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Peer-Reviewed Articles

Vital Conversations with Family in the Nursing Home: Preparation for End-Stage Dementia Care

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Pages 112-126 | Received 05 Aug 2013, Accepted 30 Dec 2013, Published online: 16 May 2014

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Raúl Hormazábal-Salgado, Abdi D. Osman, Margarita Poblete-Troncoso, Dean Whitehead & Danny Hills. (2023) Advanced Care Directives in Residential Aged Care for Residents with Major Neuro-Cognitive Disorders (Dementia): A Scoping Review. Journal of Social Work in End-of-Life & Palliative Care 0:0, pages 1-32.
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Joann P. Reinhardt, Deirdre Downes, Verena Cimarolli & Patricia Bomba. (2017) End-of-Life Conversations and Hospice Placement: Association with Less Aggressive Care Desired in the Nursing Home. Journal of Social Work in End-of-Life & Palliative Care 13:1, pages 61-81.
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Anne P. Glass. (2016) Family Caregiving and the Site of Care: Four Narratives About End-of-Life Care for Individuals with Dementia. Journal of Social Work in End-of-Life & Palliative Care 12:1-2, pages 23-46.
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Joann P. Reinhardt, Kathrin Boerner & Deirdre Downes. (2015) The Positive Association of End-of-Life Treatment Discussions and Care Satisfaction in the Nursing Home. Journal of Social Work in End-of-Life & Palliative Care 11:3-4, pages 307-322.
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Articles from other publishers (53)

Collin E. Burks, Omid Salaami, Sarah E. Cantrell, Neema K. Sharda & Mamata Yanamadala. (2023) A Systematic Review of the Effects of Advance Care Planning Interventions in Nursing Homes. Journal of the American Medical Directors Association 24:12, pages 1809-1819.e4.
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Katsumi Nasu, Mitsunori Miyashita, Kayo Hirooka, Takuro Endo & Hiroki Fukahori. (2023) Ambulance use and emergency department visits among people with dementia: A cross‐sectional survey. Nursing & Health Sciences.
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Kathleen T. Unroe, Mary Ersek, Wanzhu Tu, Alexander Floyd, Todd Becker, Jessica Trimmer, Jodi Lamie & John Cagle. (2023) Using Palliative Leaders in Facilities to Transform Care for People with Alzheimer’s Disease (UPLIFT-AD): protocol of a palliative care clinical trial in nursing homes. BMC Palliative Care 22:1.
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Meghan McDarby, David Russell, Lori King, Elissa Kozlov & Elizabeth A. Luth. (2023) Challenges and strategies among family care partners of community‐dwelling persons with dementia nearing end of life. Journal of the American Geriatrics Society 71:6, pages 1785-1794.
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Emilio Mota-Romero, Olga Rodríguez-Landero, Rocío Moya-Dieguez, Glaucione Marisol Cano-Garzón, Rafael Montoya-Juárez & Daniel Puente-Fernández. (2023) Information and Advance Care Directives for End-of-Life Residents with and without Dementia in Nursing Homes. Healthcare 11:3, pages 353.
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Kaila N. Robertson & Abigail Nathanson. 2023. The Practice of Clinical Social Work in Healthcare. The Practice of Clinical Social Work in Healthcare 87 108 .
Gizell Green, Inbal Halevi Hochwald, Zorian Radomyslsky & Rachel Nissanholtz-Gannot. (2022) Family Caregiver’s Depression, Confidence, Satisfaction, and Burden Regarding End-of-Life Home Care for People With End-Stage Dementia. OMEGA - Journal of Death and Dying, pages 003022282211479.
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Rachel Muthui & Olimpia Paun. (2022) Process of Advance Care Planning in Nursing Home Settings: An Integrative Literature Review. Research in Gerontological Nursing 15:6, pages 312-320.
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Sameh Eltaybani, Taisuke Yasaka, Chie Fukui, Asa Inagaki, Manami Takaoka, Haruno Suzuki, Miyuki Maruyama, Ayumi Igarashi, Maiko Noguchi‐Watanabe, Mariko Sakka, Carolina Weller & Noriko Yamamoto‐Mitani. (2022) Family‐oriented interventions in long‐term care residential facilities for older people: A scoping review of the characteristics and outcomes. Nursing Forum 57:5, pages 800-818.
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Alina Yee Man Ng, Naomi Takemura, Xinyi Xu, Robert Smith, Jojo Yan-yan Kwok, Denise Shuk Ting Cheung & Chia Chin Lin. (2022) The effects of advance care planning intervention on nursing home residents: A systematic review and meta-analysis of randomised controlled trials. International Journal of Nursing Studies 132, pages 104276.
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Rebecca E Ryan, Michael Connolly, Natalie K Bradford, Simon Henderson, Anthony Herbert, Lina Schonfeld, Jeanine Young, Josephine I Bothroyd & Amanda Henderson. (2022) Interventions for interpersonal communication about end of life care between health practitioners and affected people. Cochrane Database of Systematic Reviews 2022:7.
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Chetna Malhotra, Vinh Anh Huynh, Mahham Shafiq & Ada Portia M Batcagan-Abueg. (2022) Advance care planning and caregiver outcomes: intervention efficacy – systematic review. BMJ Supportive & Palliative Care, pages bmjspcare-2021-003488.
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Janine K Hayward, Charlotte Gould, Emma Palluotto, Emily Kitson, Emily R Fisher & Aimee Spector. (2021) Interventions promoting family involvement with care homes following placement of a relative with dementia: A systematic review. Dementia 21:2, pages 618-647.
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Silvia Gonella, Gary Mitchell, Laura Bavelaar, Alessio Conti, Mariangela Vanalli, Ines Basso & Nicola Cornally. (2021) Interventions to support family caregivers of people with advanced dementia at the end of life in nursing homes: A mixed-methods systematic review. Palliative Medicine 36:2, pages 268-291.
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Sinthana U. Ramsey & Robert M. Arnold. 2022. Neuropalliative Care, Part I. Neuropalliative Care, Part I 163 174 .
Zachary A. Macchi & Hillary D. Lum. 2022. Neuropalliative Care, Part I. Neuropalliative Care, Part I 129 148 .
Janet Jull, Sascha Köpke, Maureen Smith, Meg Carley, Jeanette Finderup, Anne C Rahn, Laura Boland, Sandra Dunn, Andrew A Dwyer, Jürgen Kasper, Simone Maria Kienlin, France Légaré, Krystina B Lewis, Anne Lyddiatt, Claudia Rutherford, Junqiang Zhao, Tamara Rader, Ian D Graham & Dawn Stacey. (2021) Decision coaching for people making healthcare decisions. Cochrane Database of Systematic Reviews 2021:11.
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Inbal Halevi Hochwald, Gila Yakov, Zorian Radomyslsky, Yehuda Danon & Rachel Nissanholtz-Gannot. (2021) Ethical challenges in end-stage dementia: Perspectives of professionals and family care-givers. Nursing Ethics 28:7-8, pages 1228-1243.
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Sharon C Walsh, Edel Murphy, Declan Devane, Elizabeth L Sampson, Sheelah Connolly, Patricia Carney & Eamon O'Shea. (2021) Palliative care interventions in advanced dementia. Cochrane Database of Systematic Reviews 2021:9.
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Chetna Malhotra, Hazirah, Mohamad, Truls Østbye, Kathryn I Pollak, Bharathi Balasundaram, Rahul Malhotra, Ka-Mun Tong, Allyn Yin Mei Hum, John Carson Allen, Dennis Seow, Jing Rong Yong & Sungwon Yoon. (2021) Discordance between dementia caregivers’ goal of care and preference for life-extending treatments. Age and Ageing 50:4, pages 1382-1390.
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Hyejin Kim, Jeonghyun Cho, Won Seok Park & Sang Suk Kim. (2021) Characteristics of Advance Care Planning Interventions Across Dementia Stages: A Systematic Review. Journal of Nursing Scholarship 53:2, pages 180-188.
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Andrew Geddis‐Regan, Linda Errington, Clare Abley, Rebecca Wassall, Catherine Exley & Richard Thomson. (2020) Enhancing shared and surrogate decision making for people living with dementia: A systematic review of the effectiveness of interventions. Health Expectations 24:1, pages 19-32.
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Ryan D. McMahan, Ismael Tellez & Rebecca L. Sudore. (2020) Deconstructing the Complexities of Advance Care Planning Outcomes: What Do We Know and Where Do We Go? A Scoping Review. Journal of the American Geriatrics Society 69:1, pages 234-244.
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April ZehmAmanda M. HazeltineJoseph A. GreerLara TraegerMargaret Nelson-LoweKate BrizziJuliet Jacobsen. (2020) Neurology clinicians' views on palliative care communication. Neurology Clinical Practice 10:6, pages 527-534.
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Ramona Backhaus, Linda J. M. Hoek, Erica de Vries, Jolanda C. M. van Haastregt, Jan P. H. Hamers & Hilde Verbeek. (2020) Interventions to foster family inclusion in nursing homes for people with dementia: a systematic review. BMC Geriatrics 20:1.
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Tharin Phenwan, Judith Sixsmith, Linda McSwiggan & Deans Buchanan. (2020) A narrative review of facilitating and inhibiting factors in advance care planning initiation in people with dementia. European Geriatric Medicine 11:3, pages 353-368.
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Henry Y.H. Siu, Dawn Elston, Neha Arora, Amie Vahrmeyer, Sharon Kaasalainen, Paula Chidwick, Michelle Howard & Daren K. Heyland. (2020) A Multicenter Study to Identify Clinician Barriers to Participating in Goals of Care Discussions in Long-Term Care. Journal of the American Medical Directors Association 21:5, pages 647-652.
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Slavica Kochovska, Maja V Garcia, Frances Bunn, Claire Goodman, Tim Luckett, Deborah Parker, Jane L Phillips, Elizabeth L Sampson, Jenny T van der Steen & Meera R Agar. (2020) Components of palliative care interventions addressing the needs of people with dementia living in long-term care: A systematic review. Palliative Medicine 34:4, pages 454-492.
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Kirsten Evenblij, Maud ten Koppel, Tinne Smets, Guy A. M. Widdershoven, Bregje D. Onwuteaka-Philipsen & H. Roeline W. Pasman. (2019) Are care staff equipped for end-of-life communication? A cross-sectional study in long-term care facilities to identify determinants of self-efficacy. BMC Palliative Care 18:1.
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Adele J. Kelly, Tim Luckett, Josephine M. Clayton, Liam Gabb, Slavica Kochovska & Meera Agar. (2019) Advance care planning in different settings for people with dementia: A systematic review and narrative synthesis. Palliative and Supportive Care 17:6, pages 707-719.
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Silvia Gonella, Sara Campagna, Ines Basso, Maria Grazia De Marinis & Paola Di Giulio. (2019) Mechanisms by which end-of-life communication influences palliative-oriented care in nursing homes: A scoping review. Patient Education and Counseling 102:12, pages 2134-2144.
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Pamela Durepos, Tamara Sussman, Jenny Ploeg, Noori Akhtar-Danesh, Harveer Punia & Sharon Kaasalainen. (2018) What Does Death Preparedness Mean for Family Caregivers of Persons With Dementia?. American Journal of Hospice and Palliative Medicine® 36:5, pages 436-446.
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Kerry Jones, Giles Birchley, Richard Huxtable, Linda Clare, Tony Walter & Jeremy Dixon. (2016) End of Life Care: A Scoping Review of Experiences of Advance Care Planning for People with Dementia. Dementia 18:3, pages 825-845.
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Hyejin Kim, Eliza M. Park, Carrie Henry, Sandra E. Ward & Mi-Kyung Song. (2018) Control Conditions That Are Neither Usual Care Nor No Treatment in Randomized Trials of Psychoeducational Palliative Care Interventions: A Systematic Review. American Journal of Hospice and Palliative Medicine® 36:4, pages 339-347.
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Jamie Bryant, Heidi Turon, Amy Waller, Megan Freund, Elise Mansfield & Rob Sanson-Fisher. (2018) Effectiveness of interventions to increase participation in advance care planning for people with a diagnosis of dementia: A systematic review. Palliative Medicine 33:3, pages 262-273.
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Mandi Sehgal, Elizabeth Hidlebaugh, Matthew G. Checketts & Bernardo Reyes. (2019) Geriatrics Screening and Assessment. Primary Care: Clinics in Office Practice 46:1, pages 85-96.
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Sheryl Zimmerman & Laura C. Hanson. (2019) Unpacking Communication About End-of-Life Care: Resulting Recommendations. Journal of the American Medical Directors Association 20:3, pages 225-226.
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Silvia Gonella, Ines Basso, Valerio Dimonte, Barbara Martin, Paola Berchialla, Sara Campagna & Paola Di Giulio. (2019) Association Between End-of-Life Conversations in Nursing Homes and End-of-Life Care Outcomes: A Systematic Review and Meta-analysis. Journal of the American Medical Directors Association 20:3, pages 249-261.
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Deborah G. Freeland & David Shih Wu. (2019) Disease-Specific Advance Care Planning Interventions for Older Adults. Current Geriatrics Reports 8:1, pages 12-20.
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Elizabeth Hanson, Amanda Hellström, Åsa Sandvide, Graham A Jackson, Rhoda MacRae, Anna Waugh, Wilson Abreu & Debbie Tolson. (2016) The extended palliative phase of dementia – An integrative literature review. Dementia 18:1, pages 108-134.
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Ellen McCreedy, Lacey Loomer, Jennifer A. Palmer, Susan L. Mitchell, Angelo Volandes & Vincent Mor. (2018) Representation in the Care Planning Process for Nursing Home Residents With Dementia. Journal of the American Medical Directors Association 19:5, pages 415-421.
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Cathy Knight & Karen Harrison Dening. (2018) Good communication with family of people with dementia at end of life: reflections of an Admiral Nurse. British Journal of Neuroscience Nursing 14:1, pages 6-13.
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Karen Harrison Dening. (2017) Preparing end-of-life care for people living with dementia. Nursing and Residential Care 19:11, pages 634-639.
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Sue Barker, Mary LynchJane Hopkinson. (2017) Decision making for people living with dementia by their carers at the end of life: a rapid scoping review. International Journal of Palliative Nursing 23:9, pages 446-456.
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Susan C. Miller, Julie C. Lima, Orna Intrator, Edward Martin, Janet Bull & Laura C. Hanson. (2017) Specialty Palliative Care Consultations for Nursing Home Residents With Dementia. Journal of Pain and Symptom Management 54:1, pages 9-16.e5.
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Joni Gilissen, Lara Pivodic, Tinne Smets, Chris Gastmans, Robert Vander Stichele, Luc Deliens & Lieve Van den Block. (2017) Preconditions for successful advance care planning in nursing homes: A systematic review. International Journal of Nursing Studies 66, pages 47-59.
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Edel Murphy, Katherine Froggatt, Sheelah Connolly, Eamon O'Shea, Elizabeth L Sampson, Dympna Casey & Declan Devane. (2016) Palliative care interventions in advanced dementia. Cochrane Database of Systematic Reviews.
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Giles Birchley, Kerry Jones, Richard Huxtable, Jeremy Dixon, Jenny Kitzinger & Linda Clare. (2016) Dying well with reduced agency: a scoping review and thematic synthesis of the decision-making process in dementia, traumatic brain injury and frailty. BMC Medical Ethics 17:1.
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Geena Saini, Elizabeth L. Sampson, Sarah Davis, Nuriye Kupeli, Jane Harrington, Gerard Leavey, Irwin Nazareth, Louise Jones & Kirsten J. Moore. (2016) An ethnographic study of strategies to support discussions with family members on end-of-life care for people with advanced dementia in nursing homes. BMC Palliative Care 15:1.
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Nai-Ching Chi, George Demiris, Frances M. Lewis, Amy J. Walker & Shelby L. Langer. (2016) Behavioral and Educational Interventions to Support Family Caregivers in End-of-Life Care. American Journal of Hospice and Palliative Medicine® 33:9, pages 894-908.
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Sooyoun Han. (2016) The Effects of South Korean Social Workers' Professional Resources on their Understanding of a Patient's Right to End-of-Life Care Decisions in Long-term Care Facilities. Asian Social Work and Policy Review 10:2, pages 200-209.
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Fariba Mahin-Babaei, Jamal Hilal & Julian C. Hughes. (2016) The basis, ethics and provision of palliative care for dementia: A review. Maturitas 83, pages 3-8.
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Mirjam C van Soest-Poortvliet, Jenny T van der Steen, Henrica CW de Vet, Cees MPM Hertogh, Luc Deliens & Bregje D Onwuteaka-Philipsen. (2015) Comfort goal of care and end-of-life outcomes in dementia: A prospective study. Palliative Medicine 29:6, pages 538-546.
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