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Peer-Reviewed Articles

Informing Social Work Practice Through Research With Parent Caregivers of a Child With a Life-Limiting Illness

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Pages 356-381 | Received 04 Nov 2011, Accepted 27 Jul 2012, Published online: 29 Nov 2012

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Khadije Khazaeli, Seyed Ali Hosseini, Hossein Sortiji & Farzane Saberi. (2023) Spirituality and depression in mothers of children with leukemia. Journal of Spirituality in Mental Health 0:0, pages 1-11.
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Gianina-Ioana Postavaru, Jenny Hamilton, Sian Davies, Helen Swaby, Anastasia Michael, Rabbi Swaby & Elizabeta B. Mukaetova-Ladinska. (2023) The FATHER Model of Loss and Grief After Child’s Life-Limiting Illness. Pediatrics.
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Oindrila Dutta, Geraldine Tan-Ho, Xinyi Casuarine Low, Toh Hsiang Benny Tan, Sashikumar Ganapathy, Josip Car, Ringo Moon-Ho Ho, Chun Yan Miao & Andy Hau Yan Ho. (2022) Acceptability and feasibility of a pilot randomized controlled trial of Narrative e-Writing Intervention (NeW-I) for parent-caregivers of children with chronic life-threatening illnesses in Singapore. BMC Palliative Care 21:1.
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Meridith Burles & Jill M.G. Bally. (2022) “The chip in a perfect piece of pottery”: An ethnographic study of parents’ online narratives when a child has cancer. SSM - Qualitative Research in Health 2, pages 100139.
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Shelley Spurr, Jill Bally, Meridith Burles & Kasha Mcharo. (2022) A investigation into hope, self-efficacy, distress and uncertainty in parents who have a child with a life-threatening or life-limiting illness. Journal of Pediatric Nursing 66, pages e9-e15.
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Susan Cadell & Harvey Bosma. 2022. The Oxford Textbook of Palliative Social Work. The Oxford Textbook of Palliative Social Work 482 484 .
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Gianmarco Biancalani, Claudia Azzola, Raluca Sassu, Cristina Marogna & Ines Testoni. (2022) Spirituality for Coping with the Trauma of a Loved One’s Death During the COVID-19 Pandemic: An Italian Qualitative Study. Pastoral Psychology 71:2, pages 173-185.
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Fenella J Gill, Zahraa Hashem, Roswitha Stegmann & Samar M Aoun. (2020) The support needs of parent caregivers of children with a life-limiting illness and approaches used to meet their needs: A scoping review. Palliative Medicine 35:1, pages 76-96.
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Andy Hau Yan Ho, Oindrila Dutta, Geraldine Tan-Ho, Toh Hsiang Benny Tan, Xinyi Casuarine Low, Sashikumar Ganapathy, Josip Car, Ringo Moon-Ho Ho & Chun Yan Miao. (2020) A Novel Narrative E-Writing Intervention for Parents of Children With Chronic Life-Threatening Illnesses: Protocol for a Pilot, Open-Label Randomized Controlled Trial. JMIR Research Protocols 9:7, pages e17561.
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Emma Al-Khabbaz, Busisiwe Nkosi & Jane S. Nakawesi. 2020. Children’s Palliative Care: An International Case-Based Manual. Children’s Palliative Care: An International Case-Based Manual 39 49 .
Myrna A.A. Doumit, Amal C. Rahi, Raya Saab & Marianne Majdalani. (2019) Spirituality among parents of children with cancer in a Middle Eastern country. European Journal of Oncology Nursing 39, pages 21-27.
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Jill M. G. Bally & Meridith Burles. 2019. Hospice Palliative Home Care and Bereavement Support. Hospice Palliative Home Care and Bereavement Support 143 152 .
Nicole R. Smith, Jill M. G. Bally, Lorraine Holtslander, Shelley Peacock, Shelley Spurr, Heather Hodgson‐Viden, Christopher Mpofu & Marcelline Zimmer. (2018) Supporting parental caregivers of children living with life‐threatening or life‐limiting illnesses: A Delphi study. Journal for Specialists in Pediatric Nursing 23:4.
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Sandeep Grover, Kumari Rina, Pankaj Malhotra & Alka Khadwal. (2018) Correlates of Positive Aspects of Caregiving Among Family Caregivers of Patients with Acute Myeloblastic Leukaemia. Indian Journal of Hematology and Blood Transfusion 34:4, pages 612-617.
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Kim Mooney-DoyleJanet A. DeatrickConnie M. UlrichSalimah H. MeghaniChris Feudtner. (2018) Parenting in Childhood Life-Threatening Illness: A Mixed-Methods Study. Journal of Palliative Medicine 21:2, pages 208-215.
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Wendy Pelletier, Ilaria Ripamonti & Kira Bona. 2018. Palliative Care in Pediatric Oncology. Palliative Care in Pediatric Oncology 203 215 .
Betty Davies, Rose Steele, Guenther Krueger, Susan Albersheim, Jennifer Baird, Michelle Bifirie, Susan Cadell, Gweneth Doane, Deepshikha Garga, Harold Siden, Caron Strahlendorf & Yuan Zhao. (2016) Best Practice in Provider/Parent Interaction. Qualitative Health Research 27:3, pages 406-420.
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Kathleen G. Davis. 2017. Dying and Death in Oncology. Dying and Death in Oncology 147 169 .
Bridget Johnston, Divya Jindal-Snape & Jan Pringle. (2016) Life transitions of adolescents and young adults with life-limiting conditions. International Journal of Palliative Nursing 22:12, pages 608-617.
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Susan Cadell, Eliana Suarez & David Hemsworth. (2015) Reliability and Validity of a French Version of the Posttraumatic Growth Inventory. Open Journal of Medical Psychology 04:02, pages 53-65.
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Rose SteeleSusan CadellHarold SidenGail AndrewsTrudy Smit QuosaiLeanne Feichtinger. (2014) Impact of Research Participation on Parents of Seriously Ill Children. Journal of Palliative Medicine 17:7, pages 788-796.
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Barbara L. Jones, Nancy Contro & Kendra D. Koch. (2014) The Duty of the Physician to Care for the Family in Pediatric Palliative Care: Context, Communication, and Caring. Pediatrics 133:Supplement_1, pages S8-S15.
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Shelley Spurr, Jill Bally, Meridith Burles & Kasha Mcharo. (2022) A Holistic Investigation into Hope, Self-Efficacy, Distress and Uncertainty in Parents Who Have a Child with a Life-Threatening or Life-Limiting Illness. SSRN Electronic Journal.
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