http://orcid.org/0000-0002-5273-3877
Citations (39)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (18)
Ryan H. Nelson, Bryanna Moore, Holly Fernandez Lynch, Miranda R. Waggoner & Jennifer Blumenthal-Barby. (2023) Bioethics and the Moral Authority of Experience. The American Journal of Bioethics 23:1, pages 12-24.
Read now
Read now
Camilla M. McMahon, Meghan Linthicum & Brianna Stoll. (2022) Developmental disability vs. neurodiverse identity: how cognitive lens affects the general public’s perceptions of autism. Disability & Society 37:9, pages 1439-1455.
Read now
Read now
Jordan P. Richardson & Richard R. Sharp. (2020) Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy. The American Journal of Bioethics 20:4, pages 1-3.
Read now
Read now
Nanette Elster & Kayhan Parsi. (2020) Like Autism, Representation Falls on a Spectrum. The American Journal of Bioethics 20:4, pages 4-5.
Read now
Read now
Bryna Siegel. (2020) Hope Springs Eternal: Pitfalls of Partial Representation by Advocates Who Only Want the Best. The American Journal of Bioethics 20:4, pages 38-40.
Read now
Read now
Zeljka Buturovic. (2020) Parents of Autistic Children Are Deserving of Support. The American Journal of Bioethics 20:4, pages 54-55.
Read now
Read now
Holly K. Tabor. (2020) Civic Engagement, Autism and Deliberative Democracy: Prioritizing the Inclusion of Marginalized Perspectives. The American Journal of Bioethics 20:4, pages 41-43.
Read now
Read now
Karin R. Jongsma & Silke Schicktanz. (2020) Patient Representation: Mind the Gap Between Individual and Collective Claims. The American Journal of Bioethics 20:4, pages 28-30.
Read now
Read now
Sam Fellowes. (2020) Additional Challenges to Fair Representation in Autistic Advocacy. The American Journal of Bioethics 20:4, pages 44-45.
Read now
Read now
Bethany Bruno & Susannah Rose. (2020) Ethical Representation by Patient Advocacy Organizations Also Requires Responsible Management of Potential Financial Conflicts of Interest. The American Journal of Bioethics 20:4, pages 59-61.
Read now
Read now
Ari Ne’eman & Julia Bascom. (2020) Autistic Self Advocacy in the Developmental Disability Movement. The American Journal of Bioethics 20:4, pages 25-27.
Read now
Read now
Ryan H. Nelson. (2020) Autism Advocacy Before and After DSM-5. The American Journal of Bioethics 20:4, pages 48-50.
Read now
Read now
Elle Benjamin, Bethany E. Ziss & B. R. George. (2020) Representation Is Never Perfect, But Are Parents Even Representatives?. The American Journal of Bioethics 20:4, pages 51-53.
Read now
Read now
Lucy Frith. (2020) Non-Electoral Representation and Promoting Welfare—Beyond Descriptive Representation. The American Journal of Bioethics 20:4, pages 56-58.
Read now
Read now
William D. Graf. (2020) Beyond Autism: Advocacy for Neurodevelopmental Differences. The American Journal of Bioethics 20:4, pages 30-33.
Read now
Read now
Philip G. Day, Kristian E. Sanchack & Robert P. Lennon. (2020) A Care Ethics Approach to Ethical Advocacy for Community Conditions. The American Journal of Bioethics 20:4, pages 35-37.
Read now
Read now
Robert Chapman & Walter Veit. (2020) Representing the Autism Spectrum. The American Journal of Bioethics 20:4, pages 46-48.
Read now
Read now
Kenneth A. Richman. (2020) Neurodiversity and Autism Advocacy: Who Fits Under the Autism Tent?. The American Journal of Bioethics 20:4, pages 33-34.
Read now
Read now
Articles from other publishers (21)
Rebecca Dimond, Neil Stephens & Cathy Herbrand. (2023) Making patients political: Narrating, curating, enacting, and navigating the ‘idealised policy patient’. Social Science & Medicine 338, pages 116333.
Crossref
Crossref
Ari Ne'eman, Kenneth A. RichmanAllison M. McCarthy & Daniel Wilkenfeld. (2023) A Passing Problem: Evaluating Harm and Benefit in Autism Research. Ethics & Human Research 45:6, pages 2-18.
Crossref
Crossref
Sarah Arnaud. (2023) First-person perspectives and scientific inquiry of autism: towards an integrative approach. Synthese 202:5.
Crossref
Crossref
Summer B. BottiniHannah E. Morton, Kelly A. BuchananKait Gould. (2023) Moving from Disorder to Difference: A Systematic Review of Recent Language Use in Autism Research. Autism in Adulthood.
Crossref
Crossref
Sara T. Kover & Leonard Abbeduto. (2023) Toward Equity in Research on Intellectual and Developmental Disabilities. American Journal on Intellectual and Developmental Disabilities 128:5, pages 350-370.
Crossref
Crossref
Heini M. Natri, Carolyn R. Chapman, Síofra Heraty, Patrick Dwyer, Nick Walker, Steven K. Kapp, Heather A. Dron, Julian A. Martinez-Agosto, Lea Mikkola & Mary Doherty. (2023) Ethical challenges in autism genomics: Recommendations for researchers. European Journal of Medical Genetics 66:9, pages 104810.
Crossref
Crossref
Stian Orm, Michelle Dean, Sue Fletcher-Watson & Anders Nordahl-Hansen. (2023) Short report: Autistic adults’ recommendations on how to improve autistic portrayals in TV-series and movies. Research in Developmental Disabilities 136, pages 104484.
Crossref
Crossref
Michelle M. Hughes, Kelly A. Shaw, Monica DiRienzo, Maureen S. Durkin, Amy Esler, Jennifer Hall-Lande, Lisa Wiggins, Walter Zahorodny, Alison Singer & Matthew J. Maenner. (2023) The Prevalence and Characteristics of Children With Profound Autism, 15 Sites, United States, 2000-2016. Public Health Reports, pages 003335492311635.
Crossref
Crossref
Ryan Collis. (2023) A response to Singer, Lutz, Escher, and Halladay's “a full semantic toolbox is essential for autism research and practice to thrive” in Autism Research (published online 12 Dec 2022). Autism Research 16:4, pages 679-680.
Crossref
Crossref
Alison Singer, Amy Lutz, Jill Escher & Alycia Halladay. (2022) A full semantic toolbox is essential for autism research and practice to thrive. Autism Research 16:3, pages 497-501.
Crossref
Crossref
Brady Huggett. (2023) Autism research at the crossroads. Spectrum.
Crossref
Crossref
Nancy J. Muller. 2022. Research Anthology on Approaches to Social and Sustainable Entrepreneurship. Research Anthology on Approaches to Social and Sustainable Entrepreneurship
395
419
.
Zsofia Szlamka, Bethlehem Tekola, Rosa Hoekstra & Charlotte Hanlon. (2022) The role of advocacy and empowerment in shaping service development for families raising children with developmental disabilities. Health Expectations 25:4, pages 1882-1891.
Crossref
Crossref
Tim Holetzek & Christine Holmberg. (2022) Representation in participatory health care decision‐making: Reflections on an Application‐Oriented Model. Health Expectations 25:4, pages 1444-1452.
Crossref
Crossref
Armita Farsinejad, Ailsa Russell & Catherine Butler. (2022) Autism disclosure – The decisions autistic adults make. Research in Autism Spectrum Disorders 93, pages 101936.
Crossref
Crossref
Nenad Glumbić, Mirjana Đorđević & Branislav BrojčinNenad Glumbić, Mirjana Đorđević & Branislav Brojčin. 2022. Digital Inclusion of Individuals with Autism Spectrum Disorder. Digital Inclusion of Individuals with Autism Spectrum Disorder
215
229
.
Anne-Marie Gagné-Julien. (2021) Wrongful Medicalization and Epistemic Injustice in PsychiatryPogrešna medikalizacija i epistemička nepravda u psihijatriji. European journal of analytic philosophy 17:2, pages 5-36.
Crossref
Crossref
Emily L. Casanova & Cheryl J. Widman. (2021) A sociological treatment exploring the medical model in relation to the neurodiversity movement with reference to policy and practice. Evidence & Policy 17:2, pages 363-381.
Crossref
Crossref
Nancy J. Muller. 2021. Handbook of Research on Innate Leadership Characteristics and Examinations of Successful First-Time Leaders. Handbook of Research on Innate Leadership Characteristics and Examinations of Successful First-Time Leaders
319
343
.
Kristen Gillespie-Lynch, Patrick Dwyer, Christopher Constantino, Steven K. Kapp, Emily Hotez, Ariana Riccio, Danielle DeNigris, Bella Kofner & Eric Endlich. 2020. Disability Alliances and Allies. Disability Alliances and Allies
189
223
.
Ned Redmore. (2023) Proposing an Academic Space of “Autism and Profound Learning Disability”. International Journal of Disability and Social Justice 3:2.
Crossref
Crossref