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The American Journal of Bioethics Volume 18, 2018 - Issue 4
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Open Peer Commentaries

The Role of the Health Care Provider in Building Trust Between Patients and Precision Medicine Research Programs

Anitra PersaudNational Human Genome Research InstituteView further author information
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Vence L. BonhamNational Human Genome Research InstituteCorrespondence[email protected]
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Pages 26-28 | Published online: 05 Apr 2018

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Stephanie A. Kraft, Mildred K. Cho, Katherine Gillespie, Nina Varsava, Kelly E. Ormond, Benjamin S. Wilfond & Sandra Soo-Jin Lee. (2018) Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent. The American Journal of Bioethics 18:5, pages W6-W8.
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Articles from other publishers (15)

Jan Domaradzki, Justyna Czekajewska & Dariusz Walkowiak. (2023) To donate or not to donate? Future healthcare professionals’ opinions on biobanking of human biological material for research purposes. BMC Medical Ethics 24:1.
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April D. Adams, Naana Jumah, Nanette Okun & Vence L. Bonham. (2023) Equitable delivery of expanded genetic technologies: Considerations for prenatal and reproductive care. Prenatal Diagnosis 43:4, pages 435-442.
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Donna Antoine-LaVigne, Traci Hayes, Marty Fortenberry, Evidence Ohikhuai, Clifton Addison, Sam MozeeJr.Jr., Dorothy McGill, Mangle L. Shanks, Christopher Roby, Brenda W. Campbell Jenkins & Paul B. Tchounwou. (2023) Trust and Biomedical Research Engagement of Minority and Under-Represented Communities in Mississippi, USA. International Journal of Environmental Research and Public Health 20:2, pages 1592.
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Anna Middleton, Avery Adams, Hugbaad Aidid, Jerome Atutornu, Daniela Boraschi, Julian Borra, Tuba Bircan, Claudette Burch, Alessia Costa, Anna Dickinson, Ann Enticknap, Catherine Galloway, Francesca Gale, Emma Garlick, Em Haydon, Sasha Henriques, Marion Mitchell, Richard Milne, Jack Monaghan, Katherine I Morley, Milena Muella Santos, Laura Olivares Boldu, Fifi Olumogba, Kate Orviss, Vivienne Parry, Christine Patch, Lauren Robarts, Sam Shingles, Cindy Smidt, Ben Tomlin & Sarah Parkinson. (2023) Public engagement with genomics. Wellcome Open Research 8, pages 310.
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Anna Middleton, Avery Adams, Hugbaad Aidid, Jerome Atutornu, Daniela Boraschi, Julian Borra, Tuba Bircan, Claudette Burch, Alessia Costa, Anna Dickinson, Ann Enticknap, Catherine Galloway, Francesca Gale, Emma Garlick, Em Haydon, Sasha Henriques, Marion Mitchell, Richard Milne, Jack Monaghan, Katherine I Morley, Milena Muella Santos, Laura Olivares Boldu, Fifi Olumogba, Kate Orviss, Vivienne Parry, Christine Patch, Lauren Robarts, Sam Shingles, Cindy Smidt, Ben Tomlin & Sarah Parkinson. (2023) Public engagement with genomics. Wellcome Open Research 8, pages 310.
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Thibaud Deruelle, Veronika Kalouguina, Philipp Trein & Joël Wagner. (2023) Designing privacy in personalized health: An empirical analysis. Big Data & Society 10:1, pages 205395172311586.
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Bryan R Hansen, Claire L Whitehouse, Manka Nkimbeng, Kelly Beer, Katherine Mackintosh, Sarah Allgood, Claire Petchler & Rebecca Wright. (2022) Capturing the value and core concepts of the Clinical Research Nurse. Journal of Research in Nursing 27:1-2, pages 32-47.
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Ulrik N Lassen, Lydia E Makaroff, Albrecht Stenzinger, Antoine Italiano, Gilles Vassal, Jesus Garcia-Foncillas & Bernard Avouac. (2021) Precision oncology: a clinical and patient perspective. Future Oncology 17:30, pages 3995-4009.
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Philipp Trein & Joël Wagner. (2021) Governing Personalized Health: A Scoping Review. Frontiers in Genetics 12.
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Phillip A. Doerfler, Akshay Sharma, Jerlym S. Porter, Yan Zheng, John F. Tisdale & Mitchell J. Weiss. (2021) Genetic therapies for the first molecular disease. Journal of Clinical Investigation 131:8.
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Stefano Denicolai & Pietro Previtali. (2020) Precision Medicine: Implications for value chains and business models in life sciences. Technological Forecasting and Social Change 151, pages 119767.
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Janet K. Williams, Vence L. Bonham, Catherine Wicklund, Bernice Coleman, Jacquelyn Y. Taylor & Ann K. Cashion. (2019) Advocacy and actions to address disparities in access to genomic health care: A report on a National Academies workshop. Nursing Outlook 67:5, pages 605-612.
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Anitra Persaud, Stacy Desine, Katherine Blizinsky & Vence L. Bonham. (2018) A CRISPR focus on attitudes and beliefs toward somatic genome editing from stakeholders within the sickle cell disease community. Genetics in Medicine 21:8, pages 1726-1734.
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Katie L. Lewis, Flavia M. Facio & Courtney D. Berrios. (2019) Using the diffusion of innovations model to guide participant engagement in the genomics era. Journal of Genetic Counseling 28:2, pages 419-427.
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Janet K. Williams & Cindy M. Anderson. (2018) Omics research ethics considerations. Nursing Outlook 66:4, pages 386-393.
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