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Michael Wang, Claude Negrier, Frank Driessler, Clifford Goodman & Mark W Skinner. (2022) The Hemophilia Gene Therapy Patient Journey: Questions and Answers for Shared Decision-Making. Patient Preference and Adherence 16, pages 1439-1447.
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J. Stoffman, N. G. Andersson, B. Branchford, K. Batt, R. D’Oiron, C. Escuriola Ettingshausen, D. P. Hart, V. Jiménez Yuste, K. Kavakli, M. E. Mancuso, K. Nogami, C. Ramírez & R. Wu. (2019) Common themes and challenges in hemophilia care: a multinational perspective. Hematology 24:1, pages 39-48.
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S. van Os, N. Troop, N. Ryder & D. P. Hart. (2018) Adherence to prophylaxis in adolescents and young adults with severe haemophilia A, a qualitative study with patients. Health Psychology and Behavioral Medicine 6:1, pages 277-300.
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Articles from other publishers (11)
Cedric Hermans, Declan Noone, Gary Benson, Gerry Dolan, Hermann Eichler, Víctor Jiménez-Yuste, Christoph Königs, Sébastien Lobet, Debra Pollard, Silva Zupančić-Šalek & Maria Elisa Mancuso. (2022) Hemophilia treatment in 2021: Choosing the”optimal” treatment using an integrative, patient-oriented approach to shared decision-making between patients and clinicians. Blood Reviews 52, pages 100890.
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Daniel P. Hart, Brian R. Branchford, Sarah Hendry, Robert Ledniczky, Robert F. SidonioJr.Jr., Claude Négrier, Michelle Kim, Michelle Rice, Matthew Minshall, Claire Arcé, Steve Prince, Maria Kelleher & Sharon Lee. (2021) Optimizing language for effective communication of gene therapy concepts with hemophilia patients: a qualitative study. Orphanet Journal of Rare Diseases 16:1.
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Petre Serban, Brigitha Vlaicu, Margit Serban, Cristina Emilia Ursu, Adina Traila, Cristian Jinca, Jenel Marian Patrascu, Daniel Andrei, Andrei Kozma & Teodora Smaranda Arghirescu. (2020) Pharmacoeconomic Analysis of Hemophilia Care in Romania. Processes 8:12, pages 1676.
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Natalia María Guevara Arismendy. (2020) El rol de los laboratorios clínicos en el paciente con hemofilia. Medicina y Laboratorio 24:4, pages 271-272.
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Christopher C. Lamb, Yunmei Wang & Kalle Lyytinen. (2019) Shared decision making: Does a physician's decision‐making style affect patient participation in treatment choices for primary immunodeficiency?. Journal of Evaluation in Clinical Practice 25:6, pages 1102-1110.
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Christopher C. Lamb, Adrian Wolfberg & Kalle Lyytinen. (2019) UK vs US physician decision‐making in the treatment of haemophilia. Haemophilia 25:4, pages 616-625.
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Shannon Jackson, Cristina Santoro, Deborah Gue, Antonietta Ferretti, Domenico Gaglioti, Sandra Squire, Maria Gabriella Mazzucconi & Cedric Hermans. (2019) Clinical practice of personalized prophylaxis in hemophilia: Illustrations of experiences and benefits from two continents. Clinical Case Reports 7:4, pages 689-694.
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J.E. Megías-Vericat, S. Bonanad, S. Haya, A.R. Cid, M.R. Marqués, E. Monte, S. Pérez-Alenda, P. Bosch, F. Querol & J.L. Poveda. (2019) Bayesian pharmacokinetic-guided prophylaxis with recombinant factor VIII in severe or moderate haemophilia A. Thrombosis Research 174, pages 151-162.
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Fadi Nossair & Courtney D. Thornburg. (2018) The role of patient and healthcare professionals in the era of new hemophilia treatments in developed and developing countries. Therapeutic Advances in Hematology 9:8, pages 239-249.
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Samantha Pasca, Marta Milan, Lucia Sarolo & Ezio Zanon. (2017) PK-driven prophylaxis versus standard prophylaxis: When a tailored treatment may be a real and achievable cost-saving approach in children with severe hemophilia A. Thrombosis Research 157, pages 58-63.
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A. Iorio, E. Iserman, V. Blanchette, G. Dolan, C. Escuriola Ettingshausen, C. Hermans, C. Negrier, J. Oldenburg, A. Reininger, C. Rodriguez-Merchan, M. Spannagl, L. A. Valentino, G. Young, K. N. Steinitz-Trost & A. Gringeri. (2017) Target plasma factor levels for personalized treatment in haemophilia: a Delphi consensus statement. Haemophilia 23:3, pages e170-e179.
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