829-838.
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Anne Hogden, David Greenfield, Peter Nugus & Matthew C Kiernan. (2012) Engaging in patient decision-making in multidisciplinary care for amyotrophic lateral sclerosis: the views of health professionals. Patient Preference and Adherence 6, pages 691-701.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2012) Patients’ perceptions of services and preferences for care in amyotrophic lateral sclerosis: A review. Amyotrophic Lateral Sclerosis 13:1, pages 11-24.
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Mary R. O'Brien, Bridget Whitehead, Barbara A. Jack & John Douglas Mitchell. (2011) From symptom onset to a diagnosis of amyotrophic lateral sclerosis/motor neuron disease (ALS/MND): Experiences of people with ALS/MND and family carers – a qualitative study. Amyotrophic Lateral Sclerosis 12:2, pages 97-104.
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Heino Hugel, Nicky Pih, Charlotte P. Dougan, Sally Rigby & Carolyn A. Young. (2010) Identifying poor adaptation to a new diagnosis of motor neuron disease: A pilot study into the value of an early patient-led interview. Amyotrophic Lateral Sclerosis 11:1-2, pages 104-109.
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Articles from other publishers (19)
Sara Alquati, Luca Ghirotto, Ludovica De Panfilis, Cristina Autelitano, Elisabetta Bertocchi, Giovanna Artioli, Francesca Sireci, Silvia Tanzi & Simona Sacchi. (2022) Negotiating the Beginning of Care: A Grounded Theory Study of Health Services for Amyotrophic Lateral Sclerosis. Brain Sciences 12:12, pages 1623.
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Marie Kierkegaard, Kristina Gottberg, Sverker Johansson, Susanne Littorin, Petter Sandstedt, Charlotte Ytterberg & Lotta Widén Holmqvist. (2021) Healthcare Utilisation and Satisfaction with Care in Patients with Amyotrophic Lateral Sclerosis - An Observational Study. Journal of Neuromuscular Diseases 8:6, pages 1079-1088.
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Cathryn Pinto, Adam W A Geraghty, Lucy Yardley & Laura Dennison. (2021) Emotional distress and well-being among people with motor neurone disease (MND) and their family caregivers: a qualitative interview study. BMJ Open 11:8, pages e044724.
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Eleftherios Anestis, Fiona Eccles, Ian Fletcher, Maddy French & Jane Simpson. (2020) Giving and receiving a diagnosis of a progressive neurological condition: A scoping review of doctors’ and patients’ perspectives. Patient Education and Counseling 103:9, pages 1709-1723.
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Kate Flemming, Victoria Turner, Samantha Bolsher, Bill Hulme, Elizabeth McHugh & Ian Watt. (2020) The experiences of, and need for, palliative care for people with motor neurone disease and their informal caregivers: A qualitative systematic review. Palliative Medicine 34:6, pages 708-730.
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Julie Labra, Anne Hogden, Emma Power, Natalie James & Victoria M Flood. (2020) Gastrostomy uptake in motor neurone disease: a mixed-methods study of patients’ decision making. BMJ Open 10:2, pages e034751.
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Sarah Remm, Elizabeth Halcomb & Moira Stephens. (2019) Experiences of being diagnosed with motor neuron disease: “I just want to know”. Collegian 26:5, pages 550-555.
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Lorna Hollowood. (2018) Issues affecting people with motor neurone disease and their carers: a literature review. British Journal of Neuroscience Nursing 14:6, pages 278-284.
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Margaret O'Connor, Samar M. Aoun & Lauren J. Breen. (2018) Australian family carer responses when a loved one receives a diagnosis of Motor Neurone Disease-“Our life has changed forever”. Health & Social Care in the Community 26:3, pages e415-e421.
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Samar M. Aoun, Mary R. O'Brien, Lauren J. Breen & Margaret O'Connor. (2018) ‘The shock of diagnosis’: Qualitative accounts from people with Motor Neurone Disease reflecting the need for more person-centred care. Journal of the Neurological Sciences 387, pages 80-84.
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Samar M Aoun, Lauren J Breen, David Oliver, Robert D Henderson, Robert Edis, Margaret O'Connor, Denise Howting, Rodney Harris & Carol Birks. (2017) Family carers' experiences of receiving the news of a diagnosis of Motor Neurone Disease: A national survey. Journal of the Neurological Sciences 372, pages 144-151.
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Samar M. Aoun, Lauren J. Breen, Robert Edis, Robert D. Henderson, David Oliver, Rodney Harris, Denise Howting, Margaret O'Connor & Carol Birks. (2016) Breaking the news of a diagnosis of motor neurone disease: A national survey of neurologists' perspectives. Journal of the Neurological Sciences 367, pages 368-374.
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Mary R O'Brien & Harriet Preston. (2015) Family carer perspectives of acute hospital care following a diagnosis of motor neuron disease: a qualitative secondary analysis. BMJ Supportive & Palliative Care 5:5, pages 503-509.
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Andrew Soundy & Nicola Condon. (2015) Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis. Frontiers in Psychology 6.
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Anneli O Ozanne, Ulla H Graneheim & Susann Strang. (2013) Finding meaning despite anxiety over life and death in amyotrophic lateral sclerosis patients. Journal of Clinical Nursing 22:15-16, pages 2141-2149.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2011) Experience of Services as a Key Outcome in Amyotrophic Lateral Sclerosis (ALS) Care. American Journal of Hospice and Palliative Medicine® 29:5, pages 362-367.
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Anneli Olsson Ozanne, Ulla H Graneheim, Lennart Persson & Susann Strang. (2012) Factors that facilitate and hinder the manageability of living with amyotrophic lateral sclerosis in both patients and next of kin. Journal of Clinical Nursing 21:9-10, pages 1364-1373.
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Kori A. LaDonna. (2011) A Literature Review of Studies Using Qualitative Research to Explore Chronic Neuromuscular Disease. Journal of Neuroscience Nursing 43:3, pages 172-182.
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Mitsuko Ushikubo, Mina Kanbe, Mieko Sukawa, Chieko Tomita & Sachiyo Hoshikawa. (2010) Continuing Care between Hospital and Home about Percutaneous Endoscopic Gastrostomy Based on the Experience of Patients with Amyotrophic Lateral Sclerosis. The Kitakanto Medical Journal 60:2, pages 135-141.
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