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The American Journal of Bioethics Volume 19, 2019 - Issue 6
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Ethical and Regulatory Considerations for Using Social Media Platforms to Locate and Track Research Participants

Ananya Bhatia-LinUniversity of Washington School of Medicine
,
Alexandra Boon-DooleyUniversity of Washington School of Medicine
,
Michelle K. RobertsUniversity of Washington School of Medicine
,
Caroline PronaiNational Institute of Mental Health
,
Dylan FisherUniversity of Washington School of Medicine
,
Lea ParkerUniversity of Washington School of MedicineORCID Iconhttp://orcid.org/0000-0001-5389-849X
ORCID Icon,
Allison EngstromUniversity of Washington School of Medicine
,
Leah IngrahamUniversity of Washington School of MedicineORCID Iconhttp://orcid.org/0000-0002-5422-6705
ORCID Icon &
Doyanne DarnellUniversity of Washington School of MedicineCorrespondence[email protected]
ORCID Iconhttp://orcid.org/0000-0002-0309-8774
ORCID Icon show all
Pages 47-61 | Published online: 28 May 2019

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Shannon K. Bennetts, Jasmine Love, Naomi J. Hackworth, Fiona K. Mensah, Elizabeth M. Westrupp, Donna Berthelsen, Penny Levickis, Clair Bennett & Jan M. Nicholson. (2021) Selective attrition in longitudinal studies: effective processes for Facebook tracing. International Journal of Social Research Methodology 24:2, pages 135-147.
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John Torous, Lyle Ungar & Ian Barnett. (2019) Expanding, Augmenting, and Operationalizing Ethical and Regulatory Considerations for Using Social Media Platforms in Research and Health Care. The American Journal of Bioethics 19:6, pages 4-6.
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Brittany N. Ferrigno & Robert M. Sade. (2019) Ethics of Recruiting Research Subjects Through Social Media. The American Journal of Bioethics 19:6, pages 73-75.
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Holly Fernandez Lynch & Emily A. Largent. (2019) Mountains and Molehills When Using Social Media as a Research Support Tool. The American Journal of Bioethics 19:6, pages 64-66.
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Joseph Spino. (2019) Research Participant Communication Via Social Media Platforms Remains Risky. The American Journal of Bioethics 19:6, pages 66-68.
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Michael J. DiStefano, Yonaira M. Rivera, Johannes Thrul & Joseph Ali. (2019) Promoting Justice in Locating and Tracking Research Participants Through Social Media. The American Journal of Bioethics 19:6, pages 71-73.
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Calvin W. L. Ho, Katharine Wright & Karel Caals. (2019) Involving Families and Children in Online Research. The American Journal of Bioethics 19:6, pages 68-71.
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Sheena M. Eagan, Erika K. Johnson & Liam X. N. Eagan. (2019) A Paradox of Choice and Opportunity in the Social Mediated Participant Recruitment Space: Opportunities and Caveats. The American Journal of Bioethics 19:6, pages 76-78.
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Articles from other publishers (8)

Jake Bush & Christopher W. Blackwell. (2022) Social Media as a Recruitment Strategy with Transgender-Identified Individuals: Using an Ethical Lens to Direct Methodology. Journal of Transcultural Nursing 33:5, pages 603-614.
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Toija Cinque. (2022) Protecting communities during the COVID-19 global health crisis: health data research and the international use of contact tracing technologies. Humanities and Social Sciences Communications 9:1.
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Calvin Wai-Loon Ho & Chia-Chin Lin. (2021) Drawing on Social Media to Enhance and Personalize Decision-Making and Care at the End of Life. Cancer Nursing 44:5, pages 347-348.
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Molly M. McNeelyAndrew G. ShumanChristian J. Vercler. (2021) Ethical Use of Public Networks and Social Media in Surgical Innovation. Journal of Laparoendoscopic & Advanced Surgical Techniques 31:9, pages 988-992.
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Jeroen M. Schuitenmaker, Renske A.B. Oude Nijhuis, Annelien L. Bredenoord, Paul Fockens & Albert J. Bredenoord. (2020) Investigator initiated research in times of COVID‐19: Let’s go digital!. Neurogastroenterology & Motility 32:11.
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P. Nydahl, C. Hermes, E. Spindelmann, A. Kaltwasser & S. J. Schaller. (2020) Netzwerk FrühmobilisierungThe Early Mobilization Network. Medizinische Klinik - Intensivmedizin und Notfallmedizin 115:6, pages 498-504.
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W. O. Hackl & A. Hoerbst. (2020) Trends in Clinical Information Systems Research in 2019. Yearbook of Medical Informatics 29:01, pages 121-128.
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Hannah Scheuer, Allison Engstrom, Peter Thomas, Rddhi Moodliar, Kathleen Moloney, Mary Lou Walen, Peyton Johnson, Sara Seo, Natalie Vaziri, Alvaro Martinez, Ronald Maier, Joan Russo, Stella Sieber, Pete Anziano, Kristina Anderson, Eileen Bulger, Lauren Whiteside, Patrick Heagerty, Lawrence Palinkas & Douglas Zatzick. (2020) A comparative effectiveness trial of an information technology enhanced peer-integrated collaborative care intervention versus enhanced usual care for US trauma care systems: Clinical study protocol. Contemporary Clinical Trials 91, pages 105970.
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