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The American Journal of Bioethics Volume 8, 2008 - Issue 10
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Open Peer Commentaries

In Defense of the Duty to Participate in Biomedical Research

Rosamond Rhodes Mount Sinai School of Medicine,
Pages 37-38 | Published online: 17 Nov 2008

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Helena Länsimies, Arja Halkoaho, Anna-Maija Pietilä, Niina Lintu, Mari Kangasniemi, Aino-Maija Eloranta, Anna Viitasalo, Virpi Lindi & Timo A. Lakka. (2016) Is there a duty to participate in a health research? A viewpoint of children 6–8 years of age and their parents. International Diabetes Nursing 13:1-3, pages 49-54.
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Emily E. Anderson. (2015) Learning From Research Participants. The American Journal of Bioethics 15:11, pages 14-16.
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MarkA. Rothstein & AbigailB. Shoben. (2013) Does Consent Bias Research?. The American Journal of Bioethics 13:4, pages 27-37.
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Rosamond Rhodes. (2013) Bioethics: Looking Forward and Looking Back. The American Journal of Bioethics 13:1, pages 13-16.
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Rosamond Rhodes, Jody Azzouni, Stefan Bernard Baumrin, Keith Benkov, MartinJ. Blaser, Barbara Brenner, JosephW. Dauben, WilliamJ. Earle, Lily Frank, Nada Gligorov, Joseph Goldfarb, Kurt Hirschhorn, Rochelle Hirschhorn, Ian Holzman, Debbie Indyk, Ethylin Wang Jabs, DouglasP. Lackey, DanielA. Moros, Sean Philpott, MatthewE. Rhodes, LynneD. Richardson, HenryS. Sacks, Abraham Schwab, Rhoda Sperling, Brett Trusko & Arnulf Zweig. (2011) De Minimis Risk: A Proposal for a New Category of Research Risk. The American Journal of Bioethics 11:11, pages 1-7.
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Inmaculada de Melo-Martín. (2008) Response to Open Peer Commentaries on “A Duty to Participate in Research: Does Social Context Matter?”. The American Journal of Bioethics 8:10, pages W3-W4.
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Articles from other publishers (14)

Ilaria Galasso & Susi Geiger. (2023) Genetic research and the collective good: participants as leaders to reconcile individual and public interests. Journal of Medical Ethics, pages jme-2022-108867.
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Angeliki Kerasidou & Charalampia Kerasidou. (2023) Data-driven research and healthcare: public trust, data governance and the NHS. BMC Medical Ethics 24:1.
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. (2022) The Margin of Moral Duty of Human Being to Participate in Biomedical Research. Law and World 8:3, pages 38-47.
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Serene Ong, Jeffrey Ling, Angela Ballantyne, Tamra Lysaght & Vicki Xafis. (2021) Perceptions of ‘Precision’ and ‘Personalised’ Medicine in Singapore and Associated Ethical Issues. Asian Bioethics Review 13:2, pages 179-194.
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Stephanie Mulrine, Mwenza Blell & Madeleine Murtagh. (2021) Beyond trust: Amplifying unheard voices on concerns about harm resulting from health data-sharing. Medicine Access @ Point of Care 5, pages 239920262110484.
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Minakshi Raj, Raymond De Vries, Paige Nong, Sharon L. R. Kardia & Jodyn E. Platt. (2020) Do people have an ethical obligation to share their health information? Comparing narratives of altruism and health information sharing in a nationally representative sample. PLOS ONE 15:12, pages e0244767.
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Fida K. Dankar, Marton Gergely, Bradley Malin, Radja Badji, Samar K. Dankar & Khaled Shuaib. (2020) Dynamic-informed consent: A potential solution for ethical dilemmas in population sequencing initiatives. Computational and Structural Biotechnology Journal 18, pages 913-921.
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Fida K. Dankar, Marton Gergely & Samar K. Dankar. (2019) Informed Consent in Biomedical Research. Computational and Structural Biotechnology Journal 17, pages 463-474.
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Angela Ballantyne & G Owen Schaefer. (2018) Consent and the ethical duty to participate in health data research. Journal of Medical Ethics 44:6, pages 392-396.
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Karen M. MeagherMichelle L. McGowan, Richard A. SetterstenJr.Jr., Jennifer R. FishmanEric T. Juengst. (2017) Precisely Where Are We Going? Charting the New Terrain of Precision Prevention. Annual Review of Genomics and Human Genetics 18:1, pages 369-387.
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Gardar Arnason. 2017. Ethical and Political Approaches to Nonhuman Animal Issues. Ethical and Political Approaches to Nonhuman Animal Issues 327 345 .
Eric Juengst, Michelle L. McGowan, Jennifer R. Fishman & Richard A. SetterstenJr.Jr.. (2016) From “Personalized” to “Precision” Medicine: The Ethical and Social Implications of Rhetorical Reform in Genomic Medicine. Hastings Center Report 46:5, pages 21-33.
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Alan J. Kearns. (2014) Catholic Social Teaching as a Framework for Research Ethics. Journal of Academic Ethics 12:2, pages 145-159.
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Erik Christensen. 2009. The Ethics of Research Biobanking. The Ethics of Research Biobanking 101 114 .

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